Social interaction in online support groups: Preference for online social interaction over offline social interaction

The purpose of the current study was to identify potential factors leading to preference for social interaction in online support groups (OSGs) over offline interaction. By identifying such factors, the current study advances understanding of the way patients use the Internet as a supportive resource and integrate support from offline and online relationships. An online survey was conducted with current users of health-related OSGs (N=158). Findings show that those who were dissatisfied with the support they received from their current offline contacts were more likely to prefer social interaction in OSGs. Such a preference was prominent among those who built deeper social relationships in OSGs. Results suggest that some people develop a preference for social interaction in OSGs over offline interaction and use computer-mediated relationships as a possible alternative to offline support networks. Healthcare professionals and users as well as designers of OSGs must acknowledge the limits of online support and caution against the possibility of developing excessive reliance on online support resources.

[1]  Daniel W. Russell,et al.  Type of social support and specific stress: Toward a theory of optimal matching. , 1990 .

[2]  Hui-Jung Chang,et al.  Online supportive interactions: Using a network approach to examine communication patterns within a psychosis social support group in Taiwan , 2009, J. Assoc. Inf. Sci. Technol..

[3]  George Demiris,et al.  The diffusion of virtual communities in health care: concepts and challenges. , 2006, Patient education and counseling.

[4]  Abby McCormack.  Individuals With Eating Disorders and the Use of Online Support Groups as a Form of Social Support , 2010, Computers, informatics, nursing : CIN.

[5]  Mohan J. Dutta-Bergman.  Complementarity in Consumption of News Types Across Traditional and New Media , 2004 .

[6]  Khalid M. AlGhamdi,et al.  Internet use by the public to search for health-related information , 2012, Int. J. Medical Informatics.

[7]  M Pilisuk,et al.  Participant assessment of a nonmedical breast cancer support group. , 1997, Alternative therapies in health and medicine.

[8]  W. Galston.  Does the Internet Strengthen Community , 1999 .

[9]  I. Sarason,et al.  Assessing the Quality of Personal Relationships , 1997 .

[10]  P. Greenfield,et al.  Communicating Online: Adolescent Relationships and the Media , 2008 .

[11]  R. Spears,et al.  Paralanguage and social perception in computer‐mediated communication , 1992 .

[12]  R. Cialdini.  Influence: Science and Practice , 1984 .

[13]  L. Festinger.  A Theory of Social Comparison Processes , 1954 .

[14]  Ko de Ruyter,et al.  Beyond the Call of Duty: Why Customers Contribute to Firm-hosted Commercial Online Communities , 2007 .

[15]  H. Adler.  The sociophysiology of caring in the doctor-patient relationship , 2002, Journal of General Internal Medicine.

[16]  J. Lasker,et al.  The Role of an Online Community for People With a Rare Disease: Content Analysis of Messages Posted on a Primary Biliary Cirrhosis Mailinglist , 2005, Journal of medical Internet research.

[17]  David J. Atkin,et al.  Communication Technology and Society: Audience Adoption and Uses , 2002 .

[18]  John Suler,et al.  Fostering empowerment in online support groups , 2008, Comput. Hum. Behav..

[19]  Wendy Samter,et al.  Consistencies in theoretical and naive evaluations of comforting messages , 1985 .

[20]  Rolf Wynna,et al.  Patient Education and Counseling , 2019, The Physician Assistant Student’s Guide to the Clinical Year: Behavioral Health.

[21]  J. Powell,et al.  Primary care Health related virtual communities and electronic support groups : systematic review of the effects of online peer to peer interactions , 2004 .

[22]  Shelley E. Taylor,et al.  Victims' perceptions of social support: what is helpful from whom? , 1990, Journal of personality and social psychology.

[23]  James D. Robinson,et al.  Impersonal, Interpersonal, and Hyperpersonal Social Support: Cancer and Older Adults , 2003, Health communication.

[24]  Ron D. Hays,et al.  The structure of patient satisfaction with outpatient medical care , 1993 .

[25]  Kevin B. Wright,et al.  Health-related Support Groups on the Internet: Linking Empirical Findings to Social Support and Computer-mediated Communication Theory , 2003, Journal of health psychology.

[26]  B. Rimer,et al.  How Cancer Survivors Provide Support on Cancer-Related Internet Mailing Lists , 2007, Journal of medical Internet research.

[27]  Katelyn Y. A. McKenna,et al.  Oxford Handbook of Internet Psychology , 2007 .

[28]  N. Takahashi.  The Emergence of Generalized Exchange , 2000, American Journal of Sociology.

[29]  J. Gavin,et al.  The Presentation of “Pro-Anorexia” in Online Group Interactions , 2008, Qualitative health research.

[30]  T. Nakayama,et al.  Potential Benefits and Harms of a Peer Support Social Network Service on the Internet for People With Depressive Tendencies: Qualitative Content Analysis and Social Network Analysis , 2009, Journal of medical Internet research.

[31]  FRAGMENTED INTIMACY: ADDICTION IN A SOCIAL WORLD , 2009 .

[32]  G. Miller,et al.  Handbook of Interpersonal Communication , 1985 .

[33]  J. Grube,et al.  Developing an optimal match within online communities: an exploration of CMC support communities and traditional support , 2001 .

[34]  Nancy A. Jennings,et al.  Communicating thin: A grounded model of Online Negative Enabling Support Groups in the pro-anorexia movement , 2011, New Media Soc..

[35]  D. R. Lehman,et al.  Recipients' Perceptions of Support Attempts and Attributions for Support Attempts that Fail , 1990 .

[36]  N. Tustin,et al.  The Role of Patient Satisfaction in Online Health Information Seeking , 2010, Journal of health communication.

[37]  Richard L Kravitz,et al.  The Prepared Patient: Information Seeking of Online Support Group Members Before Their Medical Appointments , 2012, Journal of health communication.

[38]  Neil S. Coulson,et al.  Receiving Social Support Online: An Analysis of a Computer-Mediated Support Group for Individuals Living with Irritable Bowel Syndrome , 2005, Cyberpsychology Behav. Soc. Netw..

[39]  R. Kravitz,et al.  Lingering questions and doubts: online information-seeking of support forum members following their medical visits. , 2011, Patient education and counseling.

[40]  Vasja Vehovar,et al.  The social support networks of internet users , 2006, New Media Soc..

[41]  Jiran Hou,et al.  The Role of Provider–Patient Communication and Trust in Online Sources in Internet Use for Health-Related Activities , 2010, Journal of health communication.

[42]  Erina L. MacGeorge,et al.  Understanding Advice in Supportive Interactions: Beyond the Facework and Message Evaluation Paradigm. , 2004 .

[43]  V. Helgeson,et al.  Group support interventions for women with breast cancer: who benefits from what? , 2000, Health psychology : official journal of the Division of Health Psychology, American Psychological Association.

[44]  V. Helgeson,et al.  Education and peer discussion group interventions and adjustment to breast cancer. , 1999, Archives of general psychiatry.

[45]  Vincent R. Waldron,et al.  Communication of social support in computer-mediated groups for people with disabilities. , 1999, Health communication.

[46]  Martin Tanis,et al.  Health-Related On-Line Forums: What's the Big Attraction? , 2008, Journal of health communication.

[47]  Scott E. Caplan.  Problematic Internet use and psychosocial well-being: development of a theory-based cognitive-behavioral measurement instrument , 2002, Comput. Hum. Behav..

[48]  Kristen Campbell Eichhorn,et al.  Soliciting and Providing Social Support Over the Internet: An Investigation of Online Eating Disorder Support Groups , 2008, J. Comput. Mediat. Commun..

[49]  Ronald E. Rice,et al.  Influences, usage, and outcomes of Internet health information searching: Multivariate results from the Pew surveys , 2006, Int. J. Medical Informatics.

[50]  T. Postmes,et al.  Mental Health Support Groups, Stigma, and Self-Esteem: Positive and Negative Implications of Group Identification , 2010 .

[51]  Scott E. Caplan,et al.  The role of facework in younger and older adults’ evaluations of social support messages , 1999 .

[52]  Stephen A. Rains,et al.  Perceptions of Traditional Information Sources and Use of the World Wide Web to Seek Health Information: Findings From the Health Information National Trends Survey , 2007, Journal of health communication.

[53]  G E Grande,et al.  How do patients who participate in cancer support groups differ from those who do not? , 2006, Psycho-oncology.

[54]  D. Goldsmith,et al.  Managing Conflicting Goals in Supportive Interaction , 1992 .

[55]  Suzanne Pingree,et al.  An Exploratory Study of Predictors of Participation in a Computer Support Group for Women With Breast Cancer , 2006, Computers, informatics, nursing : CIN.

[56]  I. Sarason,et al.  General and relationship-based perceptions of social support: are two constructs better than one? , 1991, Journal of personality and social psychology.

[57]  C. V. van Uden-Kraan,et al.  Self-Reported Differences in Empowerment Between Lurkers and Posters in Online Patient Support Groups , 2008, Journal of medical Internet research.

[58]  L. Siu,et al.  Impact of the media and the internet on oncology: survey of cancer patients and oncologists in Canada. , 2001, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[59]  David B Buller,et al.  Attributes of Interactive Online Health Information Systems , 2005, Journal of medical Internet research.

[60]  Jan Marco Leimeister,et al.  Designing and implementing virtual patient support communities: A German case study , 2006 .

[61]  Chul-Joo Lee,et al.  Does the Internet Displace Health Professionals? , 2008, Journal of health communication.

[62]  J. Walther.  Computer-Mediated Communication , 1996 .

[63]  N. Coulson,et al.  Accessing dental anxiety online support groups: an exploratory qualitative study of motives and experiences. , 2007, Patient education and counseling.

[64]  Oliver Ommen,et al.  Trust, social support and patient type--associations between patients perceived trust, supportive communication and patients preferences in regard to paternalism, clarification and participation of severely injured patients. , 2008, Patient education and counseling.

[65]  J. Powell,et al.  “Making it All Normal”: The Role of the Internet in Problematic Pregnancy , 2009, Qualitative health research.

[66]  Eliot Freidson,et al.  The Reorganization of the Medical Profession , 1940 .

[67]  Kirk W. Duthler.  The Politeness of Requests Made Via Email and Voicemail: Support for the Hyperpersonal Model , 2006, J. Comput. Mediat. Commun..

[68]  Bret R. Shaw,et al.  Empowering Processes and Outcomes of Participation in Online Support Groups for Patients With Breast Cancer, Arthritis, or Fibromyalgia , 2008, Qualitative health research.

[69]  E. Freidson.  The Changing Nature of Professional Control , 1984 .

[70]  Martin Tanis.  Online social support groups , 2009 .

[71]  Scott E. Caplan.  Preference for Online Social Interaction , 2003, Commun. Res..

[72]  Irwin G. Sarason,et al.  A Brief Measure of Social Support: Practical and Theoretical Implications , 1987 .

[73]  P. Greenfield,et al.  Online Communication and Adolescent Relationships , 2008, The Future of children.

[74]  D W Light,et al.  Professional dynamics and the changing nature of medical work. , 1995, Journal of health and social behavior.

[75]  Kevin O. Hwang,et al.  Measuring Social Support for Weight Loss in an Internet Weight Loss Community , 2011, Journal of health communication.

[76]  E. Bernstam,et al.  Accuracy and self correction of information received from an internet breast cancer list: content analysis , 2006, BMJ : British Medical Journal.

[77]  Qimei Chen,et al.  Internet Community Group Participation: Psychosocial Benefits for Women with Breast Cancer , 2005, J. Comput. Mediat. Commun..

[78]  Johannes Siegrist,et al.  Reported nonreciprocity of social exchange and depressive symptoms. Extending the model of effort-reward imbalance beyond work. , 2003, Journal of psychosomatic research.