Practical Guidance for Involving Stakeholders in Health Research

[1]  J. Jull,et al.  Tailoring and field-testing the use of a knowledge translation peer support shared decision making strategy with First Nations, Inuit and Métis people making decisions about their cancer care: a study protocol , 2018, Research Involvement and Engagement.

[2]  L. Forsythe,et al.  Patient, caregiver and clinician views on engagement in comparative effectiveness research. , 2017, Journal of comparative effectiveness research.

[3]  L. Forsythe,et al.  Health researcher views on comparative effectiveness research and research engagement. , 2017, Journal of comparative effectiveness research.

[4]  M. Friedberg,et al.  Engaging Consumers in the Quality Measurement Enterprise , 2017 .

[5]  P. Tugwell,et al.  Successful Stepwise Development of Patient Research Partnership: 14 Years’ Experience of Actions and Consequences in Outcome Measures in Rheumatology (OMERACT) , 2016, The Patient - Patient-Centered Outcomes Research.

[6]  David W. Johnson,et al.  Patient and Caregiver Priorities for Outcomes in Hemodialysis: An International Nominal Group Technique Study. , 2016, American journal of kidney diseases : the official journal of the National Kidney Foundation.

[7]  T. Concannon,et al.  What Makes Stakeholders Want to Become Involved in Research , 2016 .

[8]  V. Montori,et al.  Patient and service user engagement in research: a systematic review and synthesized framework , 2015, Health expectations : an international journal of public participation in health care and health policy.

[9]  T. Concannon.  Can patient centered outcomes research improve healthcare? , 2015, BMJ : British Medical Journal.

[10]  Deepak L. Bhatt,et al.  Real world effectiveness of warfarin among ischemic stroke patients with atrial fibrillation: observational analysis from Patient-Centered Research into Outcomes Stroke Patients Prefer and Effectiveness Research (PROSPER) study , 2015, BMJ : British Medical Journal.

[11]  Raj Sabharwal,et al.  Patient and Stakeholder Engagement in the PCORI Pilot Projects: Description and Lessons Learned , 2015, Journal of General Internal Medicine.

[12]  Emily Moore,et al.  Evaluating patient and stakeholder engagement in research: moving from theory to practice. , 2015, Journal of comparative effectiveness research.

[13]  Dominick Esposito,et al.  PCORI Dissemination and Implementation Framework , 2015 .

[14]  L. Forsythe,et al.  Conceptual and practical foundations of patient engagement in research at the patient-centered outcomes research institute , 2015, Quality of Life Research.

[15]  Lori Frank,et al.  The PCORI perspective on patient-centered outcomes research. , 2014, JAMA.

[16]  J. Donovan,et al.  Professional experiences of accessing cancer drugs in the NHS: the introduction of the Cancer Drugs Fund, the individual versus the population , 2014, BMC Health Services Research.

[17]  L. Leslie,et al.  A Systematic Review of Stakeholder Engagement in Comparative Effectiveness and Patient-Centered Outcomes Research , 2014, Journal of General Internal Medicine.

[18]  Robin A. Paynter,et al.  Defining the Benefits of Stakeholder Engagement in Systematic Reviews , 2014 .

[19]  J. Sloan,et al.  Patient engagement in research: a systematic review , 2014, BMC Health Services Research.

[20]  Jennie Popay,et al.  Values associated with public involvement in health and social care research: a narrative review , 2013, Health expectations : an international journal of public participation in health care and health policy.

[21]  M. Winters,et al.  A framework for stakeholder identification in concept mapping and health research: a novel process and its application to older adult mobility and the built environment , 2013, BMC Public Health.

[22]  D. Lavallee,et al.  Continuous patient engagement in comparative effectiveness research. , 2012, JAMA.

[23]  Paul Meissner,et al.  A New Taxonomy for Stakeholder Engagement in Patient-Centered Outcomes Research , 2012, Journal of General Internal Medicine.

[24]  Scott D Ramsey,et al.  Stakeholder participation in comparative effectiveness research: defining a framework for effective engagement. , 2012, Journal of comparative effectiveness research.

[25]  Marilyn J. Field,et al.  Conflict of Interest in Medical Research, Education, and Practice , 2009 .

[26]  Nancy Santesso,et al.  Systematic reviews and knowledge translation. , 2006, Bulletin of the World Health Organization.

[27]  P. Tugwell,et al.  Consumer‐driven health care: Building partnerships in research , 2005, Health expectations : an international journal of public participation in health care and health policy.

[28]  R. Lewicki.  Essentials of Negotiation , 1996 .

[29]  Stephanie R. Morain,et al.  HIV, breast cancer and vaccines: what do high-profile cases reveal about stakeholder engagement in research? , 2017, Journal of comparative effectiveness research.

[30]  T. Concannon,et al.  Employer, Insurer, and Industry Perspectives on Patient-Centered Comparative Effectiveness Research: Final Report. , 2016, Rand health quarterly.

[31]  S. Greenfield,et al.  Clinical practice guidelines we can trust , 2011 .

[32]  K N Lohr,et al.  Community-based participatory research: assessing the evidence. , 2004, Evidence report/technology assessment.

[33]  Sandy Oliver,et al.  Involving the public in NHS public health, and social care research: briefing notes for researchers , 2004 .