Identification of family variables in parents' groups of children with epilepsy.

OBJECTIVE To verify the effectiveness of the support group in the identification of family variables linked to epilepsy. METHOD Pre-test were applied to parents of 21 children with benign epilepsy of childhood recently diagnosed, from 5 to 15 years, who participated in the groups at HC/Unicamp. There was a presentation of an educational video, discussion and application of the post-test 1. After six months, the post-test 2 was applied. RESULTS The beliefs were: fear of swallowing the tongue during the seizures (76.19%) and of a future mental disease (66.67%). Facing the epilepsy, fear and sadness appeared. 76.19% of the parents presented overprotection and 90.48%, expected a new seizure. In the post-test 1, the parents affirmed that the information offered had modified the beliefs. In the post-test 2, 80.95% didn't report great doubts about epilepsy and 90.48% considered their relationship with their children better. CONCLUSIONS The demystification of beliefs supplied from the groups influenced the family positively, prevented behavior alterations and guaranteed effective care in the attendance to the child with epilepsy.

[1]  P. Fernandes,et al.  Inventário simplificado de qualidade de vida na epilepsia infantil: primeiros resultados , 1999 .

[2]  M. Amir,et al.  Self‐Efficacy and Social Support as Mediators in the Relation Between Disease Severity and Quality of Life in Patients with Epilepsy , 1999, Epilepsia.

[3]  H. Stroink,et al.  Disability due to restrictions in childhood epilepsy , 1997, Developmental medicine and child neurology.

[4]  T. Hanai.  Quality of Life in Children with Epilepsy , 1996, Epilepsia.

[5]  L. Scheier,et al.  Psychosocial, behavioral, and medical outcomes in children with epilepsy: a developmental risk factor model using longitudinal data. , 1994, Pediatrics.

[6]  M. Trimble,et al.  Epilepsy and Quality of Life , 1994 .

[7]  J. Austin,et al.  Childhood Epilepsy and Asthma: Comparison of Quality of Life , 1994, Epilepsia.

[8]  D. Upton,et al.  Quality of Life in Family Members of Persons with Epilepsy. , 1994 .

[9]  O. Devinsky,et al.  Quality of Life in Epilepsy: The Clinician's View , 1993, Epilepsia.

[10]  R. Pianta,et al.  Role of Child‐Mother Interaction in Predicting Competence of Children with Epilepsy , 1993, Epilepsia.

[11]  A. Jacoby.  Epilepsy and the quality of everyday life. Findings from a study of people with well-controlled epilepsy. , 1992, Social science & medicine.

[12]  M. A. Lewis,et al.  Impact of the Children's Epilepsy Program on Parents , 1991, Epilepsia.

[13]  P. Hoare,et al.  Psychosocial adjustment of children with chronic epilepsy and their families. , 1991, Developmental medicine and child neurology.

[14]  J. Collings.  Psychosocial Weil‐Being and Epilepsy: An Empirical Study , 1990, Epilepsia.