Patient reported outcomes – experiences with implementation in a University Health Care setting

AimPatient-reported outcomes (PROs) have traditionally been implemented through a manual process of paper and pencil with little standardization throughout a Healthcare System. Each practice has asked patients specific questions to understand the patient’s health as it pertains to their specialty. These data were rarely shared and there has not been a comparison of patient’s health across different specialty domains. We sought to leverage interoperable electronic systems to provide a standardization of PRO assessments across sites of care.MethodsUniversity of Utah Health is comprised of four hospitals, 12 community clinics, over 400,000 unique annual patients, and more than 5000 providers. The enterprise wide implementation of PROs started in November of 2015. Patients can complete an assessment at home via email, or within the clinic on a tablet. Each specialty has the opportunity to add additional specialty-specific instruments. We customized the interval with which the patient answers the assessments based on specialty preference in order to minimize patient burden, while maximizing relevant data for clinicians.ResultsBarriers and facilitators were identified in three phases: Pre-implementation, Implementation, and Post-implementation. Each phase was further broken down into technical challenges, content inclusion and exclusion, and organizational strategy. These phases are unique and require collaboration between several groups throughout the organization with support from executive leadership.DiscussionWe are deploying system-wide standard and customized PRO collection with the goals of providing better patient care, improving physician-patient communication, and ultimately improving the value of the care given. Standardized assessment provides any clinician with information to quickly evaluate the overall, physical and mental health of a patient. This information is available real time to aid in patient communication for the clinician.

[1]  S. Pearson,et al.  The use and reporting of patient-reported outcomes in phase III breast cancer trials , 2013, Clinical trials.

[2]  P. Davidson,et al.  Health span or life span: the role of patient-reported outcomes in informing health policy. , 2011, Health policy.

[3]  Christina Y Weng,et al.  Defining a Minimum Set of Standardized Patient-centered Outcome Measures for Macular Degeneration. , 2016, American journal of ophthalmology.

[4]  R. McNamara,et al.  Standardized Outcome Measurement for Patients With Coronary Artery Disease: Consensus From the International Consortium for Health Outcomes Measurement (ICHOM) , 2015, Journal of the American Heart Association.

[5]  Michele Tarsilla Cochrane Handbook for Systematic Reviews of Interventions , 2010, Journal of MultiDisciplinary Evaluation.

[6]  C. Acquadro,et al.  Patient‐reported outcomes and health‐related quality of life in effectiveness studies: pros and cons , 2006 .

[7]  G. Kemmler,et al.  [The benefits of using patient-reported outcomes in cancer treatment: an overview]. , 2012, Wiener Klinische Wochenschrift.

[8]  Daniel J Buysse,et al.  The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005-2008. , 2010, Journal of clinical epidemiology.

[9]  J. Higgins,et al.  Cochrane Handbook for Systematic Reviews of Interventions, Version 5.1.0. The Cochrane Collaboration , 2013 .

[10]  S. Reise,et al.  Item Banks for Measuring Emotional Distress From the Patient-Reported Outcomes Measurement Information System (PROMIS®): Depression, Anxiety, and Anger , 2011, Assessment.

[11]  Ingela Wiklund,et al.  Assessment of patient‐reported outcomes in clinical trials: the example of health‐related quality of life , 2004, Fundamental & clinical pharmacology.

[12]  J. Higgins,et al.  Cochrane Handbook for Systematic Reviews of Interventions , 2010, International Coaching Psychology Review.

[13]  Asif Ahmad,et al.  Electronic Patient-Reported Data Capture as a Foundation of Rapid Learning Cancer Care , 2010, Medical care.

[14]  A. Bottomley,et al.  Integrating cancer patients' perspectives into treatment decisions and treatment evaluation using patient-reported outcomes--a concept paper. , 2014, European journal of cancer care.

[15]  P. Scardino,et al.  Validation study of a web-based assessment of functional recovery after radical prostatectomy , 2010, Health and quality of life outcomes.

[16]  J. Manola,et al.  Using patient‐reported outcomes to assess and improve prostate cancer brachytherapy , 2014, BJU international.

[17]  M. McAllister,et al.  Patient reported outcomes and patient empowerment in clinical genetics services , 2015, Clinical genetics.

[18]  M. O. Papuga,et al.  Large-scale clinical implementation of PROMIS computer adaptive testing with direct incorporation into the electronic medical record , 2018, Health systems.

[19]  P. Deshpande,et al.  Patient-reported outcomes: A new era in clinical research , 2011, Perspectives in clinical research.

[20]  Theresa Weldring,et al.  Patient-Reported Outcomes (PROs) and Patient-Reported Outcome Measures (PROMs) , 2013, Health services insights.

[21]  H. Caron,et al.  Patient reported outcomes in pediatric oncology practice: Suggestions for future usage by parents and pediatric oncologists , 2014, Pediatric blood & cancer.

[22]  R. G. Parrish,et al.  Measuring Population Health Outcomes , 2010, Preventing chronic disease.

[23]  Johannes Giesinger,et al.  Verwendung und Nutzen von Patient-Reported Outcomes in der onkologischen Behandlung: eine Übersicht , 2012, Wiener klinische Wochenschrift.

[24]  Neil W. Wagle Implementing Patient-Reported Outcome Measures , 2017 .

[25]  Parrish Rg Measuring population health outcomes. , 2010 .