Rationale and methods of the ‘Northern Ireland Youth Wellbeing Survey’ and initial findings from the Strengths and Difficulties Questionnaire

Backgrounds and Aims: The Northern Ireland Youth Wellbeing Survey (NIYWS) was commissioned by the Health and Social Care Board (NI) with the aim of providing reliable prevalence estimates of the mental health problems of children and young people aged 2–19 years. Method: The NIYWS used a random probability design, stratified by deprivation decile and county, to ensure even geographical distribution and representation. The survey used a broad range of validated measures to identify children and young people who met established clinical criteria for common mood, anxiety and behaviour disorders, trauma related disorders, as well as those at risk of autism spectrum disorder, eating disorders, future psychotic illness, self-injury or suicide. Results: Data were collected on 3074 children and young people aged 2–19 years, as well as over 2800 parents. The survey achieved a high response rate (67%) and initial findings indicated that 11% of the sample were at risk of emotional or behavioural problems. Conclusions: The NIYWS was the first large scale nationally representative survey of the mental health of children and young people in NI. Despite the legacy of political violence the initial findings show comparable levels of emotional and behavioural problems to England.

[1]  B. Lueger-Schuster,et al.  Symptom structure of ICD-11 Complex Posttraumatic Stress Disorder (CPTSD) in trauma-exposed foster children: examining the International Trauma Questionnaire – Child and Adolescent Version (ITQ-CA) , 2020, European journal of psychotraumatology.

[2]  Deblina Roy,et al.  Impact of COVID-19 and lockdown on mental health of children and adolescents: A narrative review with recommendations , 2020, Psychiatry Research.

[3]  Punit Shah,et al.  Psychometric concerns with the 10-item Autism-Spectrum Quotient (AQ10) as a measure of trait autism in the general population , 2020, Experimental Results.

[4]  P. Hyland,et al.  The structure of ICD-11 PTSD and Complex PTSD in adolescents exposed to potentially traumatic experiences. , 2020, Journal of affective disorders.

[5]  Amanda M. Kutz,et al.  Eating Disorder Screening: a Systematic Review and Meta-analysis of Diagnostic Test Characteristics of the SCOFF , 2019, Journal of General Internal Medicine.

[6]  E. McNamara,et al.  Growing Up in Ireland , 2019, Longitudinal and Life Course Studies.

[7]  R. Bitsko,et al.  Prevalence and Treatment of Depression, Anxiety, and Conduct Problems in US Children , 2019, The Journal of pediatrics.

[8]  Zachary R. Steelman,et al.  Psychometric Assessments of Three Self-Report Autism Scales (AQ, RBQ-2A, and SQ) for General Adult Populations , 2019, Journal of Autism and Developmental Disorders.

[9]  P. McGorry,et al.  Early intervention in youth mental health: progress and future directions , 2018, Evidence-Based Mental Health.

[10]  M. Ruggeri,et al.  Comparison of Early Intervention Services vs Treatment as Usual for Early-Phase Psychosis: A Systematic Review, Meta-analysis, and Meta-regression , 2018, JAMA psychiatry.

[11]  J. Kerr,et al.  Mental health in children and young people , 2018 .

[12]  L. Berliner,et al.  International development and psychometric properties of the Child and Adolescent Trauma Screen (CATS). , 2017, Journal of affective disorders.

[13]  S. Zubrick,et al.  Key findings from the second Australian Child and Adolescent Survey of Mental Health and Wellbeing , 2016, The Australian and New Zealand journal of psychiatry.

[14]  A. Vandal,et al.  A systematic review of evidence for the psychometric properties of the Strengths and Difficulties Questionnaire , 2016 .

[15]  R. Kessler,et al.  Psychotic Experiences in the General Population: A Cross-National Analysis Based on 31,261 Respondents From 18 Countries. , 2015, JAMA psychiatry.

[16]  P. Lichtenstein,et al.  Oppositional defiant- and conduct disorder-like problems: neurodevelopmental predictors and genetic background in boys and girls, in a nationwide twin study , 2014, PeerJ.

[17]  D. Robins,et al.  Validation of the Modified Checklist for Autism in Toddlers, Revised With Follow-up (M-CHAT-R/F) , 2014, Pediatrics.

[18]  W. Veling,et al.  The validity of the 16-item version of the Prodromal Questionnaire (PQ-16) to screen for ultra high risk of developing psychosis in the general help-seeking population. , 2012, Schizophrenia bulletin.

[19]  Simon Baron-Cohen,et al.  Toward brief “Red Flags” for autism screening: The Short Autism Spectrum Quotient and the Short Quantitative Checklist for Autism in toddlers in 1,000 cases and 3,000 controls [corrected]. , 2012, Journal of the American Academy of Child and Adolescent Psychiatry.

[20]  T. B. Üstün,et al.  Age of onset of mental disorders: a review of recent literature , 2007, Current opinion in psychiatry.

[21]  C. Gillberg,et al.  Psychiatric telephone interview with parents for screening of childhood autism - tics, attention-deficit hyperactivity disorder and other comorbidities (A-TAC): preliminary reliability and validity. , 2005, The British journal of psychiatry : the journal of mental science.

[22]  B. Chorpita,et al.  Psychometric properties of the Revised Child Anxiety and Depression Scale in a clinical sample. , 2005, Behaviour research and therapy.

[23]  A. Pickles,et al.  Time trends in adolescent mental health. , 2004, Journal of child psychology and psychiatry, and allied disciplines.

[24]  H. Meltzer,et al.  The British Child and Adolescent Mental Health Survey 1999: the prevalence of DSM-IV disorders. , 2003, Journal of the American Academy of Child and Adolescent Psychiatry.

[25]  A. Osman,et al.  The Suicidal Behaviors Questionnaire-Revised (SBQ-R):Validation with Clinical and Nonclinical Samples , 2001, Assessment.

[26]  K. L. Gratz,et al.  Measurement of Deliberate Self-Harm: Preliminary Data on the Deliberate Self-Harm Inventory , 2001 .

[27]  B. Chorpita,et al.  Assessment of symptoms of DSM-IV anxiety and depression in children: a revised child anxiety and depression scale. , 2000, Behaviour research and therapy.

[28]  J. Lacey,et al.  The SCOFF questionnaire: assessment of a new screening tool for eating disorders , 1999, BMJ.

[29]  D. Williamson,et al.  Relationship of Childhood Abuse and Household Dysfunction to Many of the Leading Causes of Death in Adults: The Adverse Childhood Experiences (ACE) Study. , 1998, American journal of preventive medicine.

[30]  R. Goodman The Strengths and Difficulties Questionnaire: a research note. , 1997, Journal of child psychology and psychiatry, and allied disciplines.

[31]  A. Wilkinson Assessment of symptoms. , 1972, The British journal of medical psychology.

[32]  Marizen R. Ramirez,et al.  Adverse childhood experiences and trauma informed care: the future of health care , 2016, Pediatric Research.

[33]  V. Featherstone,et al.  A RAPID REVIEW OF THE EVIDENCE , 2014 .

[34]  Nisra Census 2011 Key Statistics for Northern Ireland , 2012 .

[35]  Paul D. Williams,et al.  A user's guide to the General Health Questionnaire , 1988 .