Patients' strategies for coping with psoriasis

Summary There is a paucity of research on the types of strategies that patients with psoriasis use to cope with the impact of their condition. By contrast there are a number of studies assessing coping by patients with nondermatological disease. The purpose of the present study was to examine strategies for coping in patients with psoriasis and investigate whether they differ as compared with normal controls and patients with other major medical diseases. Two hundred and fifty patients with a definite dermatologist‐confirmed diagnosis of psoriasis participated in this cross‐sectional study. Patients were assessed by psoriasis area severity index and all patients completed the COPE questionnaire and psoriasis disability index. Sixty healthy, control participants completed the COPE questionnaire for comparison purposes. Mean COPE scores from patients with psoriasis were also compared with published COPE scores from other medical diseases. The coping strategies most frequently used by patients with psoriasis were acceptance, planning, active coping and positive reinterpretation. The least frequently used were alcohol and nonprescription drugs, religion, and denial of their condition. Despite reporting greater disability, patients with severe psoriasis did not significantly differ from those with mild/moderate disease in their use of particular forms of coping strategies. Patients with psoriasis as a whole tended to use significantly less active coping strategies, planning, positive reinterpretation and humour when compared with normal controls. There was marked similarity in the frequency of use of particular coping strategies between patients with psoriasis and patients with other medical conditions. Similar types of coping strategies are utilized by patients regardless of whether their illness is visible (psoriasis) invisible (chronic fatigue syndrome, atrial fibrillation), has significant physical impairment (spinal cord injury), or is life‐threatening (cancer, and myocardial infarction). It appears that illness brings with it a generic form of coping that may require shaping to fit the individual demands of diseases such as psoriasis.

[1]  C. Main,et al.  Psychological stress, distress and disability in patients with psoriasis: consensus and variation in the contribution of illness perceptions, coping and alexithymia. , 2002, The British journal of clinical psychology.

[2]  H. Richards,et al.  Psychological influences in psoriasis , 2001, Clinical and experimental dermatology.

[3]  D. D. de Ridder,et al.  Developing interventions for chronically ill patients: is coping a helpful concept? , 2001, Clinical psychology review.

[4]  P. Bennett,et al.  Coping, emotion and perceived health following myocardial infarction: Concurrent and predictive associations , 2000 .

[5]  A. Stanton,et al.  Emotionally expressive coping predicts psychological and physical adjustment to breast cancer. , 2000, Journal of consulting and clinical psychology.

[6]  J. Weinman,et al.  Patients’ illness perceptions and coping as predictors of functional status in psoriasis: a 1‐year follow‐up , 2000, The British journal of dermatology.

[7]  C. Main,et al.  Pathological worrying, illness perceptions and disease severity in patients with psoriasis , 2000 .

[8]  S. Newman,et al.  An examination of the self‐regulation model in atrial fibrillation , 1999 .

[9]  D M Reboussin,et al.  Psoriasis causes as much disability as other major medical diseases. , 1999, Journal of the American Academy of Dermatology.

[10]  I. Wiklund,et al.  Coping and quality of life in patients with psoriasis , 1999, Quality of Life Research.

[11]  C. Main,et al.  What patients with psoriasis believe about their condition. , 1998, Journal of the American Academy of Dermatology.

[12]  J. Hazes,et al.  Illness perceptions, coping and functioning in patients with rheumatoid arthritis, chronic obstructive pulmonary disease and psoriasis. , 1998, Journal of psychosomatic research.

[13]  C. Main,et al.  Quality of life in patients with psoriasis: the contribution of clinical variables and psoriasis‐specific stress , 1997, The British journal of dermatology.

[14]  C. Main,et al.  Assessing illness-related stress in psoriasis: the psychometric properties of the Psoriasis Life Stress Inventory. , 1997, Journal of psychosomatic research.

[15]  G. Jemec,et al.  Coping and psoriasis – a framework for targeted intervention , 1996 .

[16]  P. Kennedy,et al.  Traumatic spinal cord injury and psychological impact: a cross-sectional analysis of coping strategies. , 1995, The British journal of clinical psychology.

[17]  W. Weir,et al.  Coping with chronic fatigue syndrome: illness responses and their relationship with fatigue, functional impairment and emotional status , 1995, Psychological Medicine.

[18]  E. Coles,et al.  The effect of severe psoriasis on the quality of life of 369 patients , 1995, The British journal of dermatology.

[19]  C. Carver,et al.  How coping mediates the effect of optimism on distress: a study of women with early stage breast cancer. , 1993, Journal of personality and social psychology.

[20]  G. Kent,et al.  The Psoriasis Disability Index—further analyses , 1993, Clinical and experimental dermatology.

[21]  N. Schork,et al.  SUICIDAL IDEATION IN PSORIASIS , 1993, International journal of dermatology.

[22]  D. Luscombe,et al.  Validation of Sickness Impact Profile and Psoriasis Disability Index in psoriasis , 1990, The British journal of dermatology.

[23]  C. Carver,et al.  Assessing coping strategies: a theoretically based approach. , 1989, Journal of personality and social psychology.

[24]  Bruce G. Link,et al.  Feelings of stigmatization in patients with psoriasis. , 1989, Journal of the American Academy of Dermatology.

[25]  A. Finlay,et al.  Psoriasis‐an index of disability , 1987, Clinical and experimental dermatology.

[26]  D. Holt,et al.  Planning and Analysis of Observational Studies. , 1983 .

[27]  C. Main,et al.  The contribution of perceptions of stigmatisation to disability in patients with psoriasis. , 2001, Journal of psychosomatic research.

[28]  T Fredriksson,et al.  Severe psoriasis--oral therapy with a new retinoid. , 1978, Dermatologica.