Experiences and Expressions of Spirituality at the End of Life in the Intensive Care Unit

Rationale: The austere setting of the intensive care unit (ICU) can suppress expressions of spirituality. Objectives: To describe how family members and clinicians experience and express spirituality during the dying process in a 21‐bed medical‐surgical ICU. Methods: Reflecting the care of 70 dying patients, we conducted 208 semistructured qualitative interviews with 76 family members and 150 clinicians participating in the Three Wishes Project. Interviews were recorded and transcribed verbatim. Data were analyzed by three investigators using qualitative interpretive description. Measurements and Main Results: Participants characterize dying as a spiritual event. Spirituality is an integral part of the life narrative of the patient before, during, and after death. Experiences and expressions of spirituality for patients, families, and clinicians during end‐of‐life care in the ICU are supported by eliciting and implementing wishes in several ways. Eliciting wishes stimulates conversations for people of diverse spiritual orientations to respond to death in personally meaningful ways that facilitate continuity and closure, and ease emotional trauma. Soliciting wishes identifies positive aspirations, which provide comfort in the face of death. The act of soliciting wishes brings clinician humanity to the fore. Wishing makes individual spiritual preferences and practices more accessible. Wishes may be grounded in spiritual goals, such as peace, comfort, connections, and tributes; they may seek a spiritually enhanced environment or represent specific spiritual interventions. Conclusions: Family members and clinicians consider spirituality an important dimension of end‐of‐life care. The Three Wishes Project invites and supports the expression of myriad forms of spirituality during the dying process in the ICU.

[1]  E. Ely Swimming pool in the ICU , 2016, Intensive Care Medicine.

[2]  David Bergamo,et al.  Frequency of Faith and Spirituality Discussion in Health Care , 2016, Journal of Religion and Health.

[3]  D. Cook,et al.  362: SPIRITUALITY DURING THE DYING PROCESS IN THE ICU: FINDINGS FROM THE 3 WISHES PROJECT , 2015 .

[4]  C. Cox,et al.  "The Patient Is Dying, Please Call the Chaplain": The Activities of Chaplains in One Medical Center's Intensive Care Units. , 2015, Journal of pain and symptom management.

[5]  D. White,et al.  Health Care Professionals' Responses to Religious or Spiritual Statements by Surrogate Decision Makers During Goals-of-Care Discussions. , 2015, JAMA internal medicine.

[6]  D. Cook,et al.  Personalizing Death in the Intensive Care Unit: The 3 Wishes Project , 2015, Annals of Internal Medicine.

[7]  K. Pargament,et al.  Workings of the human spirit in palliative care situations: a consensus model from the Chaplaincy Research Consortium , 2015, BMC Palliative Care.

[8]  T. VanderWeele,et al.  Teaching health care providers to provide spiritual care: a pilot study. , 2015, Journal of palliative medicine.

[9]  Vivian Feldman,et al.  Dim down the lights: implementing quiet time in the coronary care unit. , 2014, Critical care nurse.

[10]  N. Smith,et al.  The Association of Spiritual Care Providers’ Activities With Family Members’ Satisfaction With Care After a Death in the ICU* , 2014, Critical care medicine.

[11]  D. Cook,et al.  Dying with dignity in the intensive care unit. , 2014, The New England journal of medicine.

[12]  G. Anandarajah,et al.  A qualitative study of physicians' views on compassionate patient care and spirituality: medicine as a spiritual practice? , 2014, Rhode Island medical journal.

[13]  J. Bartels The pause. , 2014, Critical care nurse.

[14]  T. VanderWeele,et al.  Why is spiritual care infrequent at the end of life? Spiritual care perceptions among patients, nurses, and physicians and the role of training. , 2013, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[15]  R. Sawatzky,et al.  Sacred spaces in public places: religious and spiritual plurality in health care. , 2012, Nursing inquiry.

[16]  H. Chochinov,et al.  Improving the quality of spiritual care as a dimension of palliative care: the report of the Consensus Conference. , 2009, Journal of palliative medicine.

[17]  Graeme Rocker,et al.  An official American Thoracic Society clinical policy statement: palliative care for patients with respiratory diseases and critical illnesses. , 2008, American journal of respiratory and critical care medicine.

[18]  J. Curtis,et al.  Spiritual care of families in the intensive care unit* , 2007, Critical care medicine.

[19]  T. Cerny,et al.  Spirituality, psychotherapy and music in palliative cancer care: research projects in psycho-oncology at an oncology center in Switzerland , 2005, Supportive Care in Cancer.

[20]  S. Murray,et al.  General practitioners and their possible role in providing spiritual care: a qualitative study. , 2003, The British journal of general practice : the journal of the Royal College of General Practitioners.

[21]  M. Levy,et al.  Quality indicators for end-of-life care in the intensive care unit* , 2003, Critical care medicine.

[22]  C. Wild Meeting the needs of intensive care , 2002 .

[23]  J. Guillemin,et al.  Spiritual and Religious Components of Patient Care in the Neonatal Intensive Care Unit: Sacred Themes in a Secular Setting , 2001, Journal of Perinatology.

[24]  A. Newberg,et al.  Spirituality and Health: The Art of Compassionate Medicine , 2001 .

[25]  F Lemaire,et al.  Meeting the needs of intensive care unit patient families: a multicenter study. , 2001, American journal of respiratory and critical care medicine.

[26]  D. Sulmasy Is medicine a spiritual practice? , 1999, Academic medicine : journal of the Association of American Medical Colleges.

[27]  B. Golberg Connection: an exploration of spirituality in nursing care. , 1998, Journal of advanced nursing.