Planning a health education programme for the elderly visually impaired person--a focus group study.

Focus group methodology was used with the aim of learning how persons with the diagnosis of age-related macular degeneration perceived and described their disease, and how the disease had changed their activities of daily living (ADL). This information is seen as critical in designing a health education programme. The focus group participants described problems in performing ADL. Factors contributing to the ADL problems were categorized as functional limitations in, and feelings about performing, ADL. The participants used a number of ADL strategies to adapt to new situations. The participants expressed uncertainty regarding whether senile macular degeneration, age-related macular degeneration and 'yellow spot' were the same disease. They expressed a desire to know more about the disease and its consequences. They particularly requested time for receiving information, and the opportunity to discuss it, as in the focus groups. This target group need a health education programme based on their own perceptions. The main issues in such a programme should be to convey information, teach ADL strategies, provide support and foster problem-solving.

[1]  Bobby J. Calder,et al.  Focus groups and the nature of qualitative marketing research. , 1977 .

[2]  I. Rosenstock,et al.  The Role of Self-Efficacy in Achieving Health Behavior Change , 1986, Health education quarterly.

[3]  A. Ramirez,et al.  The use of focus groups in health research. , 1988, Scandinavian journal of primary health care. Supplement.

[4]  G. Peyman,et al.  Age‐related macular degeneration and its management , 1988, Journal of cataract and refractive surgery.

[5]  Richard A. Krueger,et al.  Quality Control in Focus Group Research , 1993 .

[6]  A. Bandura.  Self-efficacy: toward a unifying theory of behavioral change. , 1977, Psychological review.

[7]  C. Basch.  Focus Group Interview: An Underutilized Research Technique for Improving Theory and Practice in Health Education , 1987, Health education quarterly.

[8]  K. A. Nelson.  Visual impairment among elderly Americans: Statistics in transition , 1987 .

[9]  A. Svanborg,et al.  Seventy-year-old people in Gothenburg. A population study in an industrialized Swedish city. , 2009, Acta medica Scandinavica.

[10]  B. Steen,et al.  The gerontological and geriatric population studies in Gothenburg, Sweden. , 1993, Zeitschrift fur Gerontologie.

[11]  W. Strawbridge,et al.  Gender differences in factors associated with change in physical functioning in old age: a 6-year longitudinal study. , 1993, The Gerontologist.

[12]  A M Jette,et al.  The disablement process. , 1994, Social science & medicine.

[13]  Richard A. Krueger,et al.  When to Use Focus Groups and Why , 1993 .

[14]  Richard A. Krueger,et al.  Focus groups : a practical guide for applied research / by Richard A. Krueger , 1989 .

[15]  W. Strawbridge,et al.  Factors Associated with Change in Physical Functioning in the Elderly , 1993 .

[16]  P. Thompson,et al.  Psychological Strategies for Assisting Older Adults who are Partially Sighted , 1992 .

[17]  C. Dahlöf.  Quality of life/subjective symptoms during beta-blocker treatment. , 1990, Scandinavian journal of primary health care. Supplement.

[18]  I. Rosenstock,et al.  The health belief model: Explaining health behavior through expectancies. , 1990 .

[19]  J. Kitzinger.  The methodology of focus groups: the importance of interaction between research participants , 1994 .

[20]  E. Crimmins,et al.  Getting Better and Getting Worse , 1993 .

[21]  E. Folch-Lyon,et al.  Conducting focus group sessions. , 1981, Studies in family planning.

[22]  J. Sjöstrand,et al.  Vision and visual disability in the daily life of a representative population sample aged 82 years , 1992, Acta ophthalmologica.

[23]  T. Dawber,et al.  The Framingham Eye Study monograph: An ophthalmological and epidemiological study of cataract, glaucoma, diabetic retinopathy, macular degeneration, and visual acuity in a general population of 2631 adults, 1973-1975. , 1980, Survey of ophthalmology.

[24]  C. Jagger,et al.  Factors associated with decline in function, institutionalization and mortality of elderly people. , 1993, Age and ageing.

[25]  J. Kitzinger,et al.  Qualitative Research: Introducing focus groups , 1995 .

[26]  M. Bury.  The sociology of chronic illness: a review of research and prospects , 1991 .

[27]  M. Becker,et al.  The Health Belief Model: A Decade Later , 1984, Health education quarterly.