A microswitch-aided program to enable people with extensive multiple disabilities to control environmental stimulation through different responses

Objectives This study assessed whether a simple technology-aided program (i.e., a program involving the use of microswitches linked to a smartphone) could be set up to enable people with motor, sensory and intellectual disabilities to control preferred environmental stimulation through two different response movements. Methods Ten participants were involved in the study. Each of them was exposed to an ABAB design, in which A represented baseline phases without the program and B intervention phases with the use of the program. The study assessed whether the participants (a) had significant increases of each of the two response movements available and/or showed response variability across sessions and over time and (b) had signs of satisfaction/happiness during the study sessions, in connection with their stimulation access and control. Results The program was effective in increasing the participants' responding and consequently their self-regulated stimulation input. Half of the participants showed a significant increase of both responses available from the first intervention phase. Other participants seemed to focus more on one of the two responses. Even so, they tended to have occasionally high performance frequencies also with regard to their non-dominant (not significantly increased) response. Finally, all participants showed clear signs of satisfaction/happiness during the intervention sessions. Conclusions The program represents a potentially useful approach for enabling people with extensive multiple disabilities to self-regulate their access to preferred environmental stimulation and improve their mood.

[1]  O. Healy,et al.  Defining and Measuring Indices of Happiness and Unhappiness in Children Diagnosed with Autism Spectrum Disorder , 2022, Behavior Analysis in Practice.

[2]  J. Rothwell,et al.  Variability of Movement Disorders: The Influence of Sensation, Action, Cognition, and Emotions , 2020, Movement disorders : official journal of the Movement Disorder Society.

[3]  S. Lau,et al.  Making Sense of Multi-Sensory Environments: A Scoping Review , 2020, International Journal of Disability, Development and Education.

[4]  Nirbhay N. Singh,et al.  Persons with intellectual and multiple disabilities activate via non-verbal responses a smartphone’s Google Assistant to access preferred stimulation , 2020, International journal of developmental disabilities.

[5]  M. Wehmeyer The Importance of Self-Determination to the Quality of Life of People with Intellectual Disability: A Perspective , 2020, International journal of environmental research and public health.

[6]  D. Davies,et al.  Applied Cognitive Technologies to Support the Autonomy of People with Intellectual and Developmental Disabilities , 2020, Advances in Neurodevelopmental Disorders.

[7]  R. Cummins Quality of Life of Adults with an Intellectual Disability , 2020, Current Developmental Disorders Reports.

[8]  J. V. van Goudoever,et al.  The perspectives of professional caregivers on quality of life of persons with profound intellectual and multiple disabilities: a qualitative study , 2020, International journal of developmental disabilities.

[9]  Nirbhay N. Singh,et al.  Self-Regulated Versus Staff-Regulated Stimulation for Promoting Indices of Satisfaction in Persons with Severe/Profound and Multiple Disabilities , 2020 .

[10]  David A. Ervin,et al.  Clinical Utility of Multisensory Environments for People With Intellectual and Developmental Disabilities: A Scoping Review. , 2019, The American journal of occupational therapy : official publication of the American Occupational Therapy Association.

[11]  J. Luiselli,et al.  Comparative Effects and Social Validation of Support Strategies to Promote Mindfulness Practices Among High School Students , 2019, Child & Family Behavior Therapy.

[12]  M. Scherer Assistive technology selection to outcome assessment: the benefit of having a service delivery protocol , 2019, Disability and rehabilitation. Assistive technology.

[13]  J. Borg Commentary on selection of assistive technology in a context with limited resources , 2019, Disability and rehabilitation. Assistive technology.

[14]  C. Vlaskamp,et al.  Exploring spontaneous interactions between people with profound intellectual and multiple disabilities and their peers , 2019 .

[15]  A. Caffò,et al.  Experimental Examination and Social Validation of a Microswitch Intervention to Improve Choice-Making and Activity Engagement for Six Girls with Rett Syndrome , 2019, Developmental neurorehabilitation.

[16]  N. Berardi,et al.  From Basic Visual Science to Neurodevelopmental Disorders: The Voyage of Environmental Enrichment-Like Stimulation , 2019, Neural plasticity.

[17]  B. Maes,et al.  How to improve the quality of life of elderly people with intellectual disability: A systematic literature review of support strategies , 2018, Journal of applied research in intellectual disabilities : JARID.

[18]  Nirbhay N. Singh,et al.  Non-ambulatory People with Intellectual Disabilities Practice Functional Arm, Leg or Head Responses Via a Smartphone-Based Program , 2018, Journal of Developmental and Physical Disabilities.

[19]  J. Stier,et al.  Staffs’ documentation of participation for adults with profound intellectual disability or profound intellectual and multiple disabilities , 2018, Disability and rehabilitation.

[20]  M. Maclachlan,et al.  Access to assistive technology for people with intellectual disabilities: a systematic review to identify barriers and facilitators , 2018, Journal of intellectual disability research : JIDR.

[21]  Marcia J Scherer,et al.  Assistive technology and people: a position paper from the first global research, innovation and education on assistive technology (GREAT) summit , 2018, Disability and rehabilitation. Assistive technology.

[22]  Nirbhay N. Singh,et al.  Using microswitch-aided programs for people with multiple disabilities to promote stimulation control and mild physical exercise , 2018 .

[23]  C. Bigby,et al.  Improving Quality of Life Outcomes in Supported Accommodation for People with Intellectual Disability: What Makes a Difference? , 2018, Journal of applied research in intellectual disabilities : JARID.

[24]  Michael C. Avery,et al.  Neuromodulatory Systems and Their Interactions: A Review of Models, Theories, and Experiments , 2017, Front. Neural Circuits.

[25]  Stefano Federici,et al.  Assistive technology assessment handbook , 2017 .

[26]  Nirbhay N. Singh,et al.  Promoting Functional Activity Engagement in People with Multiple Disabilities through the Use of Microswitch-Aided Programs , 2017, Front. Public Health.

[27]  Carla Vlaskamp,et al.  A comparison of natural and non-natural soundscapes on people with severe or profound intellectual and multiple disabilities , 2017 .

[28]  W. Pierce,et al.  Behavior Analysis and Learning: A Biobehavioral Approach , 2017 .

[29]  Shirley A. Thomas,et al.  Professionals’ views on the use of smartphone technology to support children and adolescents with memory impairment due to acquired brain injury , 2017, Disability and rehabilitation. Assistive technology.

[30]  F. Stasolla,et al.  Rehabilitative Solutions for Promoting Independence and Self-Determination of Children with Cornelia de Lange Syndrome , 2017 .

[31]  C. Vlaskamp,et al.  Motor activation in people with profound intellectual and multiple disabilities in daily practice , 2017 .

[32]  A. de Giorgio The roles of motor activity and environmental enrichment in intellectual disability , 2017, Somatosensory & motor research.

[33]  C. Vlaskamp,et al.  Making a difference? A comparison between multi-sensory and regular storytelling for persons with profound intellectual and multiple disabilities. , 2016, Journal of intellectual disability research : JIDR.

[34]  J. Darling,et al.  Measuring happiness in individuals with profound multiple disabilities. , 2015, Research in developmental disabilities.

[35]  C. Vlaskamp,et al.  Factors Influencing Attentiveness of People With Profound Intellectual and Multiple Disabilities to Multisensory Storytelling , 2015 .

[36]  M. O'Reilly,et al.  Microswitch Technology for Enabling Self-Determined Responding in Children with Profound and Multiple Disabilities: A Systematic Review , 2015, Augmentative and alternative communication.

[37]  Nirbhay N. Singh,et al.  Effects of response-related music stimulation versus general music stimulation on positive participation of patients with Alzheimer’s disease , 2015, Developmental neurorehabilitation.

[38]  C. Vlaskamp,et al.  The structure of informal social networks of persons with profound intellectual and multiple disabilities. , 2015, Journal of applied research in intellectual disabilities : JARID.

[39]  V. Munde,et al.  Initiation of activities and alertness in individuals with profound intellectual and multiple disabilities. , 2015, Journal of intellectual disability research : JIDR.

[40]  C. Vlaskamp,et al.  Informal social networks of people with profound intellectual and multiple disabilities: relationship with age, communicative abilities and current living arrangements. , 2015, Journal of applied research in intellectual disabilities : JARID.

[41]  Michael Perdices,et al.  Single-Case Experimental Designs , 2014 .

[42]  Melissa A. Collier‐Meek,et al.  Increasing the Rigor of Procedural Fidelity Assessment: An Empirical Comparison of Direct Observation and Permanent Product Review Methods , 2014 .

[43]  C. Hatton,et al.  Quality of life indicators for individuals with intellectual disabilities: extending current practice. , 2013, Intellectual and developmental disabilities.

[44]  Ching-Hsiang Shih,et al.  Assisting people with disabilities in actively performing physical activities by controlling the preferred environmental stimulation with a gyration air mouse. , 2013, Research in developmental disabilities.

[45]  Fabrizio Stasolla,et al.  Promoting adaptive behaviors by two girls with Rett syndrome through a microswitch-based program , 2013 .

[46]  Melissa A. Collier‐Meek,et al.  Increasing the Rigor of Procedural Fidelity Assessment: An Empirical Comparison of Direct Observation and Permanent Product Review Methods , 2013, Journal of Behavioral Education.

[47]  Mark Carter,et al.  The Use of Multi-Sensory Environments in Schools Servicing Children with Severe Disabilities , 2012 .

[48]  E. Mohammadi,et al.  Barriers and facilitators related to the implementation of a physiological track and trigger system: A systematic review of the qualitative evidence , 2017, International journal for quality in health care : journal of the International Society for Quality in Health Care.

[49]  Ching-Tien Shih,et al.  A new limb movement detector enabling people with multiple disabilities to control environmental stimulation through limb swing with a gyration air mouse. , 2010, Research in developmental disabilities.

[50]  Alan E. Kazdin,et al.  Single-Case Research Designs: Methods for Clinical and Applied Settings , 2010 .

[51]  C. Drew Vineland Adaptive Behavior Scales , 2010 .

[52]  Ching-Tien Shih,et al.  Assisting people with multiple disabilities and minimal motor behavior to control environmental stimulation through a mouse wheel. , 2009, Research in developmental disabilities.

[53]  C. Vlaskamp,et al.  Therapeutic interventions in the Netherlands and Belgium in support of people with profound intellectual and multiple disabilities , 2008 .

[54]  M. O'Reilly,et al.  Assessing the effects of stimulation versus microswitch-based programmes on indices of happiness of students with multiple disabilities. , 2006, Journal of intellectual disability research : JIDR.

[55]  L. Hagopian,et al.  Preference Assessment Procedures for Individuals with Developmental Disabilities , 2004, Behavior modification.

[56]  D. Ruppert The Elements of Statistical Learning: Data Mining, Inference, and Prediction , 2004 .

[57]  Halvor Hanisch,et al.  Self-Determination: What can we Learn from Persons with Profound Intellectual and Multiple Disabilities? , 2021, Scandinavian Journal of Disability Research.

[58]  Stephen H. Bell,et al.  A ?scoping review. , 2018, Sexual health.

[59]  Adele Boccasini,et al.  Microswitch-aided Programs for a Woman with Rett Syndrome and a Boy with Extensive Neuro-motor and Intellectual Disabilities , 2014 .

[60]  V. Munde,et al.  Catch the wave! Time-window sequential analysis of alertness stimulation in individuals with profound intellectual and multiple disabilities. , 2014, Child: care, health and development.

[61]  P. Cardon,et al.  A qualitative study. , 2001 .

[62]  A. E. Kazlxn,et al.  Behavior Modification in Applied Settings , 1975 .

[63]  E. P. Lewis In perspective. , 1972, Nursing outlook.