Providing Support for Caregiver Communication Burden: Assessing the Plain Language Planner Resource As a Nursing Intervention.

OBJECTIVE To elicit informal caregiver feedback about an mHealth resource and it's potential as a nurse-delivered intervention for caregiver communication support. DATA SOURCES Four focus groups with current oncology caregivers that involved caregiver use of the resource and response to a video demonstrating the resource as a nursing intervention. A brief assessment of the resource was collected for triangulation of data. CONCLUSION Caregivers rated the resource as overwhelmingly positive and reported that use of the resource gave an increased sense of preparedness. Caregivers shared ideas for future expansion of the resource, highlighted the need for user-responsive design, and described the need for a caregiver-centered tool. IMPLICATIONS FOR NURSING PRACTICE Communicating complex terminology relating to treatment, side effects, and symptoms requires resources to meet health literacy needs. A nursing protocol for using the resource is provided based on feedback collected from caregivers.

[1]  M. Clark,et al.  Cancer Caregiver: Perceived Benefits of Technology. , 2015, Telemedicine journal and e-health : the official journal of the American Telemedicine Association.

[2]  Jennifer L. Bevan,et al.  Understanding the impact of family caregiver cancer literacy on patient health outcomes. , 2008, Patient education and counseling.

[3]  E. Patiraki,et al.  A critical review of the evidence for nurses as information providers to cancer patients. , 2010, Journal of clinical nursing.

[4]  A. Richardson,et al.  Informal carers' experiences and needs when supporting patients through chemotherapy: a mixed method study. , 2013, European journal of cancer care.

[5]  Sylvia L. Mikucki-Enyart,et al.  Caring for a Parent with Lung Cancer , 2012, Qualitative health research.

[6]  E. Ream,et al.  Establishing Priorities for Oncology Nursing Research: Nurse and Patient Collaboration , 2017, Oncology nursing forum.

[7]  Ali Idri,et al.  Empirical Studies on Usability of mHealth Apps: A Systematic Literature Review , 2015, Journal of Medical Systems.

[8]  J. Pais-Ribeiro,et al.  The Caregiver Role in Palliative Care: A Systematic Review of the Literature , 2015 .

[9]  Joseph O Jacobson,et al.  Supporting the Supporters: What Family Caregivers Need to Care for a Loved One With Cancer. , 2017, Journal of oncology practice.

[10]  S. Beach,et al.  Caregiver Health Literacy Predicting Healthcare Communication and System Navigation Difficulty , 2018, Families, systems & health : the journal of collaborative family healthcare.

[11]  W. Chou,et al.  Caring for caregivers and patients: Research and clinical priorities for informal cancer caregiving , 2016, Cancer.

[12]  B. Ferrell,et al.  Cancer Communication and Family Caregiver Quality of Life , 2017, Behavioral sciences.

[13]  Esther M. Friedman,et al.  Changing Structures and Processes to Support Family Caregivers of Seriously Ill Patients. , 2018, Journal of palliative medicine.

[14]  S. McRoy,et al.  Would mobile health be a solution to rehospitalization? , 2017, Nursing & health sciences.

[15]  J. Holland,et al.  Falling through the cracks: A review of psychological distress and psychosocial service needs in older Black and Hispanic patients with cancer , 2012 .

[16]  R W Batterham,et al.  Health literacy: applying current concepts to improve health services and reduce health inequalities. , 2016, Public health.

[17]  T. Parnell,et al.  Health Literacy in Nursing: Providing Person-Centered Care , 2014 .

[18]  M. S. Mast,et al.  Well, you have hepatic metastases: Use of technical language by medical students in simulated patient interviews. , 2015, Patient education and counseling.

[19]  Audie A Atienza,et al.  Mobile health technology evaluation: the mHealth evidence workshop. , 2013, American journal of preventive medicine.

[20]  An App to Support Difficult Interactions Among Providers, Patients, and Families , 2015, Journal of the advanced practitioner in oncology.

[21]  Joy V Goldsmith,et al.  Plain Language and Health Literacy for the Oncology Family Caregiver: Examining an English/Spanish mHealth Resource. , 2017, Seminars in oncology nursing.

[22]  Lixin Song,et al.  Interventions with Family Caregivers of Cancer Patients: Meta‐Analysis of Randomized Trials , 2010, CA: a cancer journal for clinicians.

[23]  Thomas R. Lindlof.  Qualitative Communication Research Methods , 1994 .

[24]  B. Ferrell,et al.  Pilot Study of a Communication Coaching Telephone Intervention for Lung Cancer Caregivers , 2017, Cancer nursing.

[25]  J. Barnsley,et al.  Health literacy and cancer self‐management behaviors: A scoping review , 2018, Cancer.