The Psychological Impact on Parents of Children who Receive an Inconclusive Diagnosis for Cystic Fibrosis following Newborn Screening: A Systematic Mini-Review
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[1] M. Moustaki,et al. Children with cystic fibrosis are still receiving inconclusive diagnosis despite undergoing newborn screening , 2023, Acta paediatrica.
[2] A. Tosco,et al. A Multicentre Italian Study on the Psychological Impact of an Inconclusive Cystic Fibrosis Diagnosis after Positive Neonatal Screening , 2023, Children.
[3] T. Keens,et al. High rates of anxiety detected in mothers of children with inconclusive cystic fibrosis screening results. , 2022, Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society.
[4] S. Kirsa,et al. Depression and anxiety prevalence in people with cystic fibrosis and their caregivers: a systematic review and meta-analysis , 2022, Social Psychiatry and Psychiatric Epidemiology.
[5] R. Macleod,et al. Receiving results of uncertain clinical relevance from population genetic screening: systematic review & meta-synthesis of qualitative research , 2022, European Journal of Human Genetics.
[6] O. Sommerburg,et al. Updated guidance on the management of children with cystic fibrosis transmembrane conductance regulator-related metabolic syndrome/cystic fibrosis screen positive, inconclusive diagnosis (CRMS/CFSPID). , 2020, Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society.
[7] K. Southern,et al. Psychological Impact on Parents of an Inconclusive Diagnosis Following Newborn Bloodspot Screening for Cystic Fibrosis: A Qualitative Study , 2019, International journal of neonatal screening.
[8] Roger L. Brown,et al. Impact of Intermediate Cystic Fibrosis Classification on Parents’ Perceptions of Child Vulnerability and Protectiveness , 2019, Journal of family nursing.
[9] Carolyn J. Barg,et al. Psychosocial Response to Uncertain Newborn Screening Results for Cystic Fibrosis , 2017, The Journal of pediatrics.
[10] O. Sommerburg,et al. The expansion and performance of national newborn screening programmes for cystic fibrosis in Europe. , 2017, Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society.
[11] A. Munck,et al. Cystic Fibrosis Transmembrane Conductance Regulator‐Related Metabolic Syndrome and Cystic Fibrosis Screen Positive, Inconclusive Diagnosis , 2017, The Journal of pediatrics.
[12] E. Leray,et al. Psychological effects of false-positive results in cystic fibrosis newborn screening: a two-year follow-up. , 2010, The Journal of pediatrics.
[13] A. Tluczek,et al. When the Cystic Fibrosis Label Does Not Fit: A Modified Uncertainty Theory , 2010, Qualitative health research.
[14] C. Castellani,et al. Inconclusive Cystic Fibrosis neonatal screening results: long‐term psychosocial effects on parents , 2009, Acta paediatrica.
[15] J. Ioannidis,et al. The PRISMA statement for reporting systematic reviews and meta-analyses of studies that evaluate health care interventions: explanation and elaboration. , 2009, Journal of clinical epidemiology.
[16] Rachel Grob. Is my sick child healthy? Is my healthy child sick?: changing parental experiences of cystic fibrosis in the age of expanded newborn screening. , 2008, Social science & medicine.
[17] M. Rosenfeld,et al. Guidelines for Implementation of Cystic Fibrosis Newborn Screening Programs: Cystic Fibrosis Foundation Workshop Report , 2007, Pediatrics.
[18] L. Curnow,et al. Parental attitudes to the identification of their infants as carriers of cystic fibrosis by newborn screening , 2006, Journal of paediatrics and child health.
[19] P M Farrell,et al. Cystic Fibrosis Newborn Screening: Impact on Reproductive Behavior and Implications for Genetic Counseling , 1998, Pediatrics.
[20] P. Farrell,et al. Parents' Knowledge of Neonatal Screening and Response to False‐Positive Cystic Fibrosis Testing , 1992, Journal of developmental and behavioral pediatrics : JDBP.