The Opinion of Professional Caregivers About The Platform UnderstAID for Patients with Dementia

Background The person with dementia should be treated as an unique person regarding symptoms directly associated with dementia, such as problems with memory, hallucinations, and delusions, as well as other physical, mental, or neurological deficits. The symptoms not directly typical of dementia, such as musculoskeletal disorders or depression, should be also be considered in order to improve the quality of life of a person with dementia. That is why professional caregivers have to broaden their current knowledge not only of medical symptoms but also of the patient’s psychosocial condition and increase their inquisitiveness about the individual condition of the patient. The aim of the study was to get to know the opinion of professional caregivers about the UnderstAID platform and its usefulness for informal caregivers. Material/Methods Participants in the study group consisted of professional caregivers: nurses, sociologists, psychologists, physiotherapists, and occupational therapists, all of whom specialized in geriatrics and had experience in working with people with dementia. All professional caregivers answered 24 questions that refer to positive and negative aspects of the UnderstAID platform. Results The study group of professional caregivers highly appreciated that the application could give support to caregivers (mean score of 4.78; 5 points means that they totally agreed, and 1 point means that they totally disagreed) and that a wide range of multimedia materials helped the informal caregivers to gain a better understanding of the contents (mean score of 4.78). There was a statistically significant correlation between the age of the professional caregivers and the frequency of positive opinions that the UnderstAID application gave support to caregivers of relatives with dementia (p=0.028) and the opinion that videos, photos, and pictures may help the informal caregivers to gain a better understanding of the contents (p=0.028). Conclusions A group of professional caregivers positively assessed the UnderstAID platform. Caregivers, especially older caregivers, highly appreciated the usefulness of videos, photos, and pictures for gaining a better understanding of the contents.

[1]  M. Jamieson,et al.  Views from health professionals on accessing rehabilitation for people with dementia following a hip fracture , 2017, Dementia.

[2]  M. Pąchalska,et al.  The Effects of Intellectual, Physical, and Social Activity on Further Prognosis in Mild Cognitive Impairment , 2016, Medical science monitor : international medical journal of experimental and clinical research.

[3]  S. Zwakhalen,et al.  Formal support for informal caregivers to older persons with dementia through the course of the disease: an exploratory, cross-sectional study , 2016, BMC Geriatrics.

[4]  A. Spector,et al.  The biopsychosocial (BPS) model of dementia as a tool for clinical practice. A pilot study , 2016, International Psychogeriatrics.

[5]  N. Greenwood,et al.  General practice based psychosocial interventions for supporting carers of people with dementia or stroke: a systematic review , 2016, BMC Family Practice.

[6]  R. Santos,et al.  Psychosocial impact of early onset dementia among caregivers. , 2015, Trends in psychiatry and psychotherapy.

[7]  C. Nugent,et al.  Web-Based STAR E-Learning Course Increases Empathy and Understanding in Dementia Caregivers: Results from a Randomized Controlled Trial in the Netherlands and the United Kingdom , 2015, Journal of medical Internet research.

[8]  Li-ye Zhou,et al.  Measuring the Caregiver Burden of Caring for Community-Residing People with Alzheimer’s Disease , 2015, PloS one.

[9]  A. Bossen,et al.  Emerging roles for telemedicine and smart technologies in dementia care , 2015, Smart homecare technology and telehealth.

[10]  J. Millán-Calenti,et al.  RECOMMENDATIONS OF THE ALZHEIMER'S DISEASE INTERNATIONAL CONCERNING THE CARE OF PATIENTS WITH DEMENTIAAND THE SITUATION IN POLAND , 2014 .

[11]  Ana Buján,et al.  UNDERSTAID: A PLATFORM THAT HELPS INFORMAL CAREGIVERS TO UNDERSTAND AND AID THEIR DEMENTED RELATIVES , 2014, Alzheimer's & Dementia.

[12]  Martin Orrell,et al.  Using a biopsychosocial model of dementia as a tool to guide clinical practice , 2010, International Psychogeriatrics.

[13]  K. Buckwalter,et al.  Behaviors associated with dementia: whether resisting care or exhibiting apathy, an older adult with dementia is attempting communication. Nurses and other caregivers must learn to 'hear' this language. , 2005, The American journal of nursing.

[14]  Richard Schulz,et al.  Long-term care placement of dementia patients and caregiver health and well-being. , 2004, JAMA.

[15]  J. Millán-Calenti,et al.  Correlation between depression and burden observed in informal caregivers of people suffering from dementia with time spent on caregiving and dementia severity. , 2016, European review for medical and pharmacological sciences.

[16]  Sônia Maria Soares,et al.  [Factors influencing the quality of life of family caregivers of the elderly with dementia]. , 2015, Ciencia & saude coletiva.

[17]  Medical Advisory Secretariat Caregiver- and patient-directed interventions for dementia: an evidence-based analysis. , 2008, Ontario health technology assessment series.