Interventions of health education in mothers of children with cerebral palsy

Introduction: The functional performance of children with cerebral palsy is directly influenced by the therapeutic guidelines offered to caregivers . Objective: To evaluate the impact of educational health interventions in mothers of children with cerebral palsy about the guidelines of care. Methods: A qualitative interventional study developed in three stages between April and October of 2015 in the Nucleo de Tratamento e Estimulacao Precoce of the Universidade Federal do Ceara, Brazil. The participants were six mothers of children with cerebral palsy. In the first stage we used the technique of individual semi-structured interviews, full  recorded and transcribed  for the apprehension and exploration of the speeches; In the second stage, taking into account the saturation and categorization of the speeches, a protocol was developed and applied by the researchers divided into eight interventions of health education in the group of mothers then  in the third stage the individual interviews were redone for new exploration and comparison of speeches. The analysis of the data of the speeches was made through content analysis according to the proposal of Bardin. Results: Satisfaction reports on receiving care, improvements in the handling of children, greater safety in the implementation of therapeutic guidelines, better perception about the development of the child with the treatment and higher concern with self-care. Conclusions: The educational  interventions promoted a better perception of mothers of children with cerebral palsy about the therapeutic orientations received from the health team, since they are based on the family-centered model offering conditions to the mothers for the confrontation and reduction of the physical overload, emotional and psychological; through self-care in health, and information about means and adaptations for the adequate continuity of child care.

[1]  T. Arasıl,et al.  Fatigue in the mothers of children with cerebral palsy , 2017, Disability and rehabilitation.

[2]  Antonio Trabacca,et al.  Multidisciplinary rehabilitation for patients with cerebral palsy: improving long-term care , 2016, Journal of multidisciplinary healthcare.

[3]  D. F. Mello,et al.  Interações entre profissionais de saúde e mães de prematuros: influência no cuidado materno Interactions between health personnel and mothers of preterms: influences on maternal care Interacciones entre profesionales de salud y madres de prematuros: influencia en el cuidado materno , 2016 .

[4]  M. Perälä,et al.  Perceived influence, decision-making and access to information in family services as factors of parental empowerment: a cross-sectional study of parents with young children. , 2016, Scandinavian journal of caring sciences.

[5]  Vykuntaraju K Gowda,et al.  Caregiver-reported health-related quality of life of children with cerebral palsy and their families and its association with gross motor function: A South Indian study , 2016, Journal of neurosciences in rural practice.

[6]  D. Lüdecke,et al.  The impact of care on family and health-related quality of life of parents with chronically ill and disabled children , 2016, Disability and rehabilitation.

[7]  N. Dahan-Oliel,et al.  Perceptions of family-centred services in a paediatric rehabilitation programme: strengths and complexities from multiple stakeholders. , 2016, Child: care, health and development.

[8]  M. Fraser,et al.  Author Guidelines for Manuscripts Reporting on Qualitative Research , 2016, Journal of the Society for Social Work and Research.

[9]  M. Perälä,et al.  Associations between family characteristics and parental empowerment in the family, family service situations and the family service system. , 2016, Child: care, health and development.

[10]  M. Ketelaar,et al.  Parents' experiences with physical and occupational therapy for their young child with cerebral palsy: a mixed studies review. , 2014, Child: care, health and development.

[11]  A. Guzzetta,et al.  GAME (Goals - Activity - Motor Enrichment): protocol of a single blind randomised controlled trial of motor training, parent education and environmental enrichment for infants at high risk of cerebral palsy , 2014, BMC Neurology.

[12]  J. Nowotny,et al.  Back pain in mothers of cerebral palsied children. , 2012, Ortopedia, traumatologia, rehabilitacja.

[13]  Marilis Lemos de Almeida Análise de dados na pesquisa qualitativa: desafios ao pensamento criativo , 2014 .

[14]  Ângela Maria Sirena Alpino,et al.  Orientações de fisioterapia a mães de adolescentes com paralisia cerebral: abordagem educativa para o cuidar , 2013 .

[15]  H. Yılmaz,et al.  Depression and anxiety levels in mothers of children with cerebral palsy: a controlled study. , 2013, European journal of physical and rehabilitation medicine.

[16]  T. Long,et al.  Psychological distress and perceived support among Jordanian parents living with a child with cerebral palsy: a cross-sectional study. , 2013, Scandinavian journal of caring sciences.

[17]  R. Boyd,et al.  Predictors of psychological adjustment, experienced parenting burden and chronic sorrow symptoms in parents of children with cerebral palsy. , 2013, Child: care, health and development.

[18]  C. Vlaskamp,et al.  What parents find important in the support of a child with profound intellectual and multiple disabilities. , 2013, Child: care, health and development.

[19]  L. Bardin L'analyse de contenu , 2013 .

[20]  J. Gorter,et al.  The 'F-words' in childhood disability: I swear this is how we should think! , 2012, Child: care, health and development.

[21]  P. Arango Family-centered care. , 2011, Academic pediatrics.

[22]  Nelci Adriana Cicuto Ferreira Rocha,et al.  Efeito de um programa de fisioterapia funcional em crianças com paralisia cerebral associado a orientações aos cuidadores: estudo preliminar , 2009 .

[23]  G. D. Jacobs The physiology of mind-body interactions: the stress response and the relaxation response. , 2001, Journal of alternative and complementary medicine.

[24]  David P. Ausubel,et al.  The Acquisition and Retention of Knowledge: A Cognitive View , 2000 .