User’s Guide to Implementing Patient-Reported Outcomes Assessment in Clinical Practice

[1]  A Bowling,et al.  Short Form 36 (SF-36) Health Survey questionnaire: which normative data should be used? Comparisons between the norms provided by the Omnibus Survey in Britain, the Health Survey for England and the Oxford Healthy Life Survey. , 1999, Journal of public health medicine.

[2]  J. Greenhalgh The applications of PROs in clinical practice: what are they, do they work, and why? , 2009, Quality of Life Research.

[3]  D. Berwick The science of improvement. , 2008, JAMA.

[4]  T. Cook,et al.  Quasi-experimentation: Design & analysis issues for field settings , 1979 .

[5]  David Feeny,et al.  Framework to assess the effects of using patient-reported outcome measures in chronic care management , 2014, Quality of Life Research.

[6]  L E Kazis,et al.  Health status reports in the care of patients with rheumatoid arthritis. , 1990, Journal of clinical epidemiology.

[7]  Brian R Ott,et al.  Patient versus informant perspectives of Quality of Life in Mild Cognitive Impairment and Alzheimer's disease , 2004, International journal of geriatric psychiatry.

[8]  Ron D Hays,et al.  Comparison of Mail and Telephone in Assessing Patient Experiences in Receiving Care from Medical Group Practices , 2005, Evaluation & the health professions.

[9]  M B Callahan,et al.  Using quality of life measurement to enhance interdisciplinary collaboration. , 2001, Advances in renal replacement therapy.

[10]  Jon Nicholl,et al.  Testing survey methodology to measure patients' experiences and views of the emergency and urgent care system: telephone versus postal survey , 2010, BMC medical research methodology.

[11]  David Cella,et al.  Assessment is not enough: a randomized controlled trial of the effects of HRQL assessment on quality of life and satisfaction in oncology clinical practice , 2007, Psycho-oncology.

[12]  Karon F. Cook,et al.  Mode effects in the center for epidemiologic studies depression (CES-D) scale: personal digital assistant vs. paper and pencil administration , 2007, Quality of Life Research.

[13]  Amy P Abernethy,et al.  Commentary: encouraging clinicians to incorporate longitudinal patient-reported symptoms in routine clinical practice. , 2011, Journal of oncology practice.

[14]  A. Garratt,et al.  Patient experiences with information in a hospital setting: Associations with coping and self-rated health in chronic illness , 2006, Quality of Life Research.

[15]  Galina Velikova,et al.  Measuring quality of life in routine oncology practice improves communication and patient well-being: a randomized controlled trial. , 2004, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[16]  Sydney M. Dy,et al.  Asking the right questions: investigating needs assessments and health-related quality-of-life questionnaires for use in oncology clinical practice , 2007, Supportive Care in Cancer.

[17]  A Simon Pickard,et al.  Proxy Evaluation of Health-Related Quality of Life: A Conceptual Framework for Understanding Multiple Proxy Perspectives , 2005, Medical care.

[18]  G. Guyatt,et al.  The impact of measuring patient-reported outcomes in clinical practice: a systematic review of the literature , 2008, Quality of Life Research.

[19]  X. Badia,et al.  Effect of Mode of Administration on I–PSS Scores in a Large BPH Patient Population , 2001, European Urology.

[20]  M. Kochen,et al.  A systematic review: how to choose appropriate health-related quality of life (HRQOL) measures in routine general practice? , 2005, Journal of Zhejiang University. Science. B.

[21]  J. Vonk,et al.  Day-to-day measurement of patient-reported outcomes in exacerbations of chronic obstructive pulmonary disease , 2013, International journal of chronic obstructive pulmonary disease.

[22]  Ron D. Hays,et al.  Don’t middle your MIDs: regression to the mean shrinks estimates of minimally important differences , 2014, Quality of Life Research.

[23]  Ron D Hays,et al.  Evaluating the Statistical Significance of Health-Related Quality-Of-Life Change in Individual Patients , 2005, Evaluation & the health professions.

[24]  Gillian King,et al.  The Internet is valid and reliable for child-report: an example using the Activities Scale for Kids (ASK) and the Pediatric Quality of Life Inventory (PedsQL). , 2009, Journal of clinical epidemiology.

[25]  Frank J. Snoek,et al.  Monitoring and Discussing Health-Related Quality of Life in Adolescents With Type 1 Diabetes Improve Psychosocial Well-Being , 2008, Diabetes Care.

[26]  Kathryn M McPherson,et al.  Assessment of quality of life and participation within an outpatient rehabilitation setting , 2009, Disability and rehabilitation.

[27]  Victor M Montori,et al.  Harmonizing and consolidating the measurement of patient-reported information at health care institutions: a position statement of the Mayo Clinic , 2014, Patient related outcome measures.

[28]  D. Osoba,et al.  Translating the science of patient-reported outcomes assessment into clinical practice. , 2007, Journal of the National Cancer Institute. Monographs.

[29]  John Dowling,et al.  Interview vs. paper-and-pencil administration of the McGill pain questionnaire , 1981, PAIN.

[30]  D Feldman-Stewart,et al.  Communicating quality of life information to cancer patients: a study of six presentation formats. , 2005, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[31]  Lotte Haverman,et al.  Effectiveness of a Web-Based Application to Monitor Health-Related Quality of Life , 2013, Pediatrics.

[32]  Lotte Haverman,et al.  Development and implementation of a patient reported outcome intervention (QLIC-ON PROfile) in clinical paediatric oncology practice. , 2010, Patient education and counseling.

[33]  Gordon H Guyatt,et al.  Exploration of the value of health-related quality-of-life information from clinical research and into clinical practice. , 2007, Mayo Clinic proceedings.

[34]  N. Aaronson,et al.  Effects of mode of administration (MOA) on the measurement properties of the EORTC QLQ-C30: a randomized study , 2010, Health and quality of life outcomes.

[35]  Milo A Puhan,et al.  Interviewer versus self-administered health-related quality of life questionnaires - Does it matter? , 2011, Health and quality of life outcomes.

[36]  Yang Liu,et al.  PROMIS® Parent Proxy Report Scales: an item response theory analysis of the parent proxy report item banks , 2012, Quality of Life Research.

[37]  R. Gershon,et al.  The future of outcomes measurement: item banking, tailored short-forms, and computerized adaptive assessment , 2007, Quality of Life Research.

[38]  H. Duivenvoorden,et al.  Effectiveness of health-related quality-of-life measurement in clinical practice: a prospective, randomized controlled trial in patients with chronic liver disease and their physicians , 2008, Quality of Life Research.

[39]  P. Fayers,et al.  Evaluating the effectiveness of using PROs in clinical practice: a role for cluster-randomised trials , 2008, Quality of Life Research.

[40]  Richard Norman,et al.  Does mode of administration matter? Comparison of online and face-to-face administration of a time trade-off task , 2010, Quality of Life Research.

[41]  Anthony L Back,et al.  Electronic self-report assessment for cancer and self-care support: results of a multicenter randomized trial. , 2014, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[42]  M. Donaldson,et al.  Taking PROs and patient-centered care seriously: incremental and disruptive ideas for incorporating PROs in oncology practice , 2008, Quality of Life Research.

[43]  Lotte Haverman,et al.  Monitoring health-related quality of life in paediatric practice: development of an innovative web-based application , 2011, BMC pediatrics.

[44]  I J Higginson,et al.  Using quality of life measures in the clinical setting , 2001, BMJ : British Medical Journal.

[45]  Otto B. Walter,et al.  Development and evaluation of a computer adaptive test for ‘Anxiety’ (Anxiety-CAT) , 2007, Quality of Life Research.

[46]  Jonathan Sussman,et al.  Multidisciplinary health care professionals' perceptions of the use and utility of a symptom assessment system for oncology patients. , 2011, Journal of oncology practice.

[47]  C. Dowrick,et al.  Does testing for depression influence diagnosis or management by general practitioners? , 1995, Family practice.

[48]  J H Wasson,et al.  A randomized trial of the use of patient self-assessment data to improve community practices. , 1999, Effective clinical practice : ECP.

[49]  P. Ubel,et al.  Reducing the Influence of Anecdotal Reasoning on People’s Health Care Decisions: Is a Picture Worth a Thousand Statistics? , 2005, Medical decision making : an international journal of the Society for Medical Decision Making.

[50]  L. Kalra,et al.  Who should measure quality of life? , 2001, BMJ : British Medical Journal.

[51]  Matthias Rose,et al.  Logistics of collecting patient-reported outcomes (PROs) in clinical practice: an overview and practical examples , 2009, Quality of Life Research.

[52]  Hua Zheng,et al.  Integrating Patient-reported Outcomes Into Orthopaedic Clinical Practice: Proof of Concept From FORCE-TJR , 2013, Clinical orthopaedics and related research.

[53]  A. Bezjak,et al.  Cancer patients' preferences for communicating clinical trial quality of life information: A qualitative study , 2003, Quality of Life Research.

[54]  N. Aaronson,et al.  Use of health‐related quality‐of‐life assessments in daily clinical oncology nursing practice , 2008, Cancer.

[55]  Michael Friedman,et al.  Developing brief scales for use in clinical practice: the reliability and validity of single-item self-report measures of depression symptom severity, psychosocial impairment due to depression, and quality of life. , 2006, The Journal of clinical psychiatry.

[56]  Kathleen N. Lohr,et al.  Using patient-reported outcomes in clinical practice: challenges and opportunities , 2009, Quality of Life Research.

[57]  Albert W Wu,et al.  When using patient-reported outcomes in clinical practice, the measure matters: a randomized controlled trial. , 2014, Journal of oncology practice.

[58]  Victor M Montori,et al.  Perspective: The Role of Numeracy in Health Care , 2008, Journal of health communication.

[59]  F Davidoff,et al.  Toward stronger evidence on quality improvement. Draft publication guidelines: the beginning of a consensus project , 2005, Quality and Safety in Health Care.

[60]  Sherry Holcomb,et al.  Validation of the EQ-5D quality of life instrument in patients after myocardial infarction , 2005, Quality of Life Research.

[61]  Qiuling Shi,et al.  Automated symptom alerts reduce postoperative symptom severity after cancer surgery: a randomized controlled clinical trial. , 2011, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[62]  A Donner,et al.  Statistical considerations in the design and analysis of community intervention trials. , 1996, Journal of clinical epidemiology.

[63]  C. McHorney,et al.  Health status assessment methods for adults: past accomplishments and future challenges. , 1999, Annual review of public health.

[64]  References , 1971 .

[65]  Sheilah Hogg-Johnson,et al.  Minimal change is sensitive, less specific to recovery: a diagnostic testing approach to interpretability. , 2011, Journal of clinical epidemiology.

[66]  N. Aaronson,et al.  Health-related quality-of-life assessments and patient-physician communication: a randomized controlled trial. , 2002, JAMA.

[67]  M. Stek,et al.  The American Urological Association symptom index: does mode of administration affect its psychometric properties? , 1995, The Journal of urology.

[68]  Amy P Abernethy,et al.  Supporting clinical practice decisions with real-time patient-reported outcomes. , 2011, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[69]  Simon Gilbody,et al.  Should we screen for depression? , 2006, BMJ : British Medical Journal.

[70]  David Feeny,et al.  Assessing the use of health-related quality of life measures in the routine clinical care of lung-transplant patients , 2010, Quality of Life Research.

[71]  Lisa M. Schwartz,et al.  The Role of Numeracy in Understanding the Benefit of Screening Mammography , 1997, Annals of Internal Medicine.

[72]  R. Sheldon,et al.  Statistical issues encountered in the comparison of health-related quality of life in diseased patients to published general population norms: problems and solutions. , 1999, Journal of clinical epidemiology.

[73]  Christopher J. McCarthy,et al.  Paper-and-Pencil Or Online? , 2002, Assessment.

[74]  J. Ankri,et al.  Agreement between patients' and proxies' reports of quality of lifein Alzheimer's disease , 2004, Quality of Life Research.

[75]  B. Parasuraman,et al.  Electronic Versus Paper Questionnaires: A Further Comparison in Persons with Asthma , 2003, The Journal of asthma : official journal of the Association for the Care of Asthma.

[76]  M. Donaldson,et al.  Using patient-reported outcomes in clinical oncology practice: benefits, challenges and next steps , 2006, Expert review of pharmacoeconomics & outcomes research.

[77]  Albert W Wu,et al.  What can I do? Recommendations for responding to issues identified by patient-reported outcomes assessments used in clinical practice. , 2012, The journal of supportive oncology.

[78]  D. Campbell,et al.  EXPERIMENTAL AND QUASI-EXPERIMENT Al DESIGNS FOR RESEARCH , 2012 .

[79]  R. Hays,et al.  Prospects and challenges in using patient-reported outcomes in clinical practice , 2008, Quality of Life Research.

[80]  F. Davidoff,et al.  What is “quality improvement” and how can it transform healthcare? , 2007, Quality and Safety in Health Care.

[81]  L W Chambers,et al.  Sensitivity to Change and the Effect of Mode of Administration on Health Status Measurement , 1987, Medical care.

[82]  David Feeny,et al.  Effects of mode and order of administration on generic health-related quality of life scores. , 2009, Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research.

[83]  Lea Maes,et al.  Comparison of a computer-administered and paper-and-pencil-administered questionnaire on health and lifestyle behaviors. , 2006, The Journal of adolescent health : official publication of the Society for Adolescent Medicine.

[84]  M. Donaldson,et al.  Use of Patient‐Reported Outcomes in Clinical Oncology Practice: A Nonvisit Approach to Patient Care Based on the IOM Report , 2007, The Journal of ambulatory care management.

[85]  H A Guess,et al.  Does the mode of questionnaire administration affect the reporting of urinary symptoms? , 1995, Urology.

[86]  Nicholas J. Talley,et al.  Patient reported outcomes in gastroesophageal reflux disease: An overview of available measures , 2005, Quality of Life Research.

[87]  Aziz Sheikh,et al.  Concordance between supervised and postal administration of the Mini Asthma Quality of Life Questionnaire (MiniAQLQ) and Asthma Control Questionnaire (ACQ) was very high. , 2005, Journal of clinical epidemiology.

[88]  Bernhard Holzner,et al.  Do neurooncological patients and their significant others agree on quality of life ratings? , 2009, Health and quality of life outcomes.

[89]  Matthias Rose,et al.  Method of administration of PROMIS scales did not significantly impact score level, reliability, or validity. , 2014, Journal of clinical epidemiology.

[90]  Julian Thumboo,et al.  Quality of life scores differed according to mode of administration in a review of three major oncology questionnaires. , 2006, Journal of clinical epidemiology.

[91]  W. Kapoor,et al.  Patient Difficulty Using Tablet Computers to Screen in Primary Care , 2008, Journal of General Internal Medicine.

[92]  L. Delbeke Quasi-experimentation - design and analysis issues for field settings - cook,td, campbell,dt , 1980 .

[93]  Ethan Basch,et al.  Electronic patient‐reported outcome systems in oncology clinical practice , 2012, CA: a cancer journal for clinicians.

[94]  R Lilford,et al.  Effects of redesigned community postnatal care on womens' health 4 months after birth: a cluster randomised controlled trial , 2002, The Lancet.

[95]  Gary Donaldson,et al.  Patient-reported outcomes and the mandate of measurement , 2008, Quality of Life Research.

[96]  C. Shaw,et al.  Mode of data elicitation, acquisition and response to surveys: a systematic review. , 2012, Health technology assessment.

[97]  A Smith,et al.  Feasibility and compliance of automated measurement of quality of life in oncology practice. , 2003, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[98]  David M. Murray,et al.  Design and Analysis of Group- Randomized Trials , 1998 .

[99]  E H Wagner,et al.  Chronic disease management: what will it take to improve care for chronic illness? , 1998, Effective clinical practice : ECP.

[100]  Rachel Hess,et al.  A Randomized Controlled Pilot Trial of the Functional Assessment Screening Tablet to Engage Patients at the Point of Care , 2014, Journal of General Internal Medicine.

[101]  Janel Hanmer,et al.  Mode of Administration Is Important in US National Estimates of Health-Related Quality of Life , 2007, Medical care.

[102]  Joseph C Cappelleri,et al.  Applying quality-of-life data formally and systematically into clinical practice. , 2007, Mayo Clinic proceedings.

[103]  A Simon Pickard,et al.  Proxy Assessment of Health-Related Quality of Life in African American and White Respondents With Prostate Cancer: Perspective Matters , 2009, Medical care.

[104]  Vilai Kuptniratsaikul,et al.  Anxiety and depressive symptoms after stroke in 9 rehabilitation centers. , 2008, Journal of the Medical Association of Thailand = Chotmaihet thangphaet.

[105]  Joanne Greenhalgh,et al.  Tacit and encoded knowledge in the use of standardised outcome measures in multidisciplinary team decision making: a case study of in-patient neurorehabilitation. , 2008, Social science & medicine.

[106]  Bryant T Karras,et al.  Enhancing patient-provider communication with the electronic self-report assessment for cancer: a randomized trial. , 2011, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[107]  Yvonne Birks,et al.  Pitfalls in the interpretation of standardised quality of life instruments for individual patients? A qualitative study in colorectal cancer , 2013, Quality of Life Research.

[108]  G R Baker,et al.  Strengthening the contribution of quality improvement research to evidence based health care , 2006, Quality and Safety in Health Care.

[109]  A. Wu,et al.  The effect of mode of administration on Medical Outcomes Study health ratings and EuroQol scores in AIDS , 2004, Quality of Life Research.

[110]  Albert W Wu,et al.  The Use of Patient-reported Outcomes (PRO) Within Comparative Effectiveness Research: Implications for Clinical Practice and Health Care Policy , 2012, Medical care.

[111]  Eugene C Nelson,et al.  Good Measurement for Good Improvement Work , 2004, Quality management in health care.

[112]  Jeffrey W. Jutai,et al.  Psychosocial Impact of Assistive Devices Scale , 2016 .

[113]  H. Putter,et al.  Effectiveness of the introduction of an International Classification of Functioning, Disability and Health-based rehabilitation tool in multidisciplinary team care in patients with rheumatoid arthritis. , 2007, Arthritis and rheumatism.

[114]  Allan Donner,et al.  Design and Analysis of Cluster Randomization Trials in Health Research , 2001 .

[115]  R L Street,et al.  Using Health Status Surveys in Medical Consultations , 1994, Medical care.

[116]  K Magruder-Habib,et al.  Improving Physicians' Recognition and Treatment of Depression in General Medical Care: Results From a Randomized Clinical Trial , 1990, Medical care.

[117]  Lars Hansson,et al.  Structured patient–clinician communication and 1-year outcome in community mental healthcare , 2007, British Journal of Psychiatry.

[118]  N K Aaronson,et al.  Quality of life assessment in daily clinical oncology practice: a feasibility study. , 1998, European journal of cancer.

[119]  Joann G. Elmore,et al.  Open Notes: Doctors and Patients Signing On , 2010, Annals of Internal Medicine.

[120]  J. Foley,et al.  Redefining functionality and treatment efficacy in multiple sclerosis , 2009, Neurology.

[121]  L. von Essen,et al.  Measuring health-related quality of life in adolescents and young adults: Swedish normative data for the SF-36 and the HADS, and the influence of age, gender, and method of administration , 2006, Health and quality of life outcomes.

[122]  S. Acaster,et al.  Methods for interpreting change over time in patient-reported outcome measures , 2013, Quality of Life Research.

[123]  G. Kemmler,et al.  A new approach to combining clinical relevance and statistical significance for evaluation of quality of life changes in the individual patient. , 2010, Journal of clinical epidemiology.

[124]  John H Wasson,et al.  A Controlled Trial of Methods for Managing Pain in Primary Care Patients With or Without Co-Occurring Psychosocial Problems , 2006, The Annals of Family Medicine.

[125]  P S Kurtin,et al.  Monitoring dialysis patients' health status. , 1994, American journal of kidney diseases : the official journal of the National Kidney Foundation.

[126]  David Cella,et al.  A Randomized Study of Electronic Diary versus Paper and Pencil Collection of Patient-Reported Outcomes in Patients with Non-Small Cell Lung Cancer , 2008, The patient.

[127]  V. Duyan,et al.  Effects of sociodemographic characteristics, illness process, and social support on the levels of perceived quality of life in veterans. , 2006, Military medicine.

[128]  Albert W. Wu,et al.  Advances in the Use of Patient Reported Outcome Measures in , 2013 .

[129]  Sandra E. Black,et al.  Utility-based Quality of Life Measures in Alzheimer’s Disease , 2006, Quality of Life Research.

[130]  Chih-Hung Chang,et al.  Patient-reported outcomes measurement and management with innovative methodologies and technologies , 2007, Quality of Life Research.

[131]  Robyn Attewell,et al.  A comparison of an electronic version of the SF-36 General Health Questionnaire to the standard paper version , 2002, Quality of Life Research.

[132]  Sydney M. Dy,et al.  Needs assessments can identify scores on HRQOL questionnaires that represent problems for patients: an illustration with the Supportive Care Needs Survey and the QLQ-C30 , 2010, Quality of Life Research.

[133]  Donald Berwick,et al.  Developing and Testing Changes in Delivery of Care , 1998, Annals of Internal Medicine.

[134]  Laurence H. Baker,et al.  Clinical Trials: Design, Conduct, and Analysis , 1987 .

[135]  P. Sandercock,et al.  Framework for design and evaluation of complex interventions to improve health , 2000, BMJ : British Medical Journal.

[136]  Roxanne Jensen,et al.  PatientViewpoint: a website for patient-reported outcomes assessment , 2009, Quality of Life Research.

[137]  Jeanne M. Landgraf,et al.  Feasibility, reliability, and validity of adolescent health status measurement by the Child Health Questionnaire Child Form (CHQ-CF): internet administration compared with the standard paper version , 2007, Quality of Life Research.

[138]  P. Ewell No Significant Difference , 1999 .

[139]  R. Fitzpatrick,et al.  Impact of patient-reported outcome measures on routine practice: a structured review. , 2006, Journal of evaluation in clinical practice.

[140]  ZOE HILDON,et al.  Impact of format and content of visual display of data on comprehension, choice and preference: a systematic review. , 2012, International journal for quality in health care : journal of the International Society for Quality in Health Care.

[141]  Hiroko Yamashita,et al.  Using the EORTC-QLQ-C30 in clinical practice for patient management: identifying scores requiring a clinician’s attention , 2013, Quality of Life Research.

[142]  J. Fortenberry,et al.  Comparability of a computer-assisted versus written method for collecting health behavior information from adolescent patients. , 1999, The Journal of adolescent health : official publication of the Society for Adolescent Medicine.

[143]  Reyis Kurt,et al.  Computer-assisted assessment of depression and function in older primary care patients , 2004, Comput. Methods Programs Biomed..

[144]  K. Meadows,et al.  The effectiveness of the use of patient-based measures of health in routine practice in improving the process and outcomes of patient care: a literature review. , 1999, Journal of evaluation in clinical practice.

[145]  Ramesh Farzanfar,et al.  Automated monitoring of symptoms during ambulatory chemotherapy and oncology providers’ use of the information: a randomized controlled clinical trial , 2014, Supportive Care in Cancer.

[146]  C. Moinpour,et al.  Development, feasibility and compliance of a web-based system for very frequent QOL and symptom home self-assessment after hematopoietic stem cell transplantation , 2005, Quality of Life Research.

[147]  G J Martin,et al.  Impact of screening for mental health concerns on health service utilization and functional status in primary care patients. , 1996, Archives of internal medicine.

[148]  Ron D Hays,et al.  Equivalence of mail and telephone responses to the CAHPS Hospital Survey. , 2005, Health services research.

[149]  M. Eaton,et al.  Surrogate decision making for genetic testing for Alzheimer disease. , 1999, Genetic testing.

[150]  David Cella,et al.  Recommendations on evidence needed to support measurement equivalence between electronic and paper-based patient-reported outcome (PRO) measures: ISPOR ePRO Good Research Practices Task Force report. , 2009, Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research.

[151]  Michael Seid,et al.  Reliability, Validity, and Responsiveness of the Pediatric Quality of Life Inventory™ (PedsQL™) Generic Core Scales and Asthma Symptoms Scale in Vulnerable Children With Asthma , 2010, The Journal of asthma : official journal of the Association for the Care of Asthma.

[152]  Ingrid Mühlhauser,et al.  What constitutes evidence-based patient information? Overview of discussed criteria. , 2010, Patient education and counseling.

[153]  J Alonso,et al.  Provision of feedback on perceived health status to health care professionals: a systematic review of its impact. , 2000, Medical care.

[154]  W. Gaissmaier,et al.  Numbers can be worth a thousand pictures: individual differences in understanding graphical and numerical representations of health-related information. , 2012, Health psychology : official journal of the Division of Health Psychology, American Psychological Association.

[155]  Sebastian Muller,et al.  Statistical Design For Research , 2016 .

[156]  G P Samsa,et al.  Are health-related quality-of-life measures affected by the mode of administration? , 1996, Journal of clinical epidemiology.

[157]  Hadi Kharrazi,et al.  Measure once, cut twice d adding patient-reported outcome measures to the electronic health record for comparative effectiveness research , 2013 .

[158]  J. Verhoef,et al.  The impact of introducing an ICF-based rehabilitation tool on staff satisfaction with multidisciplinary team care in rheumatology: an exploratory study , 2008, Clinical rehabilitation.

[159]  J. M. McCoy,et al.  Improving patient quality of life with feedback to physicians about functional status , 1995, Journal of General Internal Medicine.

[160]  Joanne Greenhalgh,et al.  The use of patient reported outcome measures in routine clinical practice: lack of impact or lack of theory? , 2005, Social science & medicine.