A Call to Action: Building a Translational Inclusion Team Science in Physical Activity, Nutrition, and Obesity Management for Children with Disabilities

The growing evidence base of childhood obesity prevention and treatment programs do not adequately consider how to adapt these programs for children with disabilities. We propose a Call to Action for health researchers who conduct studies focused on the general population (i.e., without a disability) to work closely with disability researchers to adapt their programs (e.g., obesity management, increased physical activity, and caregiver training in diet and nutrition) to be relevant to both groups. We refer to this approach as inclusion team science. The hope for this Call to Action is that there will be greater synergy between researchers who have high levels of expertise in a specialty area of health (but little or no knowledge of how to adapt their program for children with disabilities) to work more closely with researchers who have a high level of expertise in adapting evidence-based health promotion recommendations and strategies for children with disabilities. Together, these two areas of expertise will lead to inclusive physical activity and nutrition programs for all children.

[1]  J. Jutai,et al.  Age-related health risk behaviors of adolescents with physical disabilities , 2004, Sozial- und Präventivmedizin.

[2]  L. Snetselaar,et al.  Motivational Interviewing and Dietary Counseling for Obesity in Primary Care: An RCT , 2015, Pediatrics.

[3]  M. Greaney,et al.  Prevalence of physical activity, screen time, and obesity among US children by the service type of special health care needs. , 2014, Disability and health journal.

[4]  R. Simeonsson,et al.  Secondary conditions in children with disabilities: spina bifida as a case example. , 2002, Mental retardation and developmental disabilities research reviews.

[5]  E. Jelalian,et al.  Accelerating Progress in Obesity Prevention: Solving the Weight of the Nation , 2012 .

[6]  Colin L. Dyer,et al.  What is an RCT , 2006 .

[7]  Jennifer L Rowland,et al.  Physical activity for youth with disabilities: A critical need in an underserved population , 2008, Developmental neurorehabilitation.

[8]  CDC's Winnable Battles: Improved Nutrition, Physical Activity, and Decreased Obesity , 2013 .

[9]  J. Rimmer,et al.  Effects of Disability-Associated Low Energy Expenditure Deconditioning Syndrome , 2012, Exercise and sport sciences reviews.

[10]  J. Ioannidis,et al.  Evidence-based de-implementation for contradicted, unproven, and aspiring healthcare practices , 2014, Implementation Science.

[11]  Marta Elena Losa-Iglesias,et al.  Footwear used by older people and a history of hyperkeratotic lesions on the foot , 2017, Medicine.

[12]  Laura Kettel Khan,et al.  Recommended community strategies and measurements to prevent obesity in the United States. , 2009, MMWR. Recommendations and reports : Morbidity and mortality weekly report. Recommendations and reports.

[13]  J. Darrah,et al.  Evaluation of a Community Fitness Program for Adolescents with Cerebral Palsy , 1999 .

[14]  C. Galasko,et al.  Physical activity for people with disabilities , 2012, The Lancet.

[15]  Ian D Graham,et al.  Guideline adaptation and implementation planning: a prospective observational study , 2013, Implementation Science.

[16]  Ian D Graham,et al.  Adapting National and International Leg Ulcer Practice Guidelines for Local Use: The Ontario Leg Ulcer Community Care Protocol , 2005, Advances in skin & wound care.

[17]  J. Rimmer.  The Conspicuous Absence of People with Disabilities in Public Fitness and Recreation Facilities: Lack of Interest or Lack of Access? , 2005, American journal of health promotion : AJHP.

[18]  Dale A. Ulrich,et al.  Physical Activity Benefits of Learning to Ride a Two-Wheel Bicycle for Children With Down Syndrome: A Randomized Trial , 2011, Physical Therapy.

[19]  K. Burns,et al.  Model for bridging the translational "valleys of death" in spinal cord injury research , 2014 .

[20]  L. Bandini,et al.  GRAIDs: a framework for closing the gap in the availability of health promotion programs and interventions for people with disabilities , 2014, Implementation Science.

[21]  J. Rimmer,et al.  Physical fitness levels of persons with cerebral palsy. , 2001, Developmental medicine and child neurology.

[22]  Hsin-Chieh Yeh,et al.  Effect of the 2011 vs 2003 duty hour regulation-compliant models on sleep duration, trainee education, and continuity of patient care among internal medicine house staff: a randomized trial. , 2013, JAMA internal medicine.

[23]  J. Dunn,et al.  Special Physical Education , 2005 .

[24]  Lynn S Anderson,et al.  Physical activity for children and adults with disabilities: An issue of "amplified" importance. , 2010, Disability and health journal.

[25]  France Légaré,et al.  Adapting clinical practice guidelines to local context and assessing barriers to their use , 2010, Canadian Medical Association Journal.

[26]  M. Fragala-Pinkham,et al.  The Scope of Pediatric Physical Therapy Practice in Health Promotion and Fitness for Youth With Disabilities , 2015, Pediatric physical therapy : the official publication of the Section on Pediatrics of the American Physical Therapy Association.

[27]  P. Carbone,et al.  Promoting the Participation of Children With Disabilities in Sports, Recreation, and Physical Activities , 2008, Pediatrics.

[28]  Connie C Johnson,et al.  The Benefits of Physical Activity for Youth with Developmental Disabilities: A Systematic Review , 2009, American journal of health promotion : AJHP.

[29]  Deborah Klein Walker,et al.  Persons with disabilities as an unrecognized health disparity population. , 2015, American journal of public health.

[30]  E. Mohammadi,et al.  Barriers and facilitators related to the implementation of a physiological track and trigger system: A systematic review of the qualitative evidence , 2017, International journal for quality in health care : journal of the International Society for Quality in Health Care.

[31]  L. Bandini,et al.  Dietary Patterns and Body Mass Index in Children with Autism and Typically Developing Children. , 2012, Research in autism spectrum disorders.