Engaging diverse patients in a diverse world: the development and preliminary evaluation of educational modules to support diversity in patient engagement research

[1]  N. Edelman Trauma and resilience informed research principles and practice: A framework to improve the inclusion and experience of disadvantaged populations in health and social care research , 2022, Journal of health services research & policy.

[2]  S. Ruzycki,et al.  Equity, diversity and inclusion are foundational research skills , 2022, Nature Human Behaviour.

[3]  M. Snow Patient engagement in healthcare planning and evaluation: A call for social justice. , 2022, The International journal of health planning and management.

[4]  A. Gilmore-Bykovskyi,et al.  “There’s not much we can do…” researcher-level barriers to the inclusion of underrepresented participants in translational research , 2021, Journal of Clinical and Translational Science.

[5]  J. Parsons,et al.  Building Equitable Patient Partnerships during the COVID-19 Pandemic: Challenges and Key Considerations for Research and Policy , 2021, Healthcare policy = Politiques de sante.

[6]  P. Giannoudis,et al.  How to improve diversity in patient and public involvement. , 2021, British journal of hospital medicine.

[7]  L. E. Kalynchuk,et al.  Patient oriented research in mental health: matching laboratory to life and beyond in Canada , 2021, Research Involvement and Engagement.

[8]  H. Witteman,et al.  Engaging indigenous patient partners in patient-oriented research: lessons from a one-year initiative , 2020, Research Involvement and Engagement.

[9]  T. Swartz,et al.  The Science and Value of Diversity: Closing the Gaps in Our Understanding of Inclusion and Diversity. , 2019, The Journal of infectious diseases.

[10]  T. Rader,et al.  The prevalence of patient engagement in published trials: a systematic review , 2018, Research Involvement and Engagement.

[11]  Paul A. Cairns,et al.  A practical approach to measuring user engagement with the refined user engagement scale (UES) and new UES short form , 2018, Int. J. Hum. Comput. Stud..

[12]  M. Cooke,et al.  Patient and public involvement in reducing health and care research waste , 2018, Research Involvement and Engagement.

[13]  S. Israilov,et al.  How Co-Creation Helped Address Hierarchy, Overwhelmed Patients, and Conflicts of Interest in Health Care Quality and Safety. , 2017, AMA journal of ethics.

[14]  Holly Etchegary,et al.  Recruiting patients as partners in health research: a qualitative descriptive study , 2017, Research Involvement and Engagement.

[15]  J. Lavoie,et al.  Moving towards a more inclusive patient and public involvement in health research paradigm: the incorporation of a trauma-informed intersectional analysis , 2017, BMC Health Services Research.

[16]  D. G. Altman,et al.  GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research , 2017, Research Involvement and Engagement.

[17]  S. Thangaratinam,et al.  Involving pregnant women, mothers and members of the public to improve the quality of women's health research , 2017, BJOG : an international journal of obstetrics and gynaecology.

[18]  Josephine Ocloo,et al.  From tokenism to empowerment: progressing patient and public involvement in healthcare improvement , 2016, BMJ Quality & Safety.

[19]  Lyn M. Shulha,et al.  Insights on Using Developmental Evaluation for Innovating , 2015 .

[20]  Patricia J. Erwin,et al.  Strategies addressing barriers to clinical trial enrollment of underrepresented populations: a systematic review. , 2014, Contemporary clinical trials.

[21]  S. Staniszewska,et al.  Mapping the impact of patient and public involvement on health and social care research: a systematic review , 2014, Health expectations : an international journal of public participation in health care and health policy.

[22]  L. Leslie,et al.  A Systematic Review of Stakeholder Engagement in Comparative Effectiveness and Patient-Centered Outcomes Research , 2014, Journal of General Internal Medicine.

[23]  J. Sloan,et al.  Patient engagement in research: a systematic review , 2014, BMC Health Services Research.

[24]  Jonathan Boote,et al.  Public involvement at the design stage of primary health research: a narrative review of case examples. , 2010, Health policy.

[25]  P. Nilsen,et al.  Strategies and goals of community-based injury prevention programmes –  a mixed-methods study of 25 Scandinavian WHO Safe Communities , 2006, International journal of injury control and safety promotion.

[26]  R. Thomson,et al.  Tensions in public health policy: patient engagement, evidence-based public health and health inequalities , 2005, Quality and Safety in Health Care.

[27]  S. Kumanyika,et al.  Minority women and advocacy for women's health. , 2001, American journal of public health.

[28]  I. Ajzen Attitudes, Personality and Behavior , 1988 .

[29]  S. Scheff Fundamental Statistical Principles for the Neurobiologist : A Survival Guide , 2016 .

[30]  J. Grimshaw,et al.  Constructing questionnaires based on the theory of planned behaviour: A manual for health services researchers , 2004 .