A systematic map of studies of patients' and clinicians' research priorities

[1]  P. Williamson,et al.  A Systematic Review of Studies That Aim to Determine Which Outcomes to Measure in Clinical Trials in Children , 2008, PLoS medicine.

[2]  J. Sitzia,et al.  Service user involvement in nursing, midwifery and health visiting research: a review of evidence and practice. , 2008, International journal of nursing studies.

[3]  S. Vowler,et al.  What are patients' priorities for palliative care research? — a questionnaire study , 2008, Palliative medicine.

[4]  P. Butow,et al.  Beyond scientific rigour: funding cancer research of public value. , 2007, Health policy.

[5]  A. Braunack-Mayer.  A New Voice in Science. Patient participation in decision‐making on biomedical research. , 2007 .

[6]  P. Tugwell,et al.  OMERACT: An international initiative to improve outcome measurement in rheumatology , 2007, Trials.

[7]  Mike Clarke,et al.  Standardising outcomes for clinical trials and systematic reviews , 2007, Trials.

[8]  M. Clarke,et al.  Evaluating maternity care: a core set of outcome measures. , 2007, Birth.

[9]  S. Barclay,et al.  What are patients' priorities for palliative care research? Focus group study , 2007, Palliative medicine.

[10]  Y. Gunaratnam,et al.  The research priorities of patients attending UK cancer treatment centres: findings from a modified nominal group study , 2007, British Journal of Cancer.

[11]  P. Xaverius,et al.  Disparities Rank High in Prioritized Research, Systems and Service Delivery Needs in Missouri , 2007, Maternal and Child Health Journal.

[12]  K. Hayes,et al.  Research priorities for urological care following spinal cord injury: recommendations of an expert panel. , 2007, The Canadian journal of urology.

[13]  T. Abma.  Patients as Partners in a Health Research Agenda Setting , 2006, Evaluation & the health professions.

[14]  J. Barton,et al.  The identification of topics for research that are important to people with ulcerative colitis , 2006, European journal of gastroenterology & hepatology.

[15]  K. Hawthorne.  Discovering the research priorities of people with diabetes in a multicultural community. , 2006, The British journal of general practice : the journal of the Royal College of General Practitioners.

[16]  Jacqueline E. W. Broerse,et al.  Stakeholder participation in health research agenda setting: the case of asthma and COPD research in the Netherlands , 2006 .

[17]  J. Dyas,et al.  Discovering the research priorities of people with diabetes in a multicultural community: a focus group study. , 2006, The British journal of general practice : the journal of the Royal College of General Practitioners.

[18]  C. Foster,et al.  Listening to the views of people affected by cancer about cancer research: an example of participatory research in setting the cancer research agenda , 2006, Health expectations : an international journal of public participation in health care and health policy.

[19]  Marvin Swartz,et al.  Measuring outcome priorities and preferences in people with schizophrenia , 2005, British Journal of Psychiatry.

[20]  M. D. de Wit,et al.  Progress since OMERACT 6 on including patient perspective in rheumatoid arthritis outcome assessment. , 2005, The Journal of rheumatology.

[21]  E. Taal,et al.  Incorporating the patient perspective into outcome assessment in rheumatoid arthritis--progress at OMERACT 7. , 2005, The Journal of rheumatology.

[22]  M. Schwartz,et al.  Patient defined dichotomous end points for remission and clinical improvement in ulcerative colitis , 2005, Gut.

[23]  V. Entwistle,et al.  Consumer involvement in decisions about what health-related research is funded. , 2004, Health policy.

[24]  Moses Sinkala,et al.  Priorities for Antiretroviral Therapy Research in Sub-Saharan Africa: A 2002 Consensus Conference in Zambia , 2004, Journal of acquired immune deficiency syndromes.

[25]  J Gabbay,et al.  Involving consumers in research and development agenda setting for the NHS: developing an evidence-based approach. , 2004, Health technology assessment.

[26]  G. Grams,et al.  Involving patients in a primary care research meeting worked well , 2003, BMJ : British Medical Journal.

[27]  K. Saag.  OMERACT 6 brings new perspectives to rheumatology measurement research. , 2003, The Journal of rheumatology.

[28]  E. Taal,et al.  Outcomes from the Patient Perspective Workshop at OMERACT 6. , 2003, The Journal of rheumatology.

[29]  M. Dixon-Woods,et al.  Participating in primary care research. , 2002, The British journal of general practice : the journal of the Royal College of General Practitioners.

[30]  N. Glass.  UK charity to involve public in decision making for cancer research priorities , 2002, The Lancet.

[31]  J. Boote,et al.  Consumer involvement in health research: a review and research agenda. , 2002, Health policy.

[32]  T. Burns,et al.  Research priorities for primary care mental health: A Delphi exercise , 2002 .

[33]  R. Johanson,et al.  Suggestions in maternal and child health for the National Technology Assessment Programme: a consideration of consumer and professional priorities , 2002, The journal of the Royal Society for the Promotion of Health.

[34]  M. Callon,et al.  The involvement of patients' associations in research , 2002 .

[35]  C. Williamson,et al.  What does involving consumers in research mean? , 2001, QJM : monthly journal of the Association of Physicians.

[36]  Sandy Oliver,et al.  Investigating Consumer Perspectives on Evaluating Health Technologies , 2001 .

[37]  D Elbourne,et al.  Involving consumers in designing, conducting, and interpreting randomised controlled trials: questionnaire survey , 2001, BMJ : British Medical Journal.

[38]  A. Tosteson.  Preference-based health outcome measures in low back pain. , 2000, Spine.

[39]  A. Tosteson,et al.  Measuring Health State Preferences in Women with Breast Hypertrophy , 2000, Plastic and reconstructive surgery.

[40]  C. Granger,et al.  Comparing consumer and clinician values for alternative functional states: application of a new feature trade-off consensus building tool. , 1998, Archives of physical medicine and rehabilitation.

[41]  A. Togias,et al.  Clinical Investigations: AsthmaIntegrating Patient Preferences Into Health Outcomes Assessment: The Multiattribute Asthma Symptom Utility Index , 1998 .

[42]  M. Gordon,et al.  Use of pain assessment tools: is there a preference? , 1998, The Journal of burn care & rehabilitation.

[43]  G. Bordage,et al.  Education in ambulatory settings: developing valid measures of educational outcomes, and other research priorities , 1998, Academic medicine : journal of the Association of American Medical Colleges.

[44]  V. Entwistle,et al.  Lay perspectives: advantages for health research , 1998, BMJ.

[45]  M. Hendryx,et al.  Development of outcome indicators for monitoring the quality of public mental health care. , 1997, Psychiatric services.

[46]  P. Tugwell,et al.  Recommendations for a core set of outcome measures for future phase III clinical trials in knee, hip, and hand osteoarthritis. Consensus development at OMERACT III. , 1997, The Journal of rheumatology.

[47]  A. Haines,et al.  Setting priorities for research and development in the NHS: a case study on the interface between primary and secondary care , 1995, BMJ.

[48]  S. van der Linden,et al.  Problem elicitation to assess patient priorities in ankylosing spondylitis and fibromyalgia. , 1995, The Journal of rheumatology.

[49]  Michael Peckham,et al.  Research and development for the National Health Service , 1991, The Lancet.

[50]  Matthew J. Friedman,et al.  The Relative Importance of Treatment Outcomes , 1982 .

[51]  T. Becker,et al.  [User involvement in mental health services research]. , 2006, Psychiatrische Praxis.

[52]  W. Whitehead,et al.  Priorities for treatment research from different professional perspectives. , 2004, Gastroenterology.

[53]  M. Callon,et al.  Patients and scientists in French muscular dystrophy research , 2004 .

[54]  Susan J. Wells,et al.  Illinois's child welfare research agenda: an approach to building consensus for practice-based research. , 2003, Child welfare.

[55]  A. Potosky,et al.  Assessment of patient preferences among men with prostate cancer. , 1998, The Journal of urology.

[56]  S. Yanovski,et al.  Report of the National Institutes of Health (NIH) Workshop on the Development of Research Priorities in Eating Disorders. , 1997, Psychopharmacology bulletin.