Supporting people with dementia using pervasive healthcare technologies

Information and communication technologies can provide new paradigms in healthcare provision. In particular, new Pervasive Healthcare technologies can revolutionise the dynamics of healthcare, enabling people to remain at home for longer with lower costs to health and welfare organisations. This book reveals how pervasive healthcare technologies have been designed in conjunction with users and carers. It explores the application of novel methods and technologies, encompassing the research, design and evaluation of a new set of pervasive healthcare solutions. An introduction to pervasive healthcare systems and services developed for people with dementia, this book describes this multidisciplinary area, primarily from a perspective of user need. Key topics covered include:- ICT for Inclusion- Pervasive healthcare - Smart homes - Ambient Assisting Living - Assistive technology- Cognitive prosthetics- Design process- User centred design- Context aware computing- Ethical considerations This book will be of interest to healthcare practitioners developing new health and social care paradigms; researchers and students engaged in pervasive computing studies; ubiquitous computing and mobile computing researchers; and clinicians who are working with technical researchers.

[1]  K. Yasuda,et al.  Successful guidance by automatic output of music and verbal messages for daily behavioural disturbances of three individuals with dementia , 2006, Neuropsychological rehabilitation.

[2]  J. Evans,et al.  Reducing everyday memory and planning problems by means of a paging system: a randomised control crossover study , 2001, Journal of neurology, neurosurgery, and psychiatry.

[3]  G. Hubbard,et al.  Including older people with dementia in research: Challenges and strategies , 2003, Aging & mental health.

[4]  Julie A. Jacko,et al.  The effects of multimodal feedback on older adults' task performance given varying levels of computer experience , 2004, Behav. Inf. Technol..

[5]  C D Nugent,et al.  ICT in the elderly and dementia , 2007, Aging & mental health.

[6]  R. Dröes,et al.  Effect of the Meeting Centres Support Program on informal carers of people with dementia: Results from a multi-centre study , 2006, Aging & mental health.

[7]  Charles T. Scialfa,et al.  Age differences in trust and reliance of a medication management system , 2005, Interact. Comput..

[8]  N. Charness,et al.  Factors Predicting the Use of Technology: Findings From the Center for Research and Education on Aging and Technology Enhancement (CREATE) , 2006 .

[9]  Mark Perry,et al.  Multimodal and ubiquitous computing systems: supporting independent-living older users , 2004, IEEE Transactions on Information Technology in Biomedicine.

[10]  Dan Hawthorn,et al.  How universal is good design for older users , 2002 .

[11]  Theresa F Moore,et al.  Giving Voice to Persons Living With Dementia: The Researcher’s Opportunities and Challenges , 2003, Nursing science quarterly.

[12]  Anind K. Dey,et al.  Understanding and Using Context , 2001, Personal and Ubiquitous Computing.

[13]  F. Miskelly.  A novel system of electronic tagging in patients with dementia and wandering. , 2004, Age and ageing.

[14]  C. Nugent,et al.  Review of ICT-based services for identified unmet needs in people with dementia , 2007, Ageing Research Reviews.

[15]  Bill N. Schilit,et al.  Context-aware computing applications , 1994, Workshop on Mobile Computing Systems and Applications.

[16]  D. Craig,et al.  Behavioural and psychological syndromes in Alzheimer's disease , 2004, International journal of geriatric psychiatry.

[17]  R. Kane,et al.  Unmet Care Needs and Key Outcomes in Dementia , 2005, Journal of the American Geriatrics Society.

[18]  Christian Balkenius,et al.  A Computational Model of Context Processing , 2000 .

[19]  David Craig,et al.  Regular Research ArticlesA Cross-Sectional Study of Neuropsychiatric Symptoms in 435 Patients With Alzheimer's Disease , 2005 .

[20]  C. Mathers,et al.  Global prevalence of dementia: a Delphi consensus study , 2005, The Lancet.

[21]  E Faber,et al.  A Dynamic Interactive Social Chart in Dementia CareAttuning Demand and Supply in the Care for Persons with Dementia and their Carers. , 2005, Studies in health technology and informatics.

[22]  F. Caird,et al.  Assessment of the elderly patient , 1974 .

[23]  D. Hawthorn.  Enhancing the contributions of older people to interface design , 2006 .

[24]  L. Gibbons,et al.  Quality of life in Alzheimer's disease: Patient and caregiver reports. , 1999 .

[25]  F. Huppert,et al.  CAMDEX: A Standardised Instrument for the Diagnosis of Mental Disorder in the Elderly with Special Reference to the Early Detection of Dementia , 1986, British Journal of Psychiatry.

[26]  J. Kaye.  Home-based technologies: A new paradigm for conducting dementia prevention trials , 2008, Alzheimer's & Dementia.

[27]  Alex Pentland,et al.  Socially aware, computation and communication , 2005, Computer.

[28]  Stephen S. Intille,et al.  A new research challenge: persuasive technology to motivate healthy aging , 2004, IEEE Transactions on Information Technology in Biomedicine.

[29]  Jay Lundell,et al.  Deploying wide-scale in-home assessment technology , 2008 .

[30]  D. DiDuca,et al.  User experience of intelligent buildings: a user-centred research framework , 2005 .

[31]  Bob Woods,et al.  The needs of older people with mental health problems according to the user, the carer, and the staff , 2003, International journal of geriatric psychiatry.

[32]  Andre Gustavo Adami,et al.  An Electronic Pillbox for Continuous Monitoring of Medication Adherence , 2006, 2006 International Conference of the IEEE Engineering in Medicine and Biology Society.

[33]  Isabel Margot-Cattin,et al.  Access technology and dementia care: Influences on residents’ everyday lives in a secure unit , 2006, Scandinavian journal of occupational therapy.

[34]  A Hofman,et al.  The prevalence of dementia in Europe: a collaborative study of 1980-1990 findings. Eurodem Prevalence Research Group. , 1991, International journal of epidemiology.

[35]  M. Lawton.  A multidimensional view of quality of life in frail elders , 1991 .

[36]  Lucy Suchman.  Plans and situated actions: the problem of human-machine communication , 1987 .

[37]  A. Hofman,et al.  Prevalence of dementia and major subtypes in Europe: A collaborative study of population-based cohorts. Neurologic Diseases in the Elderly Research Group. , 2000, Neurology.

[38]  Kate S. Hone,et al.  Eliciting user requirements with older adults: lessons from the design of an interactive domestic alarm system , 2004, Universal Access in the Information Society.

[39]  Andre Gustavo Adami,et al.  Medication Adherence in Healthy Elders , 2009, Journal of aging and health.

[40]  A. Hofman,et al.  Incidence of dementia and major subtypes in Europe: A collaborative study of population-based cohorts. Neurologic Diseases in the Elderly Research Group. , 2000, Neurology.

[41]  R. ter Horst,et al.  Some psychometric properties of the CAMCOG , 1993, Psychological Medicine.

[42]  Chris D. Nugent,et al.  Personalisation and Configuration of assistive technologies , 2008, 2008 30th Annual International Conference of the IEEE Engineering in Medicine and Biology Society.

[43]  Alan F. Newell,et al.  Requirements gathering using drama for computer vision-based monitoring in supportive home environments , 2006 .

[44]  Ronald Baecker,et al.  Designing interactive life story multimedia for a family affected by alzheimer's disease: a case study , 2005, CHI Extended Abstracts.

[45]  F. Oswald,et al.  The use of advanced tracking technologies for the analysis of mobility in Alzheimer's disease and related cognitive diseases , 2008, BMC geriatrics.

[46]  Jeffrey Kaye,et al.  Technology use by rural and urban oldest old. , 2009, Technology and health care : official journal of the European Society for Engineering and Medicine.

[47]  L. Nygård.  How can we get access to the experiences of people with dementia? , 2006, Scandinavian journal of occupational therapy.

[48]  William C. Mann,et al.  Enabling location-aware pervasive computing applications for the elderly , 2003, Proceedings of the First IEEE International Conference on Pervasive Computing and Communications, 2003. (PerCom 2003)..

[49]  Mark Weiser.  The computer for the 21st century , 1991 .

[50]  B. Winblad,et al.  Measuring long term effects and changes in the daily activities of people with dementia. , 2006, The journal of nutrition, health & aging.

[51]  R. Woods,et al.  A European consensus on outcome measures for psychosocial intervention research in dementia care , 2008, Aging & mental health.

[52]  Roger Orpwood,et al.  The installation and support of internationally distributed equipment for people with dementia , 2004, IEEE Transactions on Information Technology in Biomedicine.

[53]  Gregory D. Abowd,et al.  Towards a Better Understanding of Context and Context-Awareness , 1999, HUC.

[54]  Johannes Helander.  Exploiting Context Histories in Setting up an e-Home , 2005 .

[55]  M Orrell,et al.  Assessing needs from patient, carer and professional perspectives: the Camberwell Assessment of need for Elderly people in primary care. , 2000, Age and ageing.

[56]  A Hofman,et al.  Frequency and impact of neurologic diseases in the elderly of Europe: A collaborative study of population-based cohorts. , 2000, Neurology.

[57]  Roy Sterritt,et al.  Dynamic and Contextualised Behavioural Knowledge in Autonomic Communications , 2004, WAC.

[58]  L. Teri,et al.  Behavior and caregiver burden: behavioral problems in patients with Alzheimer disease and its association with caregiver distress. , 1997, Alzheimer disease and associated disorders.

[59]  T. Kitwood,et al.  Dementia Reconsidered: the Person Comes First , 1997 .

[60]  Lennart Magnusson,et al.  Views of family carers and older people of information technology. , 2002, British journal of nursing.

[61]  Ted Selker,et al.  A Look at Human Interaction with Pervasive Computers , 1999, IBM Syst. J..

[62]  P. Rabins,et al.  Measuring quality of life in dementia: conceptual and practical issues. , 1997, Alzheimer disease and associated disorders.

[63]  D. Norman.  The psychology of everyday things , 1990 .

[64]  S Shaji,et al.  The Prevalence of Dementia , 2022 .

[65]  M. Mickus,et al.  Televisits: Sustaining long distance family relationships among institutionalized elders through technology , 2002, Aging & mental health.

[66]  A Braekhus,et al.  Social and depressive stress suffered by spouses of patients with mild dementia. , 1998, Scandinavian journal of primary health care.

[67]  Barry R. Morstain,et al.  Evaluating the outcomes , 1978 .

[68]  L. Pearlin,et al.  The structure of coping. , 1978, Journal of health and social behavior.

[69]  Andre Gustavo Adami,et al.  Unobtrusive assessment of activity patterns associated with mild cognitive impairment , 2008, Alzheimer's & Dementia.

[70]  D. Hawthorn,et al.  Possible implications of aging for interface designers , 2000, Interact. Comput..

[71]  Axel Küpper,et al.  Quality of Context: What It Is And Why We Need It , 2004 .

[72]  Rose-Marie Dröes,et al.  Quality of life in dementia in perspective , 2006 .

[73]  R. Means,et al.  Younger people in dementia care: A review of service needs, service provision and models of good practice , 2002, Aging & mental health.

[74]  M. Orrell,et al.  Camberwell Assessment of Need for the Elderly (CANE) , 2000, British Journal of Psychiatry.

[75]  C. Brulin,et al.  Family members' narrated experiences of communicating via video-phone with patients with dementia staying at a nursing home , 2003, Journal of telemedicine and telecare.

[76]  S. Folstein,et al.  "Mini-mental state". A practical method for grading the cognitive state of patients for the clinician. , 1975, Journal of psychiatric research.

[77]  Peter Gregor,et al.  Designing for dynamic diversity: interfaces for older people , 2002, Assets '02.

[78]  B. Reisberg,et al.  The Global Deterioration Scale for assessment of primary degenerative dementia. , 1982, The American journal of psychiatry.

[79]  Rose-Marie Dröes,et al.  Subjective needs of people with dementia: a review of the literature , 2007, International Psychogeriatrics.

[80]  Chris D. Nugent,et al.  Can technology improve compliance to medication , 2005 .

[81]  Petteri Nurmi,et al.  Enabling proactiveness through context prediction , 2005 .

[82]  Kirsti Ala-Mutka and Yves Punie and Christine Redecker.  Digital Competence for Lifelong Learning , 2008 .

[83]  R. Means,et al.  'How can they tell?' A qualitative study of the views of younger people about their dementia and dementia care services. , 2004, Health & social care in the community.

[84]  S. Skevington,et al.  How can we best assess the quality of life of people with dementia? the Bath Assessment of Subjective Quality of Life in Dementia (BASQID). , 2007, The Gerontologist.

[85]  S. Reiss.  Multifaceted Nature of Intrinsic Motivation: The Theory of 16 Basic Desires , 2004 .

[86]  M. Ribbe,et al.  A review of quality of life instruments used in dementia , 2005, Quality of Life Research.

[87]  Roger Orpwood,et al.  The design of smart homes for people with dementia—user-interface aspects , 2005, Universal Access in the Information Society.

[88]  G. Wenger,et al.  Using network variation in practice: identification of support network type. , 2002, Health & social care in the community.

[89]  Roger Orpwood,et al.  Developing a technology 'wish-list' to enhance the quality of life of people with dementia , 2007 .

[90]  M. Mokhtari,et al.  Designing multimodal interaction for assistive robotic arm , 2007, 2007 IEEE 10th International Conference on Rehabilitation Robotics.

[91]  David Craig,et al.  A cross-sectional study of neuropsychiatric symptoms in 435 patients with Alzheimer's disease. , 2005, The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry.

[92]  Paul Dourish,et al.  What we talk about when we talk about context , 2004, Personal and Ubiquitous Computing.

[93]  V. Lloyd,et al.  Conducting Qualitative Interview Research With People With Expressive Language Difficulties , 2006, Qualitative health research.

[94]  Andrew F. Monk,et al.  Technological opportunities for supporting people with dementia who are living at home , 2008, Int. J. Hum. Comput. Stud..

[95]  Pauline Aalten.  Behavioral problems in dementia: course and risk factors , 2004 .

[96]  Andrew J. May,et al.  The design of next generation in-vehicle navigation systems for the older driver , 2005, Interact. Comput..

[97]  Joseph A. Maxwell,et al.  Qualitative Research Design: An Interactive Approach , 1996 .

[98]  Kiyoharu Aizawa,et al.  Efficient retrieval of life log based on context and content , 2004, CARPE'04.

[99]  Mary Smith.  Building a Personal Memory for Situated User Support , 2005 .

[100]  Peter Gregor,et al.  “User sensitive inclusive design”— in search of a new paradigm , 2000, CUU '00.

[101]  Kirsten Stalker,et al.  Eliciting user perspectives on what works , 1999, International journal of geriatric psychiatry.

[102]  L. Nygård,et al.  The use of everyday technology by people with dementia living alone: Mapping out the difficulties , 2007, Aging & mental health.

[103]  Chris D. Nugent,et al.  COGKNOW: Development of an ICT Device to Support People with Dementia , 2007 .