Development of a culturally appropriate health‐related quality of life measure for human immunodeficiency virus‐infected children in Thailand

Aim:  Develop a reliable and valid self‐report health‐related quality of life (HRQOL) instrument for human immunodeficiency virus (HIV)‐infected children in Thailand.

[1]  R. Detels,et al.  Understanding the psychosocial needs of HIV-infected children and families: a qualitative study. , 2008, Journal of the Medical Association of Thailand = Chotmaihet thangphaet.

[2]  Samir S. Shah,et al.  Cutaneous Mycobacterium avium complex infection as a manifestation of the immune reconstitution syndrome in a human immunodeficiency virus-infected child. , 2007, The Pediatric infectious disease journal.

[3]  K. Buchacz,et al.  The Pediatric AIDS Severity Score (PASS): A Multidimensional AIDS-Severity Adjustment for Pediatric HIV Infection , 2006, Journal of acquired immune deficiency syndromes.

[4]  S. Sathish,et al.  Immune reconstitution syndrome in a child with TB and HIV , 2006, Indian journal of pediatrics.

[5]  R. Miller,et al.  Progressive symptoms and signs following institution of highly active antiretroviral therapy and subsequent antituberculosis therapy: immune reconstitution syndrome or infection? , 2006, Sexually Transmitted Infections.

[6]  T. Puthanakit,et al.  Immune Reconstitution Syndrome After Highly Active Antiretroviral Therapy in Human Immunodeficiency Virus-Infected Thai Children , 2006, The Pediatric infectious disease journal.

[7]  L. Rajmil.  Health measurement scales. A practical guide to their development and use, 3rd ed , 2005 .

[8]  A. Kilbourne,et al.  Are Physician-Derived Disease Severity Indices Associated with Health-Related Quality of Life in Patients with End-Stage Liver Disease? , 2004, The American Journal of Gastroenterology.

[9]  M. Ichikawa,et al.  Quality of life among people living with HIV/AIDS in northern Thailand: MOS-HIV Health Survey , 2004, Quality of Life Research.

[10]  Michael Seid,et al.  The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity. , 2003, Ambulatory pediatrics : the official journal of the Ambulatory Pediatric Association.

[11]  S. Skevington,et al.  Measuring Quality of Life in HIV and AIDS: A Review of the Recent Literature , 2003 .

[12]  Michael Seid,et al.  PedsQL™ 4.0: Reliability and Validity of the Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales in Healthy and Patient Populations , 2001, Medical care.

[13]  H. Hjortswang,et al.  The network: a strategy to describe the relationship between quality of life and disease activity. The case of inflammatory bowel disease. , 1999, European journal of gastroenterology & hepatology.

[14]  J. Varni,et al.  The PedsQL: measurement model for the pediatric quality of life inventory. , 1999, Medical care.

[15]  R. Hays,et al.  Associations of clinical parameters with health-related quality of life in hospitalized persons with HIV disease. , 1999, AIDS care.

[16]  D. Harris,et al.  Serum HIV-1 p24 antibody, HIV-1 RNA copy number and CD4 lymphocyte percentage are independently associated with risk of mortality in HIV-1-infected children. National Institute of Child Health and Human Development Intravenous Immunoglobulin Clinical Trial Study Group. , 1999, AIDS.

[17]  J. Lew,et al.  Disease progression in a cohort of infants with vertically acquired HIV infection observed from birth: the Women and Infants Transmission Study (WITS). , 1998, Journal of acquired immune deficiency syndromes and human retrovirology : official publication of the International Retrovirology Association.

[18]  S. Spector,et al.  Predictive value of quantitative plasma HIV RNA and CD4+ lymphocyte count in HIV-infected infants and children. , 1998, JAMA.

[19]  J. Shea,et al.  Performance of a new, HIV/AIDS-targeted quality of life (HAT-QoL) instrument in asymptomatic seropositive individuals , 1997, Quality of Life Research.

[20]  A. Leplège,et al.  Measuring quality of life from the point of view of HIV-positive subjects: the HIV-QL31 , 1997, Quality of Life Research.

[21]  N. Avis,et al.  Use of the MQoL-HIV with asymptomatic HIV-positive patients , 1997, Quality of Life Research.

[22]  S. Hammer,et al.  Measuring quality of life in early HIV disease: the modular approach , 1997, Quality of Life Research.

[23]  A. Wu,et al.  Evidence for reliability, validity and usefulness of the Medical Outcomes Study HIV Health Survey (MOS-HIV) , 1997, Quality of Life Research.

[24]  A. Dazord,et al.  Evaluation of life quality for children infected by HIV: validation of a method and preliminary results. , 1996, Pediatric AIDS and HIV infection.

[25]  J. Osterhaus,et al.  A Development and Validation Process for a Disease-Specific Quality of Life Instrument* , 1996 .

[26]  D. Kanouse,et al.  Comparison of health-related quality of life in clinical trial and nonclinical trial human immunodeficiency virus-infected cohorts. , 1995, Medical care.

[27]  A. Wu,et al.  Functional status of persons with HIV infection in an ambulatory setting. , 1994, Journal of acquired immune deficiency syndromes.

[28]  P. Ganz,et al.  Describing the health-related quality of life impact of HIV infection: Findings from a study using the HIV Overview of Problems—Evaluation System (HOPES) , 1993, Quality of Life Research.

[29]  R. Hays,et al.  Responsiveness to change: an aspect of validity, not a separate dimension , 1992, Quality of Life Research.

[30]  J. Fleishman,et al.  Quality of Life in Persons with Human Immunodeficiency Virus Infection: Measurement by the Medical Outcomes Study Instrument , 1992, Annals of Internal Medicine.

[31]  G. Guyatt,et al.  Issues in quality-of-life measurement in clinical trials. , 1991, Controlled clinical trials.

[32]  N. Lurie,et al.  Measuring Health Changes Among Severely III Patients: The Floor Phenomenon , 1990, Medical care.

[33]  T. O'connor,et al.  Survival in children with perinatally acquired human immunodeficiency virus type 1 infection , 1990, The New England journal of medicine.

[34]  R M Kaplan,et al.  The Quality of Well-Being Scale: Applications in AIDS, Cystic Fibrosis, and Arthritis , 1989, Medical care.

[35]  A. Stewart,et al.  The MOS short-form general health survey. Reliability and validity in a patient population. , 1988, Medical care.

[36]  L. Cronbach.  Coefficient alpha and the internal structure of tests , 1951 .

[37]  J. Varni,et al.  The PedsQL 4.0 Generic Core Scales: sensitivity, responsiveness, and impact on clinical decision-making. , 2002, Journal of behavioral medicine.

[38]  A. Stewart,et al.  Methods of Constructing Health Measures , 1992 .