Technology-based programs to support forms of leisure engagement and communication for persons with multiple disabilities: Two single-case studies

Objective: To extend the assessment of technology-based programs for promoting stimulus choice and staff/caregiver calls or radio operation and text messaging. Method: In Study I, the program involved a portable computer, commercial software, and a microswitch to allow a man with motor impairment and moderate intellectual disability to choose among preferred stimuli (e.g., songs and film clips) and persons to call. In Study II, the programs involved (a) a radio device and an electronic control unit or (b) a net-book computer and a global system for mobile communication. A woman with blindness and moderate intellectual disability used a microswitch to operate the radio or send and listen to text messages. Results: The participants succeeded in using the technology-aided programs through simple microswitch activations involving partial hand closure (Study I) or hand pressure (Study II). Conclusion: Technology-based programs can provide persons with multiple disabilities relevant leisure and communication opportunities.

[1]  P. Vietze,et al.  Computer‐assisted learning for adults with profound multiple disabilities , 2004 .

[2]  Nirbhay N. Singh,et al.  Persons with multiple disabilities accessing stimulation and requesting social contact via microswitch and VOCA devices: new research evaluation and social validation. , 2009, Research in developmental disabilities.

[3]  Nirbhay N. Singh,et al.  Enabling two women with blindness and additional disabilities to make phone calls independently via a computer-aided telephone system , 2011, Developmental neurorehabilitation.

[4]  Kelly S. McClure,et al.  Emotion Regulation and Intellectual Disability , 2009 .

[5]  Russell Lang,et al.  The use of speech generating devices in communication interventions for individuals with developmental disabilities: A review of the literature , 2010, Developmental neurorehabilitation.

[6]  Per-Olof Östergren,et al.  The right to assistive technology: for whom, for what, and by whom? , 2011 .

[7]  J. Davidson,et al.  Does the daily choice making of adults with intellectual disability meet the normalisation principle? , 2005 .

[8]  D. Eggett,et al.  Contributions of Family Leisure to Family Functioning Among Families that Include Children with Developmental Disabilities , 2009 .

[9]  Regina Stevens-Ratchford,et al.  Visually Impaired Older Adults and Home-Based Leisure Activities: The Effects of Person-Environment Congruence , 2004 .

[10]  J. Borg,et al.  Relationship between occupational gaps in everyday life, depressive mood and life satisfaction after acquired brain injury. , 2009, Journal of rehabilitation medicine.

[11]  Maria Larsson Lund,et al.  The complexity of participation in daily life: a qualitative study of the experiences of persons with acquired brain injury. , 2008, Journal of rehabilitation medicine.

[12]  Nirbhay N. Singh,et al.  Communication opportunities via special messaging technology for two post-coma persons with multiple disabilities. , 2011, Research in developmental disabilities.

[13]  Nirbhay N. Singh,et al.  Technology-assisted programmes to promote leisure engagement in persons with acquired brain injury and profound multiple disabilities: two case studies , 2011, Disability and rehabilitation. Assistive technology.

[14]  Chris Oliver,et al.  The expression and assessment of emotions and internal states in individuals with severe or profound intellectual disabilities. , 2011, Clinical psychology review.

[15]  C. Vlaskamp,et al.  Leisure provision for persons with profound intellectual and multiple disabilities: quality time or killing time? , 2005, Journal of intellectual disability research : JIDR.

[16]  N. Peterson,et al.  Promoting Leisure Physical Activity Participation among Adults with Intellectual Disabilities: Validation of Self-Efficacy and Social Support Scales. , 2009 .

[17]  R. Henson,et al.  Social Validation of Evidence-Based Practices in Autism by Parents, Teachers, and Administrators , 2008, Journal of autism and developmental disorders.

[18]  Jeff Sigafoos,et al.  A special messaging technology for two persons with acquired brain injury and multiple disabilities , 2010, Brain injury.

[19]  Julie Durando A Survey on Literacy Instruction for Students with Multiple Disabilities , 2008 .

[20]  Jane Bache,et al.  Access to computer-based leisure for individuals with profound disabilities. , 2008, NeuroRehabilitation.

[21]  Nirbhay N. Singh,et al.  Microswitch- and VOCA-assisted programs for two post-coma persons with minimally conscious state and pervasive motor disabilities. , 2009, Research in developmental disabilities.

[22]  Post-coma persons emerged from a minimally conscious state and showing multiple disabilities learn to manage a radio-listening activity. , 2012, Research in developmental disabilities.

[23]  W. Mann,et al.  Cost, Utilization, and Policy of Provision of Assistive Technology Devices to Veterans Poststroke by Medicare and VA , 2010, Medical care.

[24]  Alan E. Kazdin,et al.  Behavior modification in applied settings, 6th ed. , 1989 .

[25]  L. Nota,et al.  A Multivariate Analysis of the Self-Determination of Adolescents , 2011 .

[26]  Nirbhay N. Singh,et al.  Special text messaging communication systems for persons with multiple disabilities , 2012, Developmental neurorehabilitation.

[27]  Marta Olivetti Belardinelli,et al.  An overview of intervention options for promoting adaptive behavior of persons with acquired brain injury and minimally conscious state. , 2010, Research in developmental disabilities.

[28]  S. Reynolds,et al.  Cognitive Therapy Abilities in People with Learning Disabilities , 2006 .

[29]  M. Elias The Connection between Social-Emotional Learning and Learning Disabilities: Implications for Intervention , 2004 .

[30]  Debora M. Kagohara,et al.  Three Students with Developmental Disabilities Learn to Operate an iPod to Access Age-Appropriate Entertainment Videos , 2011 .

[31]  C. Dunford,et al.  How do Computer Assistive Technologies Enhance Participation in Childhood Occupations for Children with Multiple and Complex Disabilities? A Review of the Current Literature , 2010 .

[32]  Catherine S. Fichten,et al.  Accessibility of e-Learning and Computer and Information Technologies for Students with Visual Impairments in Postsecondary Education , 2009 .

[33]  Audrey A. Trainor,et al.  Self-determination skills and opportunities of adolescents with severe intellectual and developmental disabilities. , 2009, American journal on intellectual and developmental disabilities.

[34]  B. Friedman,et al.  Patient satisfaction, empowerment, and health and disability status effects of a disease management-health promotion nurse intervention among Medicare beneficiaries with disabilities. , 2009, The Gerontologist.

[35]  P Israsena,et al.  A study of low-cost, robust Assistive Listening System (ALS) based on digital wireless technology , 2008, Disability and rehabilitation. Assistive technology.

[36]  Nathan W. Moon,et al.  Wireless Technologies and Accessibility for People With Disabilities: Findings From a Policy Research Instrument , 2008, Assistive technology : the official journal of RESNA.

[37]  J. E. Carr,et al.  Assessing indices of happiness and unhappiness in individuals with developmental disabilities: a review , 2007 .

[38]  D. Barlow,et al.  Single Case Experimental Designs: Strategies for Studying Behavior Change , 1976 .

[39]  Nirbhay N. Singh,et al.  A woman with multiple disabilities uses a VOCA system to request for and access caregiver-mediated stimulation events , 2011 .

[40]  J. Fleming,et al.  Participation in leisure activities during brain injury rehabilitation , 2011, Brain injury.

[41]  L. Nygård,et al.  Technology and everyday functioning in people with intellectual disabilities: a Rasch analysis of the Everyday Technology Use Questionnaire (ETUQ). , 2011, Journal of intellectual disability research : JIDR.

[42]  Patricia Baldwin,et al.  The Importance of Self-Determination to Perceived Quality of Life for Youth and Young Adults With Chronic Conditions and Disabilities , 2010 .

[43]  Nirbhay N. Singh,et al.  Camera-based microswitch technology for eyelid and mouth responses of persons with profound multiple disabilities: two case studies. , 2010, Research in developmental disabilities.

[44]  R. Schalock,et al.  Quality of Life: Its Application to Persons With Intellectual Disabilities and Their Families—Introduction and Overview , 2009 .

[45]  Nirbhay N. Singh,et al.  Post-coma persons with extensive multiple disabilities use microswitch technology to access selected stimulus events or operate a radio device. , 2011, Research in developmental disabilities.

[46]  M. E. Boyle Single Case Experimental Designs: Strategies for Studying Behavior Change , 1983 .

[47]  G Lancioni,et al.  Technology-assisted programs for promoting leisure or communication engagement in two persons with pervasive motor or multiple disabilities , 2011, Disability and rehabilitation. Assistive technology.

[48]  Anita Bundy,et al.  The Treasure in Leisure Activities: Fostering Resilience in Young People who are Blind , 2010 .

[49]  Nirbhay N. Singh,et al.  Extending the Evaluation of Novel Microswitch Technology for Small Responses in Children With Profound Multiple Disabilities , 2007, Assistive technology : the official journal of RESNA.

[50]  C. Harding,et al.  Implementing AAC with children with profound and multiple learning disabilities: a study in rationale underpinning intervention , 2011 .

[51]  K. Storey Review of Research on Self-Management Interventions in Supported Employment Settings for Employees With Disabilities , 2007 .

[52]  Linda C. Mechling,et al.  Comparison of the Effects of Three Approaches on the Frequency of Stimulus Activations, via a Single Switch, by Students With Profound Intellectual Disabilities , 2006 .

[53]  J. Lexell,et al.  The meaning of feeling well in people with moderate or severe traumatic brain injury. , 2009, Journal of clinical nursing.

[54]  M. O'Reilly,et al.  A Comparison of Picture Exchange and Speech-Generating Devices: Acquisition, Preference, and Effects on Social Interaction , 2009, Augmentative and alternative communication.

[55]  T. Chau,et al.  A multiple camera tongue switch for a child with severe spastic quadriplegic cerebral palsy , 2010, Disability and rehabilitation. Assistive technology.

[56]  A. Eagger Rehabilitation , 1960 .

[57]  Mark F. O’Reilly,et al.  Assistive Technology for Behavioral Interventions for Persons with Severe/Profound Multiple Disabilities: A Selective Overview , 2011 .

[58]  D. Biklen,et al.  Independence, Participation, and the Meaning of Intellectual Ability , 2001 .

[59]  Russell Lang,et al.  Two adults with multiple disabilities use a computer-aided telephone system to make phone calls independently. , 2011, Research in developmental disabilities.

[60]  Craig H. Kennedy,et al.  Single-Case Designs for Educational Research , 2004 .

[61]  Joe E Reichle,et al.  Evaluating Assistive Technology in the Education of Persons with Severe Disabilities , 2011 .

[62]  Stacy M. Kelly The Use of Assistive Technology by High School Students with Visual Impairments: A Second Look at the Current Problem , 2011 .