Study protocol: a cluster randomized controlled trial of web-based decision support tools for increasing BRCA1/2 genetic counseling referral in primary care

[1]  V. Entwistle,et al.  Decision aids for people facing health treatment or screening decisions. , 2018, The Cochrane database of systematic reviews.

[2]  M. Ballinger,et al.  Sociodemographic, psychosocial and clinical factors associated with uptake of genetic counselling for hereditary cancer: a systematic review , 2017, Clinical genetics.

[3]  Jeffrey Wood,et al.  Introducing a Comprehensive Informatics Framework to Promote Breast Cancer Risk Assessment and Chemoprevention in the Primary Care Setting , 2017, AMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science.

[4]  W. Chung,et al.  Risks of Breast, Ovarian, and Contralateral Breast Cancer for BRCA1 and BRCA2 Mutation Carriers , 2017, JAMA.

[5]  D. Evans,et al.  Validation of a scale for assessing attitudes towards outcomes of genetic cancer testing among primary care providers and breast specialists , 2017, PloS one.

[6]  R. Kukafka,et al.  Decision support for family history intake to determine eligibility for BRCA testing among multiethnic women. , 2017 .

[7]  France Légaré,et al.  Decision aids for people facing health treatment or screening decisions. , 2017, The Cochrane database of systematic reviews.

[8]  L. Haddad,et al.  Georgia Primary Care Providers’ Knowledge of Hereditary Breast and Ovarian Cancer Syndrome , 2017, Journal of Cancer Education.

[9]  J. Grimshaw,et al.  Supporting genetics in primary care: investigating how theory can inform professional education , 2016, European Journal of Human Genetics.

[10]  A. O'Connor Decision Self-Efficacy Scale , 2015 .

[11]  Parijatham S. Thomas,et al.  Why Breast Cancer Risk by the Numbers Is Not Enough: Evaluation of a Decision Aid in Multi-Ethnic, Low-Numerate Women , 2015, Journal of medical Internet research.

[12]  Giovanni Parmigiani,et al.  Recent Enhancements to the Genetic Risk Prediction Model BRCAPRO , 2015, Cancer informatics.

[13]  B. Karlan,et al.  Impact of oophorectomy on cancer incidence and mortality in women with a BRCA1 or BRCA2 mutation. , 2014, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[14]  V. Moyer Risk assessment, genetic counseling, and genetic testing for BRCA-related cancer in women: U.S. Preventive Services Task Force recommendation statement. , 2014, Annals of internal medicine.

[15]  W. Rubinstein,et al.  American Society of Clinical Oncology Expert Statement: collection and use of a cancer family history for oncology providers. , 2014, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[16]  Glyn Elwyn,et al.  “Many miles to go …”: a systematic review of the implementation of patient decision support interventions into routine clinical practice , 2013, BMC Medical Informatics and Decision Making.

[17]  S. Boccia,et al.  Knowledge, attitudes and behavior of physicians regarding predictive genetic tests for breast and colorectal cancer. , 2013, Preventive medicine.

[18]  S. Vadaparampil,et al.  A statewide survey of practitioners to assess knowledge and clinical practices regarding hereditary breast and ovarian cancer. , 2013, Genetic testing and molecular biomarkers.

[19]  L. Peipins,et al.  Prevalence and Healthcare Actions of Women in a Large Health System with a Family History Meeting the 2005 USPSTF Recommendation for BRCA Genetic Counseling Referral , 2013, Cancer Epidemiology, Biomarkers & Prevention.

[20]  M. Härter,et al.  Development and psychometric properties of the Shared Decision Making Questionnaire--physician version (SDM-Q-Doc). , 2012, Patient education and counseling.

[21]  R. Thomson,et al.  Shared Decision Making: A Model for Clinical Practice , 2012, Journal of General Internal Medicine.

[22]  S. Stewart,et al.  Efficient Identification and Referral of Low-Income Women at High Risk for Hereditary Breast Cancer: A Practice-Based Approach , 2012, Public Health Genomics.

[23]  Suzanne K. Linder,et al.  Validity of a low literacy version of the Decisional Conflict Scale. , 2011, Patient education and counseling.

[24]  B. Goff,et al.  Reported referral for genetic counseling or BRCA 1/2 testing among United States physicians , 2011, Cancer.

[25]  M. Yaffe,et al.  Prospective study of breast cancer incidence in women with a BRCA1 or BRCA2 mutation under surveillance with and without magnetic resonance imaging. , 2011, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[26]  D. Bowen,et al.  Effects of a Web-based intervention on women’s breast health behaviors , 2011, Translational behavioral medicine.

[27]  Jessica S. Ancker,et al.  Effect of Arrangement of Stick Figures on Estimates of Proportion in Risk Graphics , 2011, Medical decision making : an international journal of the Society for Medical Decision Making.

[28]  Rosalind Eeles,et al.  Association of risk-reducing surgery in BRCA1 or BRCA2 mutation carriers with cancer risk and mortality. , 2010, JAMA.

[29]  Martin Härter,et al.  The 9-item Shared Decision Making Questionnaire (SDM-Q-9). Development and psychometric properties in a primary care sample. , 2010, Patient education and counseling.

[30]  S. Verhoef,et al.  Prophylactic Mastectomy in BRCA1 and BRCA2 Mutation Carriers: Very Low Risk for Subsequent Breast Cancer , 2010, Annals of surgery.

[31]  Julie O. Culver,et al.  Breast cancer risk communication: Assessment of primary care physicians by standardized patients , 2009, Genetics in Medicine.

[32]  J. Garber,et al.  Guidelines for Genetic Risk Assessment of Hereditary Breast and Ovarian Cancer: Early Disagreements and Low Utilization , 2009, Journal of General Internal Medicine.

[33]  Susan M. Domchek,et al.  Meta-analysis of Risk Reduction Estimates Associated With Risk-Reducing Salpingo-oophorectomy in BRCA1 or BRCA2 Mutation Carriers , 2009, Journal of the National Cancer Institute.

[34]  N. Loman,et al.  Histopathological findings and follow-up after prophylactic mastectomy and immediate breast reconstruction in 100 women from families with hereditary breast cancer. , 2008, European journal of surgical oncology : the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology.

[35]  D. Levy,et al.  Differential use of available genetic tests among primary care physicians in the United States: results of a national survey , 2008, Genetics in Medicine.

[36]  D. Plewes,et al.  Systematic Review: Using Magnetic Resonance Imaging to Screen Women at High Risk for Breast Cancer , 2008, Annals of Internal Medicine.

[37]  Siamak Noorbaloochi,et al.  Validation of Screening Questions for Limited Health Literacy in a Large VA Outpatient Population , 2008, Journal of General Internal Medicine.

[38]  T. Rebbeck,et al.  Risk-reducing salpingo-oophorectomy for the prevention of BRCA1- and BRCA2-associated breast and gynecologic cancer: a multicenter, prospective study. , 2008, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[39]  G. Hortobagyi,et al.  BRCA1 and BRCA2 genetic testing in Hispanic patients: mutation prevalence and evaluation of the BRCAPRO risk assessment model. , 2007, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[40]  P. Ubel,et al.  Validation of the Subjective Numeracy Scale: Effects of Low Numeracy on Comprehension of Risk Communications and Utility Elicitations , 2007, Medical decision making : an international journal of the Society for Medical Decision Making.

[41]  H. Murff,et al.  The Comprehensiveness of Family Cancer History Assessments in Primary Care , 2007, Public Health Genomics.

[42]  P. Slovic,et al.  Numeracy skill and the communication, comprehension, and use of risk-benefit information. , 2007, Health affairs.

[43]  M. Yaffe,et al.  American Cancer Society Guidelines for Breast Screening with MRI as an Adjunct to Mammography , 2007, CA: a cancer journal for clinicians.

[44]  J. Holmes,et al.  Are Physicians Discussing Prostate Cancer Screening with Their Patients and Why or Why Not? A Pilot Study , 2007, Journal of General Internal Medicine.

[45]  Barry Rosen,et al.  Population BRCA1 and BRCA2 mutation frequencies and cancer penetrances: a kin-cohort study in Ontario, Canada. , 2006, Journal of the National Cancer Institute.

[46]  Cameron D. Norman,et al.  eHEALS: The eHealth Literacy Scale , 2006, Journal of medical Internet research.

[47]  Sankey V. Williams,et al.  Measuring Perceptions of Breast Cancer Risk , 2006, Cancer Epidemiology Biomarkers & Prevention.

[48]  O. Olopade,et al.  Disparities in genetic testing: thinking outside the BRCA box. , 2006, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[49]  M. Siadaty,et al.  Uptake Rates for Breast Cancer Genetic Testing: A Systematic Review , 2006, Cancer Epidemiology Biomarkers & Prevention.

[50]  O. Olopade,et al.  Mortality after bilateral salpingo-oophorectomy in BRCA1 and BRCA2 mutation carriers: a prospective cohort study. , 2006, The Lancet. Oncology.

[51]  J. Krischer,et al.  BRCA1 and BRCA2 mutations account for a large proportion of ovarian carcinoma cases , 2005, Cancer.

[52]  M. Putt,et al.  Racial differences in the use of BRCA1/2 testing among women with a family history of breast or ovarian cancer. , 2005, JAMA.

[53]  Susan L Neuhausen,et al.  Bilateral prophylactic mastectomy reduces breast cancer risk in BRCA1 and BRCA2 mutation carriers: the PROSE Study Group. , 2004, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[54]  Deb Feldman-Stewart,et al.  Validation of a Decision Regret Scale , 2003, Medical decision making : an international journal of the Society for Medical Decision Making.

[55]  S. Singletary Rating the Risk Factors for Breast Cancer , 2003, Annals of surgery.

[56]  P. Goodson,et al.  Barriers to the provision of genetic services by primary care physicians: a systematic review of the literature. , 2003 .

[57]  F. Camacho,et al.  Measuring Patients’ Trust in their Primary Care Providers , 2002, Medical care research and review : MCRR.

[58]  T. Walsh,et al.  Tamoxifen and breast cancer incidence among women with inherited mutations in BRCA1 and BRCA2: National Surgical Adjuvant Breast and Bowel Project (NSABP-P1) Breast Cancer Prevention Trial. , 2001, JAMA.

[59]  J. Austoker,et al.  Evaluation of the impact of two educational interventions on GP management of familial breast/ovarian cancer cases: a cluster randomised controlled trial. , 2001, The British journal of general practice : the journal of the Royal College of General Practitioners.

[60]  T. Marteau,et al.  A measure of informed choice , 2001, Health expectations : an international journal of public participation in health care and health policy.

[61]  K. Heimdal,et al.  Tamoxifen and risk of contralateral breast cancer in BRCA1 and BRCA2 mutation carriers: a case-control study , 2000, The Lancet.

[62]  B. Trock,et al.  BRCA1 testing in families with hereditary breast-ovarian cancer. A prospective study of patient decision making and outcomes. , 1996, JAMA.

[63]  A. O'Connor Validation of a Decisional Conflict Scale , 1995, Medical decision making : an international journal of the Society for Medical Decision Making.

[64]  Eliseo J. Perez-Stable,et al.  Development of a Short Acculturation Scale for Hispanics , 1987 .

[65]  Edward L. Deci,et al.  Intrinsic Motivation and Self-Determination in Human Behavior , 1975, Perspectives in Social Psychology.

[66]  D. Bowen,et al.  Effects of a web-based intervention on women’s breast health behaviors , 2017, Translational behavioral medicine.

[67]  Austin M. Coe,et al.  Usability Testing of a Web-Based Decision Aid for Breast Cancer Risk Assessment Among Multi-Ethnic Women , 2016, AMIA.

[68]  A. Jemal,et al.  Cancer statistics, 2016 , 2016, CA: a cancer journal for clinicians.

[69]  Tong Xiao,et al.  Barriers and Facilitators to Patient-Provider Communication When Discussing Breast Cancer Risk to Aid in the Development of Decision Support Tools , 2015, AMIA.

[70]  R. Thomson,et al.  Development and evaluation of a risk communication curriculum for medical students. , 2014, Patient education and counseling.

[71]  Muin J Khoury,et al.  Awareness and utilization of BRCA1/2 testing among U.S. primary care physicians. , 2011, American journal of preventive medicine.

[72]  R. Thomson,et al.  Decision aids for people facing health treatment or screening decisions. , 2003, The Cochrane database of systematic reviews.

[73]  S L Rosenkranz,et al.  The practice orientations of physicians and patients: the effect of doctor-patient congruence on satisfaction. , 2000, Patient education and counseling.

[74]  B. Ponder,et al.  Prevalence and penetrance of mutations in BRCA1 and BRCA2 in a population based series of breast cancer cases , 2000 .

[75]  Anglian Breast Cancer Study Group Prevalence and penetrance of BRCA1 and BRCA2 mutations in a population-based series of breast cancer cases , 2000 .

[76]  M. Stefanek,et al.  Younger women at increased risk for breast cancer: perceived risk, psychological well-being, and surveillance behavior. , 1994, Journal of the National Cancer Institute. Monographs.

[77]  N. Dubrawsky Cancer statistics , 1989, CA: a cancer journal for clinicians.