Writing wrongs? An analysis of published discourses about the use of patient information leaflets.

Much has been written about how to communicate with patients, but there has been little critical scrutiny of this literature. This paper presents an analysis of publications about the use of patient information leaflets. It suggests that two discourses can be distinguished in this literature. The first of these is the larger of the two. It reflects traditional biomedical concerns and it invokes a mechanistic model of communication in which patients are characterised as passive and open to manipulation in the interests of a biomedical agenda. The persistence of the biomedical model in this discourse is contrasted with the second discourse, which is smaller and more recent in origin. This second discourse draws on a political agenda of patient empowerment, and reflects this in its choice of outcomes of interest, its concern with the use of leaflets as a means of democratisation, and its orientation towards patients. It is suggested that the two discourses, though distinct, are not entirely discrete, and may begin to draw closer as they begin to draw on a wider set of resources, including sociological research and theory, to develop a rigorous theoretically grounded approach to patient information leaflets.

[1]  J. Trostle Medical compliance as an ideology. , 1988, Social science & medicine.

[2]  Howard S. Becker,et al.  Whose Side are we on , 1967 .

[3]  Sue Ziebland,et al.  Analysing qualitative data , 2000, BMJ : British Medical Journal.

[4]  P Ley,et al.  Memory for medical information. , 1979, The British journal of social and clinical psychology.

[5]  W. Waters,et al.  Knowledge of and attitudes to medicines in the Southampton community. , 1986, British journal of clinical pharmacology.

[6]  A Coulter,et al.  Evidence based patient information , 1998, BMJ.

[7]  J. Gregory,et al.  Implementation of the Patient Self-Determination Act in a community hospital. , 1995, New Jersey medicine : the journal of the Medical Society of New Jersey.

[8]  H. Waitzkin,et al.  A critical theory of medical discourse: ideology, social control, and the processing of social context in medical encounters. , 1989, Journal of health and social behavior.

[9]  Simon Chapman,et al.  'A healthy lifestyle might be the death of you': discourses on diet, cholesterol control and heart disease in the press and among the lay public , 1995 .

[10]  V. Entwistle,et al.  Developing Information Materials to Present the Findings of Technology Assessments to Consumers: The Experience of the NHS Centre for Reviews and Dissemination , 1998, International Journal of Technology Assessment in Health Care.

[11]  M. H. Schaeffer,et al.  Implementation of the patient self-determination act in a hospital setting. An initial evaluation. , 1995, Archives of internal medicine.

[12]  Claude E. Shannon,et al.  A mathematical theory of communication , 1948, MOCO.

[13]  John Wax Msw Self-Help Groups , 1986 .

[14]  T. Usherwood Development and randomized controlled trial of a booklet of advice for parents. , 1991, The British journal of general practice : the journal of the Royal College of General Practitioners.

[15]  Derek Roger,et al.  The benefits of providing information to patients , 1989 .

[16]  I. Purves,et al.  A PIL for every ill? Patient information leaflets (PILs): a review of past, present and future use. , 1998, Family practice.

[17]  S Lock Self help groups: the fourth estate in medicine? , 1986, British medical journal.

[18]  T. Morris,et al.  The meaning of medication. , 2001, Journal of the American Academy of Child and Adolescent Psychiatry.

[19]  L. Dobrée Pre-admission booklets for patients awaiting surgery. , 1989, Nursing times.

[20]  P Conrad,et al.  The meaning of medications: another look at compliance. , 1985, Social science & medicine.

[21]  R. Rault,et al.  The effects of providing chronic hemodialysis patients written material on advance directives. , 1993, American journal of kidney diseases : the official journal of the National Kidney Foundation.

[22]  D. Armstrong The patient's view. , 1984, Social science & medicine.

[23]  E. J. Mayeaux,et al.  Parent comprehension of polio vaccine information pamphlets. , 1996, Pediatrics.

[24]  J. Donovan Patient education and the consultation: the importance of lay beliefs. , 1991, Annals of the rheumatic diseases.

[25]  M. Goldsmith Vaccine information pamphlets here, but some physicians react strongly. , 1992, JAMA.

[26]  J. Kirwan,et al.  Does patient education in rheumatoid arthritis have therapeutic potential? , 1991, Annals of the rheumatic diseases.

[27]  G. Rutten,et al.  Patient education about cough: effect on the consulting behaviour of general practice patients. , 1991, The British journal of general practice : the journal of the Royal College of General Practitioners.

[28]  B. W. Hansen A randomized controlled trial on the effect of an information booklet for young families in Denmark. , 1990, Patient education and counseling.

[29]  A. Kellerman,et al.  The Constitution of Society : Outline of the Theory of Structuration , 2015 .

[30]  K. Bartholomew,et al.  An educational booklet diminishes anxiety in parents whose children receive total parenteral nutrition. , 1989, American journal of diseases of children.

[31]  Malcolm Coulthard,et al.  Advances in Written Text Analysis , 1994 .

[32]  R. Newcombe,et al.  Evaluation of drug information for cardiology patients. , 1991, British journal of clinical pharmacology.

[33]  L. Higgins,et al.  The effect of adjunct questions on older adults' recall of information from a patient education booklet. , 1995, Patient education and counseling.

[34]  D. Raynor WRITING PATIENT INFORMATION : A PHARMACIST'S GUIDE , 1992 .

[35]  T. Davis,et al.  The gap between patient reading comprehension and the readability of patient education materials. , 1990, The Journal of family practice.

[36]  L. Wallace Psychological preparation as a method of reducing the stress of surgery. , 1985, Journal of human stress.

[37]  S. Fisher A Discourse of the Social: Medical Talk/Power Talk/Oppositional Talk? , 1991 .

[38]  C. Wright,et al.  Knowledge in patients with rheumatoid arthritis: a longer term follow-up of a randomized controlled study of patient education leaflets. , 1998, British journal of rheumatology.

[39]  T. Heeren,et al.  Commercial discharge packs and breast-feeding counseling: effects on infant-feeding practices in a randomized trial. , 1987, Pediatrics.

[40]  M. Blaxter The causes of disease : Women talking , 1983 .

[41]  A. Camilleri Information leaflets in the rhinitis clinic? , 1991, Journal of Laryngology and Otology.

[42]  G. Williams Hope for the humblest? The role of self‐help in chronic illness: the case of ankylosing spondylitis , 1989 .

[43]  J. Aiman,et al.  Level of reading difficulty in The American College of Obstetricians and Gynecologsts Patient Education pamphlets , 1989, Obstetrics and gynecology.

[44]  M Emberton,et al.  New directions in information for patients , 1995, BMJ.

[45]  D. Mayo,et al.  Beware the Jabberwock and other perils of readability formulae , 1993, Transfusion.

[46]  K. Glanz,et al.  Readability and content analysis of print cholesterol education materials. , 1990, Patient education and counseling.

[47]  M. Dixon-Woods The production of printed consumer health information: order from chaos? , 2000 .

[48]  J. Ward,et al.  How risks of breast cancer and benefits of screening are communicated to women: analysis of 58 pamphlets , 1998, BMJ.

[49]  P. Ley,et al.  The use of readability formulas in health care , 1996 .

[50]  R. Jubb,et al.  Single-blind randomized controlled trial of an educational booklet for patients with chronic arthritis. , 1996, British journal of rheumatology.

[51]  D. Lupton,et al.  Discourse analysis: a new methodology for understanding the ideologies of health and illness. , 2010, Australian journal of public health.

[52]  L. Dougherty,et al.  Patient education. Turning over a new leaflet. , 1993, Nursing times.

[53]  E. Shea,et al.  An evaluation of breastfeeding promotion literature: does it really promote breastfeeding? , 1993, Canadian journal of public health = Revue canadienne de sante publique.

[54]  B. Williams Patient satisfaction: a valid concept? , 1994, Social science & medicine.

[55]  S. Venn,et al.  Written information for transurethral resection of the prostate--a national audit. , 1995, British journal of urology.

[56]  C. Samson The fracturing of medical dominance in British psychiatry , 1995 .

[57]  A. Bowling,et al.  An international comparison of health education literature on breast disorders , 1987 .

[58]  J T Macfarlane,et al.  Reducing reconsultations for acute lower respiratory tract illness with an information leaflet: a randomized controlled study of patients in primary care. , 1997, The British journal of general practice : the journal of the Royal College of General Practitioners.

[59]  J. LoGerfo,et al.  Effect of a self-care book on physician visits. A randomized trial. , 1980, JAMA.

[60]  K. Hjelm-Karlsson Comparison of oral, written and audio-visually based information as preparation for intravenous pyelography. , 1989, International journal of nursing studies.

[61]  V A Arthur,et al.  Written patient information: a review of the literature. , 1995, Journal of advanced nursing.

[62]  Myfanwy Morgan,et al.  Managing hypertension: beliefs and responses to medication among cultural groups , 1988 .

[63]  P. Kenrick,et al.  Palaeontology: Turning over a new leaf , 2001, Nature.

[64]  A comparative evaluation of 'The Pregnancy Book' and two other publications , 1985 .

[65]  G. Butler,et al.  Prehospital education: effectiveness with total hip replacement surgery patients. , 1996, Patient education and counseling.

[66]  R. Adelman,et al.  Older patient satisfaction with communication during an initial medical encounter. , 1994, Social science & medicine.

[67]  T Albert,et al.  How readable are practice leaflets? , 1992, BMJ.

[68]  J. Mckinlay Who is really ignorant--physician or patient? , 1975, Journal of health and social behavior.

[69]  J. Weinman Providing Written Information for Patients: Psychological Considerations , 1990, Journal of the Royal Society of Medicine.

[70]  L. Råstam,et al.  The discursive formation of health. A study of printed health education material used in primary care. , 1997, Patient education and counseling.

[71]  C. M. Boyle Difference Between Patients' and Doctors' Interpretation of Some Common Medical Terms , 1970, British medical journal.

[72]  T. Sheldon,et al.  Informed choice for users of health services: views on ultrasonography leaflets of women in early pregnancy, midwives, and ultrasonographers , 1996, BMJ.

[73]  R. Fitzpatrick,et al.  The Experience of Illness , 1985 .

[74]  M. Felice,et al.  The development of a testicular self-examination instructional booklet for adolescents. , 1989, Journal of adolescent health care : official publication of the Society for Adolescent Medicine.

[75]  I. Murray-Lyon,et al.  Preventing fetal alcohol effects; a trial of three methods of giving information in the antenatal clinic , 1990 .

[76]  A. Bateman Medical Defence Union , 1894, British medical journal.

[77]  C. Hawkey,et al.  Effect of information leaflets on knowledge in patients with gastrointestinal diseases. , 1989, Gut.

[78]  N. Britten Patients' ideas about medicines: a qualitative study in a general practice population. , 1994, The British journal of general practice : the journal of the Royal College of General Practitioners.

[79]  Klaus Bruhn Jensen,et al.  A Handbook of Qualitative Methodologies for Mass Communication Research , 1992 .

[80]  J. Howland,et al.  Does patient education cause side effects? A controlled trial. , 1990, The Journal of family practice.

[81]  Klaus Bruhn Jensen,et al.  When Is Meaning? Communication Theory, Pragmatism, and Mass Media Reception , 1991 .

[82]  P. Ley,et al.  Communicating with Patients: Improving Communication, Satisfaction and Compliance , 1988 .

[83]  D. Mant,et al.  Development and evaluation of complex interventions in health services research: case study of the Southampton heart integrated care project (SHIP) , 1999 .

[84]  C. Welch,et al.  REDUCTION OF POSTOPERATIVE PAIN BY ENCOURAGEMENT AND INSTRUCTION OF PATIENTS. A STUDY OF DOCTOR-PATIENT RAPPORT. , 1964, The New England journal of medicine.

[85]  E. F. Buzzard,et al.  Nuffield Provincial Hospitals Trust , 1941 .

[86]  W. Waters,et al.  Prescription Information Leaflets: A National Survey , 1990, Journal of the Royal Society of Medicine.

[87]  Psychology in the Curriculum , 1933 .

[88]  T A Sheldon,et al.  Evidence-Informed Patient Choice: Practical Issues of Involving Patients in Decisions About Health Care Technologies , 1998, International Journal of Technology Assessment in Health Care.

[89]  David Tuckett,et al.  Meetings Between Experts: An Approach to Sharing Ideas in Medical Consultations , 1986 .

[90]  L A Morris,et al.  Effects of written drug information on patient knowledge and compliance: a literature review. , 1979, American journal of public health.

[91]  P Ley,et al.  A method for increasing patients' recall of information presented by doctors , 1973, Psychological Medicine.

[92]  M. Roland,et al.  Randomized controlled trial of an educational booklet for patients presenting with back pain in general practice. , 1989, The Journal of the Royal College of General Practitioners.

[93]  G. Smith,et al.  Lay epidemiology and the prevention paradox: the implications of coronary candidacy for health education , 1991 .

[94]  M. Humphrey,et al.  Cognitive methods of preparing women for hysterectomy: does a booklet help? , 1985, The British journal of clinical psychology.

[95]  P. Ley 2 – PSYCHOLOGICAL STUDIES OF DOCTOR-PATIENT COMMUNICATION , 1977 .

[96]  C. Rose,et al.  Information for cancer patients entering a clinical trial--an evaluation of an information strategy. , 1993, European journal of cancer.

[97]  M. Speece,et al.  Readability of Pediatric Patient Education Materials , 1995, Clinical pediatrics.

[98]  The cervical screening muddle , 1998 .

[99]  A. Po,et al.  Readability of patient information leaflets on over‐the‐counter (OTC) medicines , 1994, Journal of clinical pharmacy and therapeutics.

[100]  K. Backett Image and reality , 1990 .

[101]  B. Turner,et al.  The interdisciplinary curriculum: from social medicine to postmodernism , 1990 .

[102]  S. Nettleton The Sociology of Health and Illness , 1995 .

[103]  D. Stewart,et al.  The Effect of Educational Brochures on Knowledge and Emotional Distress in Women With Abnormal Papanicolaou Smears , 1993, Obstetrics and gynecology.

[104]  Response to Leaflets About Eating and Shape by Women Concerned About Their Weight , 1992, Behavioural and Cognitive Psychotherapy.

[105]  J. Austoker,et al.  Written Information Needs of Women Who are Recalled for Further Investigation of Breast Screening: Results of a Multicentre Study , 1994, Journal of medical screening.

[106]  R. Attström,et al.  Oral hygiene instruction of adults by means of a self-instructional manual. , 1981, Journal of clinical periodontology.

[107]  D. Blake,et al.  Patient non-compliance: deviance or reasoned decision-making? , 1992, Social science & medicine.

[108]  P. Hobbs Health education with patients in hospital , 1977, Health education journal.

[109]  M E Mumford,et al.  A descriptive study of the readability of patient information leaflets designed by nurses. , 1997, Journal of advanced nursing.

[110]  M. Edwards Satisfying patients needs for surgical information , 1990, The British journal of surgery.