The PARADIGHM (physicians advancing disease knowledge in hypoparathyroidism) registry for patients with chronic hypoparathyroidism: study protocol and interim baseline patient characteristics
暂无分享,去创建一个
L. Rejnmark | P. Houillier | M. Brandi | Steven W. Ing | D. Shoback | S. Hahner | B. Clarke | M. Levine | T. Vokes | N. Gittoes | Lorenz C Hofbauer | J. Germak | C. Marelli | Aliya A. Khan | S. Björnsdóttir | Pinggao Zhang | M. Mannstadt | Lorenz C. Hofbauer | L. Hofbauer | B. Clarke
[1] B. Decallonne,et al. Burden of illness in patients with chronic hypoparathyroidism not adequately controlled with conventional therapy: a Belgium and the Netherlands survey , 2020, Journal of Endocrinological Investigation.
[2] E. Çakal,et al. The effects of patient and disease-related factors on the quality of life in patients with hypoparathyroidism , 2020, Archives of Osteoporosis.
[3] J. Bollerslev,et al. Burden of illness in not adequately controlled chronic hypoparathyroidism: Findings from a 13‐country patient and caregiver survey , 2019, Clinical endocrinology.
[4] C. Gip,et al. Defining the Characteristics of Chronic Hypoparathyroidism Not Adequately Controlled on Conventional Therapy: Consensus Findings of Three European Delphi Panels , 2019, Advances in Therapy.
[5] N. Watts,et al. Safety and Efficacy of 5 Years of Treatment With Recombinant Human Parathyroid Hormone in Adults With Hypoparathyroidism , 2019, The Journal of clinical endocrinology and metabolism.
[6] Jipan Xie,et al. Clinical burden and healthcare resource utilization among patients with chronic hypoparathyroidism, overall and by adequately vs not adequately controlled disease: a multi-country chart review , 2019, Journal of medical economics.
[7] L. Nelson,et al. Psychometric evaluation of the hypoparathyroidism symptom diary , 2019, Patient related outcome measures.
[8] C. Pedone,et al. Cardiovascular Autonomic Neuropathy as a New Complication of Postsurgical Chronic Hypoparathyroidism , 2018, Journal of bone and mineral research : the official journal of the American Society for Bone and Mineral Research.
[9] P. Donnan,et al. Increased mortality and morbidity in patients with chronic hypoparathyroidism: A population‐based study , 2018, Clinical endocrinology.
[10] Susan A. Martin,et al. Development of a Patient-Reported Outcome Measure for Chronic Hypoparathyroidism , 2016, Advances in Therapy.
[11] M. Rubin,et al. Therapy of Hypoparathyroidism with rhPTH(1-84): A Prospective Eight Year Investigation of Efficacy and Safety. , 2019, The Journal of clinical endocrinology and metabolism.
[12] L. Rejnmark,et al. Standards of care for hypoparathyroidism in adults: a Canadian and International Consensus , 2018, European journal of endocrinology.
[13] L. Rejnmark,et al. Health‐related quality of life in patients with nonsurgical hypoparathyroidism and pseudohypoparathyroidism , 2018, Clinical endocrinology.
[14] C. Marcocci,et al. Efficacy and safety of long-term management of patients with chronic post-surgical hypoparathyroidism , 2018, Journal of Endocrinological Investigation.
[15] J. Bilezikian,et al. Recombinant Human Parathyroid Hormone Effect on Health-Related Quality of Life in Adults With Chronic Hypoparathyroidism , 2017, The Journal of clinical endocrinology and metabolism.
[16] Publisher's Note , 2018, Anaesthesia.
[17] Z. Punthakee,et al. An Overview of the Etiology, Clinical Manifestations, Management Strategies and Complications of Hypoparathyroidism from the Canadian National Hypoparathyroidism Registry (CNHR) , 2017 .
[18] J. Bilezikian,et al. Safety and Efficacy of Recombinant Human Parathyroid Hormone in Adults With Hypoparathyroidism Randomly Assigned to Receive Fixed 25-μg or 50-μg Daily Doses. , 2017, Clinical therapeutics.
[19] L. Rejnmark,et al. Concurrent Hypoparathyroidism Is Associated With Impaired Physical Function and Quality of Life in Hypothyroidism , 2016, Journal of bone and mineral research : the official journal of the American Society for Bone and Mineral Research.
[20] J. Svartberg,et al. Epidemiology and Health-Related Quality of Life in Hypoparathyroidism in Norway , 2016, The Journal of clinical endocrinology and metabolism.
[21] D. Dempster,et al. Presentation of Hypoparathyroidism: Etiologies and Clinical Features. , 2016, The Journal of clinical endocrinology and metabolism.
[22] J. Bilezikian,et al. Management of Hypoparathyroidism: Summary Statement and Guidelines. , 2016, The Journal of clinical endocrinology and metabolism.
[23] S. Cremers,et al. Therapy of Hypoparathyroidism With PTH(1-84): A Prospective Six Year Investigation of Efficacy and Safety. , 2016, The Journal of clinical endocrinology and metabolism.
[24] Sigrun Alba Johannesdottir Schmidt,et al. The Danish National Patient Registry: a review of content, data quality, and research potential , 2015, Clinical epidemiology.
[25] O. Dekkers,et al. European Society of Endocrinology Clinical Guideline: Treatment of chronic hypoparathyroidism in adults. , 2015, European journal of endocrinology.
[26] H. Khoury,et al. The role of observational studies in optimizing the clinical management of chronic myeloid leukemia , 2015, Therapeutic advances in hematology.
[27] M. Rubin,et al. PTH(1-84) is associated with improved quality of life in hypoparathyroidism through 5 years of therapy. , 2014, The Journal of clinical endocrinology and metabolism.
[28] A. Fuglsang-Frederiksen,et al. Effects of PTH(1–84) therapy on muscle function and quality of life in hypoparathyroidism: results from a randomized controlled trial , 2014, Osteoporosis International.
[29] B. Clarke,et al. Understanding the burden of illness associated with hypoparathyroidism reported among patients in the PARADOX study. , 2014, Endocrine practice : official journal of the American College of Endocrinology and the American Association of Clinical Endocrinologists.
[30] H. Lagast,et al. Prevalence and Incidence of Hypoparathyroidism in the United States Using a Large Claims Database , 2013, Journal of bone and mineral research : the official journal of the American Society for Bone and Mineral Research.
[31] L. Rejnmark,et al. Cardiovascular and renal complications to postsurgical hypoparathyroidism: A Danish nationwide controlled historic follow‐up study , 2013, Journal of bone and mineral research : the official journal of the American Society for Bone and Mineral Research.
[32] M. Rubin,et al. The effect of PTH(1-84) on quality of life in hypoparathyroidism. , 2013, The Journal of clinical endocrinology and metabolism.
[33] S. Cremers,et al. Therapy of hypoparathyroidism with PTH(1-84): a prospective four-year investigation of efficacy and safety. , 2013, The Journal of clinical endocrinology and metabolism.
[34] Michael Vrla,et al. Long-term follow-up of patients with hypoparathyroidism. , 2012, The Journal of clinical endocrinology and metabolism.
[35] A. Zbrozek,et al. The Validity and Reproducibility of a Work Productivity and Activity Impairment Instrument , 1993, PharmacoEconomics.
[36] L. Rejnmark,et al. The effect of adding PTH(1–84) to conventional treatment of hypoparathyroidism: A randomized, placebo‐controlled study , 2011, Journal of bone and mineral research : the official journal of the American Society for Bone and Mineral Research.
[37] D. Spigel. The value of observational cohort studies for cancer drugs. , 2010, Biotechnology healthcare.
[38] C. Schmid,et al. A new equation to estimate glomerular filtration rate. , 2009, Annals of internal medicine.
[39] C. Janson,et al. Physical activity and quality of life in subjects with chronic disease: Chronic obstructive pulmonary disease compared with rheumatoid arthritis and diabetes mellitus , 2009, Scandinavian journal of primary health care.
[40] O. Elert,et al. The Wuerzburg scale: A new classification system for permanent postoperative hypoparathyroidism , 2007, European Surgery.
[41] B. Allolio,et al. Well-being, mood and calcium homeostasis in patients with hypoparathyroidism receiving standard treatment with calcium and vitamin D. , 2002, European journal of endocrinology.