Do interventions with staff in long-term residential facilities improve quality of care or quality for life people with dementia? A systematic review of the evidence

ABSTRACT Background: Common sense suggests and research indicates relationships between staff factors in residential dementia care and quality of life (QOL) for residents, with poor care increasing suffering. However, we do not have a coherent picture of which staff interventions have an impact on quality of care (QOC) or resident QOL. Methods: A comprehensive search of 20 years’ peer-reviewed literature using Medline, PsycINFO, Embase, PubMed, CINAHL, and the Cochrane, Campbell Collaboration identified 4,760 studies meriting full text review. Forty-six met the inclusion criteria, namely interventions in long-term facilities helping staff develop their capacity to provide better care and/or QOL for residents with dementia. Thirty-five other papers comprised an associated predictor review. Results: Conclusions from these limited data are further compromised because nine studies failed to measure effects on residents and only half assessed effects after the project team withdrew. Of these, excellent studies produced change over the medium (3–4 months) or longer term, including reduction in challenging behavior and restraint use but this applied only to a minority. A number of studies failed to measure effects on QOC, limiting conclusions about mechanisms underlying change. Conclusion: In general, level of intervention required depended on the target. For outcomes like restraint use, structured education sessions with some support appear adequate. Programs to reduce pain require more support. For complicated issues like challenging behavior and increasing co-operation in showering, detailed, supportive, on-site interventions are required. Improvements in restraint and staff/resident interactions were the most promising findings. (Review registration number: PROSPERO 2014:CRD42014015224).

[1]  Michael Bird,et al.  How do staff influence the quality of long-term dementia care and the lives of residents? A systematic review of the evidence , 2016, International Psychogeriatrics.

[2]  P. Sloane,et al.  Effect of the Bathing Without a Battle Training Intervention on Bathing‐Associated Physical and Verbal Outcomes in Nursing Home Residents with Dementia: A Randomized Crossover Diffusion Study , 2014, Journal of the American Geriatrics Society.

[3]  H. Brodaty,et al.  PerCEN: a cluster randomized controlled trial of person-centered residential care and environment for people with dementia , 2014, International Psychogeriatrics.

[4]  D. Miu,et al.  Under-detection of pain in elderly nursing home residents with moderate to severe dementia , 2014 .

[5]  B. Woods,et al.  Randomisation and chance-based designs in social care research , 2014 .

[6]  J. Hamers,et al.  Quality of life and quality of care for people with dementia receiving long term institutional care or professional home care: the European RightTimePlaceCare study. , 2014, Journal of the American Medical Directors Association.

[7]  M. Orrell,et al.  Providing activity for people with dementia in care homes: a cluster randomised controlled trial , 2013, International journal of geriatric psychiatry.

[8]  W. van Tilburg,et al.  The implementation of integrated emotion-oriented care: Did it actually change the attitude, skills and time spent of trained caregivers? , 2013, Dementia.

[9]  R. Donders,et al.  Effects of Dementia-Care Mapping on Residents and Staff of Care Homes: A Pragmatic Cluster-Randomised Controlled Trial , 2013, PloS one.

[10]  H. Brodaty,et al.  Care planning practices for behavioural and psychological symptoms of dementia in residential aged care: A pilot of an education toolkit informed by the Aged Care Funding Instrument , 2013, Contemporary nurse.

[11]  J. Yesavage,et al.  Management of apathy in nursing homes using a teaching program for care staff: the STIM‐EHPAD study , 2013, International journal of geriatric psychiatry.

[12]  J. Hamers,et al.  Reduction of Belt Restraint Use: Long‐Term Effects of the EXBELT Intervention , 2013, Journal of the American Geriatrics Society.

[13]  C. Hornillos,et al.  Factors associated with quality of life in dementia patients in long-term care , 2012, International Psychogeriatrics.

[14]  R. Woods,et al.  AwareCare: a pilot randomized controlled trial of an awareness-based staff training intervention to improve quality of life for residents with severe dementia in long-term care settings , 2012, International Psychogeriatrics.

[15]  J. Reinhardt,et al.  The impact of culture change on elders' behavioral symptoms: a longitudinal study. , 2012, Journal of the American Medical Directors Association.

[16]  M. Szebehely,et al.  Unheard voices, unmapped terrain: care work in long-term residential care for older people in Canada and Sweden. , 2012, International journal of social welfare.

[17]  D. Streiner,et al.  Evaluating the effectiveness of the abilities-focused approach to morning care of people with dementia. , 2012, International journal of older people nursing.

[18]  A. Spector,et al.  Staff training using STAR: a pilot study in UK care homes , 2012, International Psychogeriatrics.

[19]  N. Lautenschlager,et al.  A Cluster-Randomised Trial of Staff Education to Improve the Quality of Life of People with Dementia Living in Residential Care: The DIRECT Study , 2011, PloS one.

[20]  J. Hamers,et al.  Belt Restraint Reduction in Nursing Homes: Effects of a Multicomponent Intervention Program , 2011, Journal of the American Geriatrics Society.

[21]  J. Bensing,et al.  The effects of a nursing guideline on depression in psychogeriatric nursing home residents with dementia , 2011, International journal of geriatric psychiatry.

[22]  M. Hua,et al.  Predictors of pain in nursing home residents with dementia: a cross-sectional study. , 2011, Journal of clinical nursing.

[23]  J. Higgins Cochrane handbook for systematic reviews of interventions. Version 5.1.0 [updated March 2011]. The Cochrane Collaboration , 2011 .

[24]  D. Aarsland,et al.  The effect of staff training on agitation and use of restraint in nursing home residents with dementia: a single-blind, randomized controlled trial. , 2010, The Journal of clinical psychiatry.

[25]  Y. Gustafson,et al.  Effects of a Restraint Minimization Program on Staff Knowledge, Attitudes, and Practice: A Cluster Randomized Trial , 2010, Journal of the American Geriatrics Society.

[26]  A. Deudon,et al.  Non‐pharmacological management of behavioural symptoms in nursing homes , 2009, International journal of geriatric psychiatry.

[27]  Henry Brodaty,et al.  Caring for Aged Dementia Care Resident Study (CADRES) of person-centred care, dementia-care mapping, and usual care in dementia: a cluster-randomised trial , 2009, The Lancet Neurology.

[28]  D. Streiner,et al.  Implementation of the abilities-focused approach to morning care of people with dementia by nursing staff. , 2009, International journal of older people nursing.

[29]  T. Fritsch,et al.  Impact of TimeSlips, a creative expression intervention program, on nursing home residents with dementia and their caregivers. , 2009, The Gerontologist.

[30]  L. Lix,et al.  Pain Assessment as Intervention: A Study of Older Adults With Severe Dementia , 2008, The Clinical journal of pain.

[31]  F. Buntinx,et al.  Rate of accidental falls in institutionalised older people with and without cognitive impairment halved as a result of a staff-oriented intervention. , 2008, Age and ageing.

[32]  R. Woods,et al.  Strain in nursing care of people with dementia: Nurses’ experience in Australia, Sweden and United Kingdom , 2008, Aging & mental health.

[33]  M. McCabe,et al.  Managing behavioural symptoms of dementia: Effectiveness of staff education and peer support , 2008, Aging & mental health.

[34]  M. McCabe,et al.  Controlled trial of dementia training with a peer support group for aged care staff , 2007, International journal of geriatric psychiatry.

[35]  Alexander Libin,et al.  Nonpharmacological treatment of agitation: a controlled trial of systematic individualized intervention. , 2007, The journals of gerontology. Series A, Biological sciences and medical sciences.

[36]  C. Henderson,et al.  Partners in caregiving in a special care environment: cooperative communication between staff and families on dementia units. , 2007, The Gerontologist.

[37]  A. Korten,et al.  A controlled trial of a predominantly psychosocial approach to BPSD: treating causality , 2007, International Psychogeriatrics.

[38]  M. Berger,et al.  Short-term effects of an educational intervention on physical restraint use: a cluster randomized trial , 2006, BMC geriatrics.

[39]  P. Sloane,et al.  Assisting cognitively impaired nursing home residents with bathing: effects of two bathing interventions on caregiving. , 2006, The Gerontologist.

[40]  E. Madigan,et al.  The effect of a feeding skills training program for nursing assistants who feed dementia patients in Taiwanese nursing homes. , 2006, Geriatric nursing.

[41]  Michelle Simpson,et al.  Effects of the Serial Trial Intervention on Discomfort and Behavior of Nursing Home Residents With Dementia , 2006, American journal of Alzheimer's disease and other dementias.

[42]  Robert Howard,et al.  Effect of enhanced psychosocial care on antipsychotic use in nursing home residents with severe dementia: cluster randomised trial , 2006, BMJ : British Medical Journal.

[43]  Chia-Chi Chang,et al.  Effects of a feeding skills training programme on nursing assistants and dementia patients. , 2005, Journal of clinical nursing.

[44]  N. Kerse,et al.  Quality of residential care for older people: does education for healthcare assistants make a difference? , 2005, The New Zealand medical journal.

[45]  M. Ooms,et al.  The effect of integrated emotion‐oriented care versus usual care on elderly persons with dementia in the nursing home and on nursing assistants: a randomized clinical trial , 2005, International journal of geriatric psychiatry.

[46]  Richard C Zink,et al.  Effect of Person‐Centered Showering and the Towel Bath on Bathing‐Associated Aggression, Agitation, and Discomfort in Nursing Home Residents with Dementia: A Randomized, Controlled Trial , 2004, Journal of the American Geriatrics Society.

[47]  Chee Meng Chow,et al.  Judging a book by its cover , 2004 .

[48]  E. van Rossum,et al.  Effects of emotion‐oriented care on elderly people with cognitive impairment and behavioral problems , 2002, International journal of geriatric psychiatry.

[49]  L. Burgio,et al.  Teaching and maintaining behavior management skills in the nursing home. , 2002, The Gerontologist.

[50]  L. Burgio,et al.  Effects of a communication intervention on the discourse of nursing home residents with dementia and their nursing assistants , 2002 .

[51]  C. Magai,et al.  Impact of Training Dementia Caregivers in Sensitivity to Nonverbal Emotion Signals , 2002, International Psychogeriatrics.

[52]  N. Chappell,et al.  Dimensions of care for dementia sufferers in long-term care institutions: are they related to outcomes? , 2000, The journals of gerontology. Series B, Psychological sciences and social sciences.

[53]  S. Sidani,et al.  Effects of an Abilities‐Focused Program of Morning Care on Residents Who Have Dementia and On Caregivers , 2000, Journal of the American Geriatrics Society.

[54]  E. McConnell,et al.  Treating Excess Disability Among Cognitively Impaired Nursing Home Residents , 2000, Journal of the American Geriatrics Society.

[55]  D. Weissman,et al.  Assessment and treatment of discomfort for people with late-stage dementia. , 1999, Journal of pain and symptom management.

[56]  R. Toseland,et al.  Educating nursing assistants to communicate more effectively with nursing home residents with dementia. , 1999, The Gerontologist.

[57]  B. Breuer,et al.  Restraint Reduction Reduces Serious Injuries Among Nursing Home Residents , 1999, Journal of the American Geriatrics Society.

[58]  G. Maislin,et al.  Outcomes of nighttime physical restraint removal for severely impaired nursing home residents , 1999 .

[59]  I. Hallberg,et al.  Nurses’ narrations and reflections about caring for patients with severe dementia as revealed in systematic clinical supervision sessions. , 1999 .

[60]  C. Beck,et al.  Enabling and empowering certified nursing assistants for quality dementia care , 1999, International journal of geriatric psychiatry.

[61]  A. Norberg,et al.  Nurses' reflections about dementia care, the patients, the care and themselves in their daily caregiving. , 1998, International journal of nursing studies.

[62]  P. Sloane,et al.  Environmental Correlates of Resident Agitation in Alzheimer's Disease Special Care Units , 1998, Journal of the American Geriatrics Society.

[63]  E Capezuti,et al.  A Clinical Trial to Reduce Restraints in Nursing Homes , 1997, Journal of the American Geriatrics Society.

[64]  A. Blackmore,et al.  Effects of an environmental manipulation emphasizing client-centred care on agitation and sleep in dementia sufferers in a nursing home. , 1996, Journal of advanced nursing.

[65]  Greg Maislin,et al.  Physical Restraint Use and Falls in Nursing Home Residents , 1996, Journal of the American Geriatrics Society.

[66]  D. Sackett,et al.  Cochrane Collaboration , 1994, BMJ.

[67]  E B Larson,et al.  Behavioral Disturbance in Dementia of the Alzheimer's Type , 1988, Journal of the American Geriatrics Society.