The social network of adolescents who need special health care.

OBJECTIVE To describe the social network of adolescents who need special health care. METHOD A qualitative, descriptive and exploratory study conducted between 2016 and 2017 in the pediatric outpatient clinic of a teaching hospital in southern Brazil. Thirty-five semi-structured interviews were conducted with adolescents between 12 and 18 years of age, followed by the construction of genograms and ecomaps. After transcription, the enunciations were subjected to Pêcheux's method of discourse analysis. RESULTS The institutional network consists of health services, schools and religious entities, as well as adolescents' families and friends. In the family network, women family members-such as mothers, grandmothers and aunts-have a special role. FINAL CONSIDERATION The adolescents' social network is composed of institutional and family circles. In the view of adolescents, the tertiary service is more capable of solving their problems, and for this reason used the most. In order to ensure these adolescents access to and continuity of care, the articulation between health policies and health services is suggested.

[1]  Fernanda Garcia Bezerra Góes,et al.  Discursos sobre cuidados na alta de crianças com necessidades especiais de saúde , 2017 .

[2]  Neusa Collet,et al.  Doença crônica na infância e adolescência: continuidade do cuidado na Rede de Atenção à Saúde , 2017 .

[3]  I. E. Cabral,et al.  Discourses on discharge care for children with special healthcare needs. , 2017, Revista brasileira de enfermagem.

[4]  I. Argimon,et al.  Dependência de internet e habilidades sociais em adolescentes , 2016 .

[5]  I. E. Cabral,et al.  Tradução e adaptação do Children with Special Health Care Needs Screener para português do Brasil , 2016 .

[6]  Ana María Martínez Tamayo,et al.  Modelo de atención y clasificación de «Niños y adolescentes con necesidades especiales de atención en salud-NANEAS»: recomendaciones del Comité NANEAS de la Sociedad Chilena de Pediatría , 2016 .

[7]  Deborah Carvalho Malta,et al.  Red social de adolescentes en libertad condicional en la perspectiva de la salud pública , 2016 .

[8]  D. Malta,et al.  Social network of adolescents under probation from the perspective of public health. , 2016, Revista brasileira de enfermagem.

[9]  I. L. V. Gomes,et al.  Menores com necessidades especiais de saúde e familiares: implicações para a Enfermagem , 2016 .

[10]  Sarah Vieira Figueirêdo,et al.  Children with special health needs and family: implications for Nursing. , 2016, Revista brasileira de enfermagem.

[11]  Michelle V. Porche,et al.  Disparities in Access to Easy-to-Use Services for Children with Special Health Care Needs , 2016, Maternal and Child Health Journal.

[12]  I. Cabral,et al.  Familiares cuidadores articulando rede social de criança com necessidades especiais de saúde , 2015 .

[13]  I. E. Cabral,et al.  Family caregivers articulating the social network of a child with special health care needs. , 2015, Revista brasileira de enfermagem.

[14]  Eliane Tastch Neves,et al.  Network of care of children with special health care needs , 2015 .

[15]  Gabriela Silva dos Santos,et al.  Rede social e virtual de apoio ao adolescente que convive com doença crônica: uma revisão integrativa , 2015 .

[16]  S. Calugi,et al.  Continuity of care in children with special healthcare needs: a qualitative study of family’s perspectives , 2015, Italian Journal of Pediatrics.

[17]  C. Tavares,et al.  Social and Virtual Support Network for Teenagers Living with Chronic Disease: An Integrative Review , 2015 .

[18]  L. Bakhireva,et al.  Validity of Self-Reported Drug Use Information Among Pregnant Women , 2015, Maternal and Child Health Journal.

[19]  A. Carle,et al.  Inequities in health care needs for children with medical complexity. , 2014, Health affairs.

[20]  Jessica R. Jones,et al.  Participation of children with special health care needs in school and the community. , 2012, Academic pediatrics.

[21]  Eyal Cohen,et al.  A national profile of caregiver challenges among more medically complex children with special health care needs. , 2011, Archives of pediatrics & adolescent medicine.