Development and Evaluation of a Decision Aid About Prenatal Testing for Women of Advanced Maternal Age

Objective:To develop and evaluate a decision aid designed to prepare patients of advanced maternal age for counseling about prenatal diagnostic testing.Setting:A regional genetics center.Design:A before/after study.Interventions:Participants used an audioguided workbook to learn about options and outcomes and to clarify personal risks, values, questions, and predispositions.Subjects:21 women of advanced maternal age and 17 spouses.Main outcome measures:Knowledge of prenatal testing alternatives, decisional conflict, level of anxiety, and acceptability of the decision aid.Results:After using the decision aid, participants had significantly reduced decisional conflict (uncertainty) and a significant increase in knowledge. There was no effect on state or trait anxiety. More than three-quarters of participants were satisfied with the length, clarity, balance, and acceptability of the decision aid.Conclusions:The decision aid shows promise as a useful aid for preparing couples for counseling.

[1]  C. Spielberger,et al.  Manual for the State-Trait Anxiety Inventory , 1970 .

[2]  R. Glazier,et al.  Psychological outcomes following maternal serum screening: a cohort study. , 1998, CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne.

[3]  A. O'Connor Validation of a Decisional Conflict Scale , 1995, Medical decision making : an international journal of the Society for Medical Decision Making.

[4]  A. Clarke,et al.  Outcomes and process in genetic counselling , 1996, Clinical genetics.

[5]  A. Tversky,et al.  The framing of decisions and the psychology of choice. , 1981, Science.

[6]  E. Hook,et al.  Chromosomal abnormality rates at amniocentesis and in live-born infants. , 1983, JAMA.

[7]  R. Spasoff Healing Medicare: Managing Health System Change the Canadian Way , 1995 .

[8]  P Tugwell,et al.  A decision aid for women considering hormone therapy after menopause: decision support framework and evaluation. , 1998, Patient education and counseling.

[9]  M. Barry,et al.  Patient Reactions to a Program Designed to Facilitate Patient Participation in Treatment Decisions for Benign Prostatic Hyperplasia , 1995, Medical care.

[10]  Charles D. Barrett Understanding Attitudes and Predicting Social Behavior , 1980 .

[11]  A. Mulley,et al.  Developing shared decision-making programs to improve the quality of health care. , 1992, QRB. Quality review bulletin.

[12]  H. Raiffa,et al.  Decisions with Multiple Objectives , 1993 .

[13]  B. M. Burke,et al.  Directiveness in prenatal genetic counseling. , 1995, Women & health.

[14]  A. O'Connor,et al.  Validation of client decision-making instruments in the context of psychiatry. , 1996, The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmieres.

[15]  Peter Tugwell,et al.  Randomized Trial of a Portable, Self-administered Decision Aid for Postmenopausal Women Considering Long-term Preventive Hormone Therapy , 1998, Medical decision making : an international journal of the Society for Medical Decision Making.

[16]  I. Janis,et al.  Decision Making--A Psychological Analysis of Conflict, Choice, and Commitment. , 1978 .

[17]  A. Hunter,et al.  Midtrimester genetic amniocentesis in eastern Ontario: a review from 1970 to 1985. , 1987, Journal of medical genetics.

[18]  S G Pauker,et al.  The amniocentesis decision: ten years of decision analytic experience. , 1987, Birth defects original article series.

[19]  Pitz Gf Hypertension posttransfusion in Thai thalassemic children: early detection and management. , 1987 .

[20]  A. Laupacis Preventive therapies: weighing the pros and cons. , 1996, CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne.

[21]  T. Marteau,et al.  THE TROUBLED HELIX: SOCIAL AND PSYCHOLOGICAL IMPLICATIONS OF THE NEW HUMAN GENETICS , 1996 .

[22]  A. Gafni,et al.  A Bedside Decision Instrument To Elicit a Patient's Preference Concerning Adjuvant Chemotherapy for Breast Cancer , 1992, Annals of Internal Medicine.

[23]  R. Glazier,et al.  EVALUATING PATIENT'S KNOWLEDGE OF MATERNAL SERUM SCREENING , 1996, Prenatal diagnosis.

[24]  R. L. Keeney,et al.  Decisions with Multiple Objectives: Preferences and Value Trade-Offs , 1977, IEEE Transactions on Systems, Man, and Cybernetics.

[25]  I. Ajzen,et al.  Understanding Attitudes and Predicting Social Behavior , 1980 .

[26]  I. Janis,et al.  Decision Making: A Psychological Analysis of Conflict, Choice, and Commitment , 1977 .

[27]  M. Holmes-Rovner,et al.  An educational intervention as decision support for menopausal women. , 1997, Research in nursing & health.

[28]  N. Feather Expectations and Actions , 2021 .

[29]  J G Thornton,et al.  A randomised trial of three methods of giving information about prenatal testing , 1995, BMJ.

[30]  C. Spielberger,et al.  Manual for the state-trait anxiety inventory (form Y) : "self-evaluation questionnaire" , 1983 .

[31]  Susan Michie,et al.  Genetic counselling: some issues of theory and practice , 1996 .