Illness and narrative

Abstract The article gives a review of the last ten years' of research on illness narratives, and organises this research around certain central themes. Four aspects of illness narratives are discussed: 1. a proposed typology giving three different kinds of illness narratives - illness as narrative, narrative about illness, and narrative as illness; 2. considerations of what can be accomplished with the help of illness narratives; 3. problems connected with how illness narratives are organised; and 4. the social context of telling and its influence on the narrative. It is argued that as social scientists we can use illness narratives as a means of studying not only the world of biomedical reality, but also the illness experience and its social and cultural underpinnings.

[1]  M. Bury Chronic illness as biographical disruption. , 1982, Sociology of health & illness.

[2]  Jean-François Lyotard,et al.  The Postmodern Condition , 1979 .

[3]  P. Brown Psychiatric intake as a mystery story , 1993, Culture, medicine and psychiatry.

[4]  L. Hunt Practicing oncology in provincial Mexico: a narrative analysis. , 1994, Social science & medicine.

[5]  M. Bury The sociology of chronic illness: a review of research and prospects , 1991 .

[6]  M. Bakhtin,et al.  Speech genres and other late essays , 1986 .

[7]  R. Charon Medical Interpretation: Implications of Literary Theory of Narrative for Clinical Work , 1993 .

[8]  D. Lannin,et al.  Coming to terms with advanced breast cancer: black women's narratives from eastern North Carolina. , 1994, Social science & medicine.

[9]  Murray L. Wax,et al.  After Virtue: A Study in Moral Theory. , 1981 .

[10]  A. Hawkins A Change of Heart: The Paradigm of Regeneration in Medical and Religious Narrative , 2015 .

[11]  W. Borden Life review as a therapeutic frame in the treatment of young adults with AIDS. , 1989, Health & social work.

[12]  H. Bursztajn,et al.  Trauma and Recovery: The Aftermath of Violence from Domestic Abuse to Political Terror , 1994 .

[13]  H. Stam,et al.  Renegotiating identity: cancer narratives. , 1995 .

[14]  P. R. Slavney,et al.  Life Stories and Meaningful Connections: Reflections on a Clinical Method in Psychiatry and Medicine , 2015 .

[15]  P A Marshall,et al.  Medical students' first-person narratives of a patients story of AIDS. , 1995, Social science & medicine.

[16]  Kathy Charmaz,et al.  Good days, bad days : the self in chronic illness and time , 1993 .

[17]  C. Mattingly,et al.  The narrative nature of clinical reasoning. , 1991, The American journal of occupational therapy : official publication of the American Occupational Therapy Association.

[18]  O. Sacks,et al.  The Man Who Mistook His Wife for a Hat and Other Clinical Tales , 1985 .

[19]  J. Shay Achilles in Vietnam: Combat Trauma and the Undoing of Character , 1994 .

[20]  I. K. Zola Missing Pieces: A Chronicle of Living With a Disability , 1982 .

[21]  E. Mishler Research Interviewing: Context and Narrative , 1986 .

[22]  L. Hydén Lars-Christer Hyden , 1995 .

[23]  D. Armstrong The patient's view. , 1984, Social science & medicine.

[24]  J. Bruner Actual minds, possible worlds , 1985 .

[25]  Paul Ricoeur,et al.  Narrative Time , 1980, Critical Inquiry.

[26]  R. Schafer The Analytic Attitude , 2019 .

[27]  E. Larson,et al.  Talking to patients , 1992, Journal of general internal medicine.

[28]  Arthur W. Frank,et al.  The Wounded Storyteller: Body, Illness, and Ethics , 1995 .

[29]  K. Hunter "There Was This One Guy . . .": The Uses of Anecdotes in Medicine , 2015, Perspectives in biology and medicine.

[30]  Margaret R. Somers The narrative constitution of identity: A relational and network approach , 1994 .

[31]  I. Robinson,et al.  Personal narratives, social careers and medical courses: analysing life trajectories in autobiographies of people with multiple sclerosis. , 1990, Social science & medicine.

[32]  G. Baruch Moral tales: parents’stories of encounters with the health professions , 1981 .

[33]  S. Poirier,et al.  Moral reasoning and Alzheimer's care: Exploring complex weavings through narrative , 1993 .

[34]  L. Viney,et al.  Narrative analysis: a method of psychosocial research for AIDS-affected people. , 1991, Social science & medicine.

[35]  S. Toombs Illness and the paradigm of lived body , 1988, Theoretical medicine.

[36]  A. Radley Worlds of Illness: Biographical and Cultural Perspectives on Health and Disease , 1993 .

[37]  A. Frank The Pedagogy of Suffering , 1992 .

[38]  Robert Barrett,et al.  Clinical writing and the documentary construction of schizophrenia , 1988, Culture, medicine and psychiatry.

[39]  Lars-Christer Hydén The Institutional Narrative as Drama , 1997 .

[40]  C. Riessman,et al.  Strategic uses of narrative in the presentation of self and illness: a research note. , 1990, Social science & medicine.

[41]  J. Pierret,et al.  From biographical disruption to biographical reinforcement: the case of HIV‐positive men , 1995 .

[42]  C. Mattingly,et al.  Oncology and narrative time. , 1994, Social science & medicine.

[43]  D. Kleiber,et al.  Narrative in Medicine: The Stories of Elite College Athletes' Career-Ending Injuries , 1994 .

[44]  R. Dingwall "Atrocity Stories" and Professional Relationships , 1977 .

[45]  C. Mattingly,et al.  The concept of therapeutic 'emplotment'. , 1994, Social science & medicine.

[46]  S L Daniel,et al.  The patient as text: A model of clinical hermeneutics , 1986, Theoretical medicine.

[47]  R. Schafer Retelling A Life: Narration and Dialogue in Psychoanalysis , 1992 .

[48]  R. Charon To Render the Lives of Patients , 2010, Literature and medicine.

[49]  K. Charmaz,et al.  Loss of self: a fundamental form of suffering in the chronically ill. , 1983, Sociology of health & illness.

[50]  Doctors' stories: the narrative structure of medical knowledge , 1993, Medical History.

[51]  E. Early The logic of well being. Therapeutic narratives in Cairo, Egypt. , 1982, Social science & medicine.

[52]  B. Good Medicine, rationality, and experience : an anthropological perspective , 1993 .

[53]  L. Garro,et al.  Narrative representations of chronic illness experience: cultural models of illness, mind, and body in stories concerning the temporomandibular joint (TMJ). , 1994, Social science & medicine.

[54]  Howard Brody,et al.  Stories of Sickness , 1987 .

[55]  B. Good,et al.  Telling the diagnosis of cancer. , 1989, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[56]  Edward F. Palm,et al.  Achilles in Vietnam: Combat Trauma and the Undoing of Character , 1995 .

[57]  John Berger A fortunate man , 1982 .

[58]  E. Mishler,et al.  Attending to patients' stories: reframing the clinical task , 1992 .

[59]  A. Frank The Rhetoric of Self-Change: Illness Experience as Narrative , 1993 .

[60]  A. Ingram The Madhouse of Language: Writing and Reading Madness in the Eighteenth Century , 1991 .

[61]  R. Bauman,et al.  Explorations in the Ethnography of Speaking , 1975 .

[62]  Kieran J Flanagan,et al.  Illness and Self in Society , 1990 .

[63]  C. Riessman Life events, meaning and narrative: the case of infidelity and divorce. , 1989, Social science & medicine.

[64]  E. Mishler,et al.  Models of narrative analysis: A typology. , 1995 .

[65]  L. Hydén The rhetoric of recovery and change , 1995, Culture, medicine and psychiatry.

[66]  B. Good,et al.  In the subjunctive mode: epilepsy narratives in Turkey. , 1994, Social science & medicine.

[67]  B. Good,et al.  Medicine, rationality, and experience , 1993 .

[68]  Elinor Ochs,et al.  Out of place: Narrative insights into agoraphobia , 1995 .

[69]  Medicine as interpretation: the uses of literary metaphors and methods. , 1987, The Journal of medicine and philosophy.

[70]  Mary-Jo DelVecchio Good,et al.  Pain As Human Experience: An Anthropological Perspective , 1992 .

[71]  Michael Agar,et al.  stories, background knowledge and themes: problems in the analysis of life history narrative , 1980 .

[72]  E. Mishler,et al.  Discourse Of Medicine Dialectics Of Medical Interviews , 2017 .

[73]  J. Bruner Acts of meaning , 1990 .

[74]  U. Gerhardt Research note: the roles of the wife and marital reality construction in the narrative interview: conceptual models in qualitative data interpretation , 1991 .

[75]  Richard A. Hubert The Acultural Dimensions of Chronic Pain: Flawed Reality Construction and the Problem of Meaning , 1984 .

[76]  J. Wiltshire Beyond the Ouija Board: Dialogue and Heteroglossia in the Medical Narrative , 2010 .

[77]  G. Williams,et al.  The genesis of chronic illness: narrative re-construction. , 1984, Sociology of health & illness.

[78]  R. Ochberg Life Stories and the Psychosocial Construction of Careers , 1988 .

[79]  Narrative unity and clinical judgment , 1986, Theoretical medicine.

[80]  A. Frank Reclaiming an Orphan Genre: The First-Person Narrative of Illness , 1994, Literature and medicine.

[81]  E. Mishler,et al.  Theories and Research in the Practice Domain of Nursing : Conceptualization of Practice, Action, and Nursing Practice: General Tools of Nursing Practice ; Clinical Reviews : The Language of Attentive Patient Care: A Comparison of Two Medical Interviews , 1998 .

[82]  P. Ricoeur,et al.  Time and Narrative , 1989 .

[83]  Charles Taylor Sources of the Self: The Making of the Modern Identity , 1990 .