INCLUSIVE RESEARCH DESIGN

This paper explores inclusive research design (IRD) as an integral component in what we term community partnership research in the information management and systems field. It aims to unravel the challenges and complexities of the double hermeneutic spiral associated with designing and doing this type of research in order to identify principles and processes appropriate to the engagement of all partners – in the community that provides the setting for the research and in the academy – in the iterative, ongoing design of the research. The research reported in the paper was undertaken within an interpretivist framework, using literary warrant analysis, autoethnography and a second generation grounded theory approach to data analysis. It involved in-depth analysis of our experiences over the last 10 years in community partnership research relating to smart health information portals, including reflection on our particular roles and interests in the research, as well as our changing needs, values and expectations. The paper concludes by presenting an IRD framework for community partnership research in information management and systems.

[1]  A. Sparkes,et al.  Autoethnography and Narratives of Self: Reflections on Criteria in Action , 2000 .

[2]  Edwin H. Blake,et al.  Being participated: a community approach , 2010, PDC '10.

[3]  J. Fook.  Reflexivity as Method , 1999 .

[4]  A. Strauss,et al.  The discovery of grounded theory: strategies for qualitative research aldine de gruyter , 1968 .

[5]  Jue Xie,et al.  Sustaining Quality Assessment Processes in User-Centred Health Information Portals , 2009, AMCIS.

[6]  B. Israel,et al.  Review of community-based research: assessing partnership approaches to improve public health. , 1998, Annual review of public health.

[7]  Shawna L. Mercer,et al.  Can public health researchers and agencies reconcile the push from funding bodies and the pull from communities? , 2001, American journal of public health.

[8]  Julie Fisher,et al.  A Role for Information Portals as Intelligent Decision Support Systems: Breast Cancer Knowledge Online Experience , 2006 .

[9]  Anselm L. Strauss,et al.  Basics of qualitative research : techniques and procedures for developing grounded theory , 1998 .

[10]  Roland Bleiker,et al.  Autoethnographic International Relations: exploring the self as a source of knowledge , 2010, Review of International Studies.

[11]  Kathy Charmaz,et al.  The Myth of Silent Authorship: Self, Substance, and Style in Ethnographic Writing , 1996 .

[12]  Joanne Evans,et al.  The Role of Domain Expertise in Smart, User-Sensitive, Health Information Portals , 2009 .

[13]  Julie Fisher,et al.  User Centred Quality Health Information Provision: Benefits and Challenges , 2005, Proceedings of the 38th Annual Hawaii International Conference on System Sciences.

[14]  Alan Borning,et al.  Value Sensitive Design and Information Systems , 2020, The Ethics of Information Technologies.

[15]  Randy Stoecker,et al.  Research Methods for Community Change , 2005 .

[16]  Joanne Evans,et al.  Utilizing Systems Development Methods in Archival Systems Research: Building a Metadata Schema Registry , 2004 .

[17]  K. Charmaz,et al.  Constructing Grounded Theory: A practical guide through qualitative analysis Kathy Charmaz Constructing Grounded Theory: A practical guide through qualitative analysis Sage 224 £19.99 0761973532 0761973532 [Formula: see text]. , 2006, Nurse researcher.

[18]  Sue McKemmish,et al.  Consumer empowerment through metadata-based information quality reporting: The Breast Cancer Knowledge Online Portal , 2008 .

[19]  Lisa M. Tillmann-healy,et al.  Friendship as Method , 2003 .

[20]  Jianhua Li,et al.  Digital Partnerships for Health: Steps to develop a community-specific health portal aimed at promoting health and well-being , 2007, AMIA.

[21]  Henry Linger.  Supporting Collaborative Knowledge Work: A Methodology for Developing ICT Tools for Biomedical Research , 2005, WIRN/NAIS.

[22]  Jeannette Allis Bastian,et al.  Owning Memory , 2003 .

[23]  Frada Burstein,et al.  Identifying the health and mental health information needs of people with coronary heart disease, with and without depression , 2008, The Medical journal of Australia.

[24]  H. Bradbury,et al.  Handbook of action research , 2006 .

[25]  Wendy Duff.  Harnessing the power of warrant , 2009 .

[26]  A. Strauss.  Basics Of Qualitative Research , 1992 .

[27]  Jonathan Earthy,et al.  The improvement of human-centred processes-facing the challenge and reaping the benefit of ISO 13407 , 2001, Int. J. Hum. Comput. Stud..

[28]  M. Plumb,et al.  Funding community-based participatory research: lessons learned , 2004, Journal of interprofessional care.

[29]  Jeroen van den Hoven,et al.  ICT and Value Sensitive Design , 2006, The Information Society.

[30]  R. Stoecker.  Are we talking the walk of community-based research? , 2009 .

[31]  Randy Stoecker,et al.  Research Methods for Community Change: A Project-Based Approach , 2005 .

[32]  H. Bradbury,et al.  Handbook of action research : participative inquiry and practice , 2001 .

[33]  Andrea Cornwall,et al.  What is participatory research? , 1995, Social science & medicine.

[34]  Brooke A. Ackerly,et al.  Feminist Methodologies for International Relations , 2006 .

[35]  Don Schauder.  POSTSCRIPT: Seven questions for information management and systems researchers , 2002 .

[36]  Frada Burstein,et al.  Using Machine Learning to Support Resource Quality Assessment: An Adaptive Attribute-Based Approach for Health Information Portals , 2011, DASFAA Workshops.

[37]  Juhani Iivari,et al.  Action research and design science research - Seemingly similar but decisively dissimilar , 2009, ECIS.

[38]  Jay F. Nunamaker,et al.  Systems Development in Information Systems Research , 1990, J. Manag. Inf. Syst..

[39]  Judy McKay,et al.  The dual imperatives of action research , 2001, Inf. Technol. People.

[40]  Valsa Koshy.  Action Research for Improving Practice: A Practical Guide , 2005 .

[41]  James R. Rudd,et al.  User-Centered Design at IBM Consulting , 2002, Int. J. Hum. Comput. Interact..

[42]  S. Wall,et al.  An Autoethnography on Learning About Autoethnography , 2006 .

[43]  Trevor Wood-Harper,et al.  A critical perspective on action research as a method for information systems research , 1996, J. Inf. Technol..

[44]  A. Macaulay,et al.  Participatory research maximises community and lay involvement , 1999 .

[45]  Alan Borning,et al.  Next steps for value sensitive design , 2012, CHI.

[46]  Nancy M. Lorenzi,et al.  Synthesizing Community Wisdom: A Model for Sharing Cancer-Related Resources through Social Networking and Collaborative Partnerships , 2008, AMIA.

[47]  A. Giddens.  The Constitution of Society , 1985 .

[48]  Fabiola Bertolotti,et al.  The use of ethnography and grounded theory in the development of a management information system , 2013, Eur. J. Inf. Syst..

[49]  Mark Bilandzic,et al.  Towards Participatory Action Design Research: Adapting Action Research and Design Science Research Methods for Urban Informatics , 2011, J. Community Informatics.

[50]  Frada Burstein,et al.  Chapter 8 – System development in information systems research , 2002 .

[51]  Mary Beth Rosson,et al.  Participatory design in community computing contexts: tales from the field , 2004, PDC 04.

[52]  Batya Friedman,et al.  Value-sensitive design , 1996, INTR.

[53]  Kathy Charmaz,et al.  Premises, Principles, and Practices in Qualitative Research: Revisiting the Foundations , 2004, Qualitative health research.

[54]  Hagey Rs.  The use and abuse of participatory action research. , 1997 .

[55]  Anne J. Gilliland,et al.  Building an Infrastructure for Archival Research , 2004 .

[56]  M. Pimbert,et al.  The SAGE Handbook of Action Research , 2008 .

[57]  F. Burstein,et al.  Chapter 2 – The two major traditions of research , 2002 .

[58]  Judy McKay,et al.  Driven by two masters, serving both: the interplay of problem solving and research in information systems action research projects , 2007 .