Satisfaction with telehealth for cancer support groups in rural American Indian and Alaska Native communities.

A descriptive study was conducted to determine the information needs of American Indian (AI) and Alaska Native (AN) cancer survivors and assess satisfaction with and acceptability of telehealth support group services for cancer survivors in AI and AN rural communities. AI and AN cancer survivors were asked to complete the Telehealth Satisfaction Survey and two open-ended questions, one regarding information needs and one seeking comments and suggestions about cancer support group meetings. Thirty-two surveys were returned. Information about nutrition during treatment and treatment-related side effects were the most sought after topics. Participants valued the opportunity to interact with other AI and AN cancer survivors who also lived in remote locations and the usefulness of the information presented. The link with geographically distant survivors was valuable to participants as they felt they were no longer alone in their cancer experiences. Determining survivors' information needs provides meaningful topics for future support group education. Telehealth is a viable way to facilitate cancer support groups to AI and AN cancer survivors in rural communities.

[1]  G. Demiris,et al.  Ethical considerations regarding the use of technology for older adults. The case of telehealth. , 2009, Research in gerontological nursing.

[2]  M. Mahoney,et al.  American Indian cancer survivors: exploring social network topology and perceived social supports. , 2005, Journal of cancer education : the official journal of the American Association for Cancer Education.

[3]  P. Wingo,et al.  An Update on Cancer in American Indians and Alaska Natives , 1999-2004 Supplement to Cancer Breast Cancer Incidence Among American Indian and Alaska Native Women : US , 1999 – 2004 , 2017 .

[4]  C. B. Taylor,et al.  Evaluation of an internet support group for women with primary breast cancer , 2003, Cancer.

[5]  Patricia A. Ganz,et al.  From cancer patient to cancer survivor : lost in transition , 2006 .

[6]  David K. Espey,et al.  Gastric cancer among American Indians and Alaska Natives in the United States, 1999–2004 , 2008, Cancer.

[7]  L. Burhansstipanov.  Community-driven Native American cancer survivors' quality of life research priorities. , 2005, Journal of cancer education : the official journal of the American Association for Cancer Education.

[8]  L. Carlson,et al.  Feasibility study of a telehealth delivered, psychoeducational support group for allogeneic hematopoietic stem cell transplant patients , 2010, Psycho-oncology.

[9]  Donald Warne.  Research and Educational Approaches to Reducing Health Disparities Among American Indians and Alaska Natives , 2006, Journal of transcultural nursing : official journal of the Transcultural Nursing Society.

[10]  A. Jemal,et al.  Annual report to the nation on the status of cancer, 1975‐2006, featuring colorectal cancer trends and impact of interventions (risk factors, screening, and treatment) to reduce future rates , 2010, Cancer.

[11]  M. O'Brien,et al.  Supportive-expressive group therapy for women with metastatic breast cancer: Improving access for Australian women through use of teleconference , 2008 .

[12]  L. Krebs,et al.  Understanding cancer-understanding the stories of life and living. , 2005, Journal of cancer education : the official journal of the American Association for Cancer Education.

[13]  Adrienne Y. Stith,et al.  Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care , 2005 .

[14]  C. Koopman,et al.  Videoconferencing for delivery of breast cancer support groups to women living in rural communities: a pilot study , 2007, Psycho-oncology.

[15]  A. Sherman,et al.  Determinants of participation in cancer support groups: The role of health beliefs , 2008, International journal of behavioral medicine.

[16]  L. Burhansstipanov,et al.  Native American cultural aspects of oncology nursing care. , 2001, Seminars in oncology nursing.

[17]  D. Bowen,et al.  Evaluation of Cancer 101: An Educational Program for Native Settings , 2010, Journal of Cancer Education.

[18]  L. Burhansstipanov,et al.  From survivorship to thrivership: native peoples weaving a healthy life from cancer. , 2005, Journal of cancer education : the official journal of the American Association for Cancer Education.

[19]  C. Classen,et al.  Psychosocial intervention for lesbians with primary breast cancer , 2002, Psycho-oncology.

[20]  P. Butow,et al.  What do cancer support groups provide which other supportive relationships do not? The experience of peer support groups for people with cancer. , 2006, Social science & medicine.

[21]  K. Knafl,et al.  Within-Case and Across-Case Approaches to Qualitative Data Analysis , 2003, Qualitative health research.

[22]  Margarete Sandelowski,et al.  Classifying the Findings in Qualitative Studies , 2003, Qualitative health research.

[23]  A. Lanier,et al.  Cancer in Alaska Natives 1969-2003: 35-Year Report , 2006 .

[24]  A. Jemal,et al.  Cancer Statistics, 2010 , 2010, CA: a cancer journal for clinicians.

[25]  M. Boyle,et al.  The health of Canada’s Aboriginal children: results from the First Nations and Inuit Regional Health Survey , 2010, International journal of circumpolar health.

[26]  Michael Hardey,et al.  Nursing Research , 1994, Springer US.

[27]  P. Hardy,et al.  The effectiveness of a psycho‐educational group after early‐stage breast cancer treatment: results of a randomized French study , 2009, Psycho-oncology.

[28]  H. Kraemer,et al.  Supportive-expressive group therapy and distress in patients with metastatic breast cancer: a randomized clinical intervention trial. , 2001, Archives of general psychiatry.

[29]  B. Gottlieb,et al.  Cancer support groups: a critical review of empirical studies , 2007, Psycho-oncology.

[30]  B. Andersen.  Biobehavioral outcomes following psychological interventions for cancer patients. , 2002, Journal of consulting and clinical psychology.

[31]  B. Smedley,et al.  Unequal Treatment: Con-fronting Racial and Ethnic Disparities in Health Care , 2002 .

[32]  R. Kåresen,et al.  Psychosocial intervention as a component of routine breast cancer care—who participates and does it help? , 2008, Psycho-oncology.

[33]  David K. Espey,et al.  Cancer among American Indians and Alaska Natives in the United States, 1999–2004 , 2008, Cancer.