Involving service users in intervention design: a participatory approach to developing a text‐messaging intervention to reduce repetition of self‐harm

Objective  To engage a group of people with relevant lived experience in the development of a text‐messaging intervention to reduce repetition of self‐harm.

[1]  Diana E Jones,et al.  Perceptions of service user and carer involvement in healthcare education and impact on students’ knowledge and practice: A literature review , 2009, Medical teacher.

[2]  S. Bauer,et al.  Use of text messaging in the aftercare of patients with bulimia nervosa , 2003 .

[3]  V. Franklin,et al.  "Sweet Talk": text messaging support for intensive insulin therapy for young people with diabetes. , 2003, Diabetes technology & therapeutics.

[4]  C. McKevitt,et al.  What is involvement in research and what does it achieve? Reflections on a pilot study of the personal costs of stroke , 2010, Health expectations : an international journal of public participation in health care and health policy.

[5]  J Gabbay,et al.  Involving consumers in research and development agenda setting for the NHS: developing an evidence-based approach. , 2004, Health technology assessment.

[6]  K. Hawton,et al.  Repetition of deliberate self-harm and subsequent suicide risk: Long-term follow-up study of 11 583 patients , 2004, British Journal of Psychiatry.

[7]  Patricia Grocott,et al.  A model of user engagement in medical device development. , 2007, International journal of health care quality assurance.

[8]  Alan J. Card,et al.  SMS Text Message Healthcare Appointment Reminders in England , 2008, The Journal of ambulatory care management.

[9]  J. Owen,et al.  Secondary Prevention of Non-fatal Deliberate Self-harm , 1993, British Journal of Psychiatry.

[10]  A. Sullivan,et al.  Texting decreases the time to treatment for genital Chlamydia trachomatis infection , 2006, Sexually Transmitted Infections.

[11]  K. Clover,et al.  Postcards from the EDge project: randomised controlled trial of an intervention using postcards to reduce repetition of hospital treated deliberate self poisoning , 2005, BMJ : British Medical Journal.

[12]  Josip Car,et al.  Effectiveness of mobile-phone short message service (SMS) reminders for ophthalmology outpatient appointments: Observational study , 2008, BMC ophthalmology.

[13]  V. Franklin,et al.  A randomized controlled trial of Sweet Talk, a text‐messaging system to support young people with diabetes , 2006, Diabetic medicine : a journal of the British Diabetic Association.

[14]  P. Tyrer,et al.  User involvement in the planning and delivery of mental health services: a cross‐sectional survey of service users and providers , 2003, Acta psychiatrica Scandinavica.

[15]  Susan Michie,et al.  Developing and Evaluating Complex Interventions , 2015 .

[16]  E. Årsand,et al.  Diabetes education via mobile text messaging , 2006, Journal of telemedicine and telecare.

[17]  Annalu Waller,et al.  Participatory design of a text message scheduling system to support young people with diabetes , 2006, Health Informatics J..

[18]  P. Beresford.  User involvement, research and health inequalities: developing new directions. , 2007, Health and Social Care in the community.

[19]  Jonathan Evans,et al.  Crisis card following self-harm: 12-month follow-up of a randomised controlled trial. , 2005, The British journal of psychiatry : the journal of mental science.

[20]  V. Entwistle,et al.  Lay perspectives: advantages for health research , 1998, BMJ.

[21]  Terry D. Grubb,et al.  The effect of coping statements on progress through a desensitization hierarchy. , 1983, Journal of behavior therapy and experimental psychiatry.

[22]  P. Bower,et al.  Developing guided self-help for depression using the Medical Research Council complex interventions framework: a description of the modelling phase and results of an exploratory randomised controlled trial , 2008, BMC psychiatry.

[23]  J. Kolodinsky,et al.  Segmentation of overweight Americans and opportunities for social marketing , 2009, The international journal of behavioral nutrition and physical activity.

[24]  S. Oliver,et al.  Involving consumers in a needs‐led research programme: a pilot project , 2001, Health expectations : an international journal of public participation in health care and health policy.

[25]  J. Mccroskey,et al.  A component analysis of cognitive restructuring , 1978, Cognitive Therapy and Research.

[26]  Ian Robinson,et al.  Benefits of and barriers to involving users in medical device technology development and evaluation , 2007, International Journal of Technology Assessment in Health Care.

[27]  C. D’Este,et al.  Postcards from the EDge: 5-year outcomes of a randomised controlled trial for hospital-treated self-poisoning , 2007, British Journal of Psychiatry.

[28]  A. Liddell,et al.  Technology in The nhS Transforming the patient ’ s experience of care , 2008 .

[29]  Mary Newburn,et al.  User involvement in the development of a research bid: barriers, enablers and impacts 1 , 2007, Health expectations : an international journal of public participation in health care and health policy.

[30]  M. Petticrew,et al.  Developing and evaluating complex interventions: the new Medical Research Council guidance , 2008, BMJ : British Medical Journal.

[31]  J A Motto,et al.  A randomized controlled trial of postcrisis suicide prevention. , 2001, Psychiatric services.

[32]  C. D’Este,et al.  Postcards from the EDge: 24-month outcomes of a randomised controlled trial for hospital-treated self-poisoning , 2007, British Journal of Psychiatry.

[33]  E. Balas,et al.  Healthcare via cell phones: a systematic review. , 2009, Telemedicine journal and e-health : the official journal of the American Telemedicine Association.

[34]  P. Spinhoven,et al.  Cognitive-behavioral therapy for deliberate self-harm. , 2007, Crisis.

[35]  Hee-Seung Kim,et al.  A randomized controlled trial of a nurse short-message service by cellular phone for people with diabetes. , 2007, International journal of nursing studies.

[36]  A D Oxman,et al.  Methods of consumer involvement in developing healthcare policy and research, clinical practice guidelines and patient information material. , 2006, The Cochrane database of systematic reviews.

[37]  C. Williamson.  How do we find the right patients to consult , 2007 .

[38]  J. Sitzia,et al.  Getting ready for user involvement in a systematic review , 2009, Health expectations : an international journal of public participation in health care and health policy.

[39]  C. Charles,et al.  Lay participation in health care decision making: a conceptual framework. , 1993, Journal of health politics, policy and law.

[40]  T. Peters,et al.  General practice based intervention to prevent repeat episodes of deliberate self harm: cluster randomised controlled trial , 2002, BMJ : British Medical Journal.

[41]  A. Tynan,et al.  Market Segmentation , 2018, Entrepreneurial Management Theory and Practice.

[42]  D. Duffy,et al.  The National Suicide Prevention Strategy for England , 2003 .

[43]  Mala Bridgelal Ram,et al.  Issues and challenges of involving users in medical device development , 2008, Health expectations : an international journal of public participation in health care and health policy.

[44]  G. Vaiva,et al.  Effect of telephone contact on further suicide attempts in patients discharged from an emergency department: randomised controlled study , 2006, BMJ : British Medical Journal.

[45]  William A. Anthony,et al.  Recovery from mental illness: The guiding vision of the mental health service system in the 1990s. , 1993 .

[46]  M. Slade,et al.  Recovery: an international perspective , 2008, Epidemiologia e Psichiatria Sociale.

[47]  Stephen Sutton,et al.  A causal modelling approach to the development of theory-based behaviour change programmes for trial evaluation. , 2005, Health education research.

[48]  Gurnam Singh,et al.  The ‘User’: Friend, foe or fetish?: A critical exploration of user involvement in health and social care , 2007 .

[49]  K. Hawton,et al.  Deliberate self-harm in Oxford, 1990–2000: a time of change in patient characteristics , 2003, Psychological Medicine.

[50]  Debbie Sharp,et al.  Factors influencing help seeking in mentally distressed young adults: a cross-sectional survey. , 2004, The British journal of general practice : the journal of the Royal College of General Practitioners.

[51]  Deborah Rutter,et al.  Patients or partners? Case studies of user involvement in the planning and delivery of adult mental health services in London. , 2004, Social science & medicine.

[52]  Til Wykes,et al.  From passive subjects to equal partners , 2002, British Journal of Psychiatry.

[53]  B. Fjeldsoe,et al.  Behavior change interventions delivered by mobile telephone short-message service. , 2009, American journal of preventive medicine.

[54]  Characterizing and reaching high-risk drinkers using audience segmentation. , 2009, Alcoholism, clinical and experimental research.

[55]  Fraser J. M. Reid,et al.  Text or Talk? Social Anxiety, Loneliness, and Divergent Preferences for Cell Phone Use , 2007, Cyberpsychology Behav. Soc. Netw..

[56]  Fraser J. M. Reid,et al.  Textmates and Text Circles: Insights into the Social Ecology of SMS Text Messaging , 2005 .

[57]  M. Crawford,et al.  Systematic review of involving patients in the planning and development of health care , 2002, BMJ : British Medical Journal.

[58]  J. Boote,et al.  Consumer involvement in health research: a review and research agenda. , 2002, Health policy.

[59]  S. Bauer,et al.  Use of text messaging for monitoring sugar-sweetened beverages, physical activity, and screen time in children: a pilot study. , 2008, Journal of nutrition education and behavior.

[60]  S. Tee,et al.  Experiences of service user and carer participation in health care education. , 2006, Nurse Education in Practice.

[61]  J. Foley,et al.  Use of Mobile Telephone Short Message Service (SMS) as a Reminder: the Effect on Patient Attendance , 2009, European archives of paediatric dentistry : official journal of the European Academy of Paediatric Dentistry.

[62]  D. Gunnell,et al.  Crisis telephone consultation for deliberate self-harm patients: Effects on repetition , 1999, British Journal of Psychiatry.

[63]  K. Hawton,et al.  Attitudes towards clinical services among people who self-harm: systematic review. , 2009, The British journal of psychiatry : the journal of mental science.

[64]  Badal Pal.  The doctor will text you now: is there a role for the mobile telephone in health care? , 2003, BMJ : British Medical Journal.