Research participants in NGS studies want to know about incidental findings

[1]  J. Friedman,et al.  Incidental Findings from Clinical Genome-Wide Sequencing: A Review , 2014, Journal of Genetic Counseling.

[2]  Julie C. Sapp,et al.  Parental attitudes, values, and beliefs toward the return of results from exome sequencing in children , 2014, Clinical genetics.

[3]  Magalie S Leduc,et al.  Clinical whole-exome sequencing for the diagnosis of mendelian disorders. , 2013, The New England journal of medicine.

[4]  E. Palmaer,et al.  Patient decisions for disclosure of secondary findings among the first 200 individuals undergoing clinical diagnostic exome sequencing , 2013, Genetics in Medicine.

[5]  M. Hansson,et al.  Incidental findings: the time is not yet ripe for a policy for biobanks , 2014, European Journal of Human Genetics.

[6]  B. Evans Minimizing liability risks under the ACMG recommendations for reporting incidental findings in clinical exome and genome sequencing , 2013, Genetics in Medicine.

[7]  Megan Allyse,et al.  Not-so-incidental findings: the ACMG recommendations on the reporting of incidental findings in clinical whole genome and whole exome sequencing. , 2013, Trends in biotechnology.

[8]  W. Chung,et al.  Researchers’ views on return of incidental genomic research results: qualitative and quantitative findings , 2013, Genetics in Medicine.

[9]  B. Knoppers,et al.  Recommendations for returning genomic incidental findings? We need to talk! , 2013, Genetics in Medicine.

[10]  Marc S. Williams,et al.  ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing , 2013, Genetics in Medicine.

[11]  Susan M Wolf,et al.  Patient Autonomy and Incidental Findings in Clinical Genomics , 2013, Science.

[12]  Robert C. Green,et al.  Ethics and Genomic Incidental Findings , 2013, Science.

[13]  L. Biesecker Incidental variants are critical for genomics. , 2013, American journal of human genetics.

[14]  B. Berkman,et al.  Do Researchers Have an Obligation to Actively Look for Genetic Incidental Findings? , 2013, The American journal of bioethics : AJOB.

[15]  H. Skirton,et al.  Incidental findings in genetic research and clinical diagnostic tests: A systematic review , 2012, American journal of medical genetics. Part A.

[16]  K. Steinsbekk,et al.  Should genetic findings from genome research be reported back to the participants? , 2012, Tidsskrift for den Norske laegeforening : tidsskrift for praktisk medicin, ny raekke.

[17]  Leslie G Biesecker,et al.  Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study , 2012, European Journal of Human Genetics.

[18]  Kris Dierickx,et al.  To tell or not to tell? A systematic review of ethical reflections on incidental findings arising in genetics contexts , 2012, European Journal of Human Genetics.

[19]  Leslie G. Biesecker,et al.  Opportunities and challenges for the integration of massively parallel genomic sequencing into clinical practice: lessons from the ClinSeq project , 2012, Genetics in Medicine.

[20]  W. Burke,et al.  Researcher Perspectives on Disclosure of Incidental Findings in Genetic Research , 2010, Journal of empirical research on human research ethics : JERHRE.

[21]  Euan A Ashley,et al.  Challenges in the clinical application of whole-genome sequencing , 2010, The Lancet.

[22]  Frances P Lawrenz,et al.  Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations , 2008, The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics.