Investigating Support Seeking from Peers for Pregnancy in Online Health Communities

We report a study of peer support in online health communities for pregnancy care along three gestational stages (trimesters) to investigate how pregnant women seek and receive peer support during different stages of pregnancy. Using Babycenter.com as our research setting, we found that pregnant women sought peer support due to constrained access to healthcare providers, dissatisfaction with healthcare services/medical advice, limited offline social support, and unavailability of information in other venues. While the particular topics of concern typifying each trimester were distinct, pregnant women consistently sought advice, informal and formal knowledge, reassurance, and emotional support from peers during each stage of pregnancy. BabyCenter.com peers provided support by leveraging their own experiential knowledge and passing along clinical expertise acquired during the course of their own healthcare. We discuss design implications for health services and IT systems that meet pregnant women's temporal and multi-faceted needs during prenatal care.

[1]  Siu Keung Lam,et al.  Prevalence, Course, and Risk Factors for Antenatal Anxiety and Depression , 2007, Obstetrics and gynecology.

[2]  Richard J. Anderson,et al.  Mobile Phones for Maternal Health in Rural India , 2015, CHI.

[3]  Anselm L. Strauss,et al.  Basics of qualitative research : techniques and procedures for developing grounded theory , 1998 .

[4]  Peter Kulchyski and , 2015 .

[5]  Bree Holtz,et al.  Connected Motherhood: Social Support for Moms and Moms-to-Be on Facebook. , 2015, Telemedicine journal and e-health : the official journal of the American Telemedicine Association.

[6]  L. Donelle,et al.  Social support and online postpartum depression discussion groups: a content analysis. , 2012, Patient education and counseling.

[7]  Midmer Dk,et al.  Does family-centered maternity care empower women? The development of the woman-centered childbirth model. , 1992 .

[8]  Nicola Dell,et al.  Engaging Pregnant Women in Kenya with a Hybrid Computer-Human SMS Communication System , 2015, CHI.

[9]  Pirkko Kouri,et al.  Pregnant families' discussions on the Net--from virtual connections toward real-life community. , 2006, Journal of midwifery & women's health.

[10]  Jenny McLeish,et al.  Peer support during pregnancy and early parenthood: a qualitative study of models and perceptions , 2015, BMC Pregnancy and Childbirth.

[11]  E. Declercq,et al.  Listening to Mothers II: Report of the Second National U.S. Survey of Women’s Childbearing Experiences , 2007, Journal of Perinatal Education.

[12]  R. Costa,et al.  Anxiety and depression during pregnancy in women and men. , 2009, Journal of affective disorders.

[13]  Rob Comber,et al.  HCI and Intimate Care as an Agenda for Change in Women's Health , 2016, CHI.

[14]  P. Drentea,et al.  Social capital and social support on the web: the case of an internet mother site. , 2005, Sociology of health & illness.

[15]  J. Canals,et al.  How anxiety levels during pregnancy are linked to personality dimensions and sociodemographic factors , 2002 .

[16]  Kathleen H. Pine,et al.  Fragmentation and choreography: caring for a patient and a chart during childbirth , 2012, CSCW.

[17]  Jean Golding,et al.  The course of anxiety and depression through pregnancy and the postpartum in a community sample. , 2004, Journal of affective disorders.

[18]  S. Ziebland,et al.  Health and Illness in a Connected World: How Might Sharing Experiences on the Internet Affect People's Health? , 2012, The Milbank quarterly.

[19]  Xiaoyue Zhang,et al.  Portable, non-invasive fall risk assessment in end stage renal disease patients on hemodialysis , 2010, Wireless Health.

[20]  Kathleen H. Pine,et al.  Institutional logics of the EMR and the problem of 'perfect' but inaccurate accounts , 2014, CSCW.

[21]  Bret R. Shaw,et al.  Empowering Processes and Outcomes of Participation in Online Support Groups for Patients With Breast Cancer, Arthritis, or Fibromyalgia , 2008, Qualitative health research.

[22]  Christine T. Wolf,et al.  The work of reuse: birth certificate data and healthcare accountability measurements , 2016 .

[23]  Marja Kaunonen,et al.  Effectiveness of an internet-based intervention enhancing Finnish parents' parenting satisfaction and parenting self-efficacy during the postpartum period. , 2011, Midwifery.

[24]  Sean A. Munson,et al.  Examining Menstrual Tracking to Inform the Design of Personal Informatics Tools , 2017, CHI.

[25]  Pengfei Wang,et al.  Moments A Wearable Device for Early Stage AD Patients to Maintain Their Autonomy , 2016, CHI Extended Abstracts.

[26]  Rinchen Pelzang,et al.  Time to learn: understanding patient-centred care. , 2010, British journal of nursing.

[27]  D. Lupton,et al.  ‘Precious cargo’: foetal subjects, risk and reproductive citizenship , 2012 .

[28]  Yue Chen,et al.  Dot-it: Managing Nausea and Vomiting for A Peaceful Pregnancy with Personal Pattern Exploration , 2016, CHI Extended Abstracts.

[29]  Krzysztof Z. Gajos,et al.  Learning From the Crowd: Observational Learning in Crowdsourcing Communities , 2016, CHI.

[30]  Henrietta O'Connor,et al.  Parenting gone wired: empowerment of new mothers on the internet? , 2006 .

[31]  J. Ickovics,et al.  CenteringPregnancy group prenatal care: Promoting relationship-centered care. , 2006, Journal of obstetric, gynecologic, and neonatal nursing : JOGNN.

[32]  Madhu Reddy,et al.  "Every pregnancy is different": designing mHealth for the pregnancy ecology , 2014, Conference on Designing Interactive Systems.

[33]  Barbara Katz Rothman,et al.  The Politics and Practice of Abortion@@@From Crime to Choice: The Transformation of Abortion in America.@@@The Tentative Pregnancy: Prenatal Diagnosis and the Future of Motherhood. , 1987 .

[34]  Eric Horvitz,et al.  Characterizing and predicting postpartum depression from shared facebook data , 2014, CSCW.

[35]  Lena Mamykina,et al.  Collective Sensemaking in Online Health Forums , 2015, CHI.

[36]  Eric Horvitz,et al.  Predicting postpartum changes in emotion and behavior via social media , 2013, CHI.

[37]  Juliet M. Corbin,et al.  Basics of Qualitative Research (3rd ed.): Techniques and Procedures for Developing Grounded Theory , 2008 .

[38]  Rebecca Kukla,et al.  Risk and the Pregnant Body , 2009, The Hastings Center report.

[39]  Klaus Krippendorff,et al.  Content Analysis: An Introduction to Its Methodology , 1980 .

[40]  R. Davis-Floyd,et al.  Birth as an American Rite of Passage , 2022 .

[41]  F. Maxwell Harper,et al.  Asked and Answered: On Qualities and Quantities of Answers in Online Q&A Sites , 2011, The Social Mobile Web.

[42]  Mark S. Ackerman,et al.  Collaborative help in chronic disease management: supporting individualized problems , 2012, CSCW.

[43]  Tamara Peyton,et al.  “Every pregnancy is different”: Designing mHealth interventions for the pregnancy ecology , 2014 .

[44]  J. Pennebaker,et al.  The Psychological Meaning of Words: LIWC and Computerized Text Analysis Methods , 2010 .

[45]  Genevieve A Cowie,et al.  Using an online service for breastfeeding support: what mothers want to discuss. , 2011, Health promotion journal of Australia : official journal of Australian Association of Health Promotion Professionals.

[46]  C. Carver,et al.  Assessing coping strategies: a theoretically based approach. , 1989, Journal of personality and social psychology.

[47]  Konrad Tollmar,et al.  The memory stone: a personal ICT device in health care , 2008, NordiCHI.

[48]  Jina Huh,et al.  Videos influence behavior change measures for voice and speech in individuals with Parkinson's disease , 2015, Wireless Health.

[49]  Sheizaf Rafaeli,et al.  Predictors of answer quality in online Q&A sites , 2008, CHI.

[50]  Briege M Lagan,et al.  What is the impact of the Internet on decision-making in pregnancy? A global study. , 2011, Birth.

[51]  T. Foster,et al.  2020 vision for a high-quality, high-value maternity care system. , 2010, Women's health issues : official publication of the Jacobs Institute of Women's Health.

[52]  Emily Ross,et al.  ‘I think it’s self-preservation’: risk perception and secrecy in early pregnancy , 2015 .

[53]  Abby McCormack Individuals With Eating Disorders and the Use of Online Support Groups as a Form of Social Support , 2010, Computers, informatics, nursing : CIN.

[54]  W. Pratt,et al.  Managing the Personal Side of Health: How Patient Expertise Differs from the Expertise of Clinicians , 2011, Journal of medical Internet research.

[55]  Barbara J. Dunlap Lying-In: A History of Childbirth in America , 1991 .

[56]  H. Cahill,et al.  Male appropriation and medicalization of childbirth: an historical analysis. , 2001, Journal of advanced nursing.

[57]  Ellen S. Lazarus,et al.  What Do Women Want?: Issues of Choice, Control, and Class in Pregnancy and Childbirth , 1994 .

[58]  Marilyn Ma McKnight,et al.  The Tentative Pregnancy: Prenatal Diagnosis and the Future of Motherhood , 1991 .

[59]  D K Midmer,et al.  Does family-centered maternity care empower women? The development of the woman-centered childbirth model. , 1992, Family medicine.

[60]  C H Chen,et al.  Stressors associated with pregnancy as perceived by pregnant women during three trimesters. , 1989, Gaoxiong yi xue ke xue za zhi = The Kaohsiung journal of medical sciences.

[61]  Giuseppe Riva,et al.  An Emerging Model of Pregnancy Care: The Introduction of New Technologies in Maternal Wellbeing , 2016 .

[62]  Ryen W. White,et al.  Exploring Time-Dependent Concerns about Pregnancy and Childbirth from Search Logs , 2015, CHI.

[63]  D. Lupton,et al.  Risk and sociocultural theory: Risk and the ontology of pregnant embodiment , 1999 .