Interviewing people with aphasia: Insights into method adjustments from a pilot study

Background: An increasing number of researchers are using qualitative methods to study the impact of aphasia. However, there is a paucity of published research outlining if and how qualitative interview methods are altered with participants with aphasia, and how potential modifications impact on the rigour of such research. Aims: In a qualitative, pilot study we investigated (1) What services do males in Victoria with mild chronic aphasia perceive could be provided by the Australian Aphasia Association? (2) How is qualitative in‐depth interviewing method altered to accommodate the communicative difficulties experienced by people with aphasia? This paper reports on the second aim. Methods and Procedures: A qualitative phenomenological approach was adopted. Purposeful sampling was used to obtain four participants with mild chronic aphasia across the variables of geographical location and employment status at time of stroke. An interview guide was devised and refined with a fifth pilot participant. Interviews were videotaped to allow for transcription of total communication strategies and 20% of transcriptions were verified by an expert in aphasia. Outcomes and Results: When using the traditional open‐ended, non‐directive approach to qualitative interviewing, very little information was obtained from the pilot participant. The results from four further participants revealed that with participants with aphasia, the researcher is required to step out of the traditional role of the qualitative interviewer by altering questioning style, offering ideas to participants, and using supportive conversation techniques. Strategies used by participants require that interviews be videotaped so that the meaning of the total communication strategies used can be verified. Conclusions: Valuable data can be obtained from participants with aphasia when the interview method is altered appropriately to meet their communicative needs. The study highlights implications for enhancing rigour in qualitative interviews with people with aphasia.

[1]  G. Le Dorze,et al.  Auditory comprehension problems in aphasia from the perspective of aphasic persons and their families and friends. , 1996, Disability and rehabilitation.

[2]  Jack S. Damico,et al.  Qualitative methods in aphasia research: basic issues , 1999 .

[3]  A. Kertesz The Western Aphasia Battery , 1982 .

[4]  S. Brumfitt Losing your sense of self ; what aphasia can do , 1993 .

[5]  A. Braunack-Mayer,et al.  An Ethical Voice in the Silence of Aphasia: Judging Understanding and Consent in People with Aphasia , 2001, The Journal of Clinical Ethics.

[6]  G. Le Dorze,et al.  “Speaking for” behaviours in spouses of people with aphasia: A descriptive study of six couples in an interview situation , 2004 .

[7]  S. Parr Coping with aphasia: Conversations with 20 aphasic people , 1994 .

[8]  C. Westby Ethnographic Interviewing: Asking the Right Questions To the Right People in the Right Ways , 1990 .

[9]  R. Elman,et al.  The efficacy of group communication treatment in adults with chronic aphasia. , 1999, Journal of speech, language, and hearing research : JSLHR.

[10]  Adam Kendon,et al.  How gestures can become like words , 1988 .

[11]  Miranda Rose,et al.  The utility of arm and hand gestures in the treatment of aphasia , 2006 .

[12]  S. Parr Everyday reading and writing in aphasia: Role change and the influence of pre-morbid literacy practice , 1995 .

[13]  G. Le Dorze,et al.  The consequences of severe aphasia on the spouses of aphasic people: A description of the adaptation process , 2003 .

[14]  J. Rosenbek,et al.  Communication partners: Enhancing participation in life and communication for adults with aphasia in natural settings , 1997 .

[15]  C. Wallesch,et al.  Expectations of psychosocial adjustment in aphasia: A maut study with the code-müller scale of psychosocial adjustment , 1990 .

[16]  N. Simmons-Mackie,et al.  Communication strategies used by 'good' versus 'poor' speaking partners of individuals with aphasia , 1999 .

[17]  R. Cunningham Counselling someone with severe aphasia: and explorative case study. , 1998, Disability and rehabilitation.

[18]  Nada Žemva Aphasic patients and their families: wishes and limits , 1999 .

[19]  C. Anderson,et al.  Ascertaining the true incidence of stroke: experience from the Perth Community Stroke Study, 1989–1990 , 1993, The Medical journal of Australia.

[20]  S. Parr Psychosocial Aspects of Aphasia: Whose Perspectives? , 2001, Folia Phoniatrica et Logopaedica.

[21]  A. Kagan,et al.  Revealing the competence of aphasic adults through conversation: A challenge to health professionals. , 1995, Topics in stroke rehabilitation.

[22]  Time to talk: counselling for people with dysphasia. , 1996, Disability and rehabilitation.

[23]  D. Hersh Experiences of ending aphasia therapy. , 2001, International journal of language and communication disorders.

[24]  J. Bernicot,et al.  Communication deficits: assessment of subjects with frontal lobe damage in an interview setting. , 2001, International journal of language & communication disorders.

[25]  Marc Gutenstein,et al.  Talking About Aphasia , 1999, BMJ.

[26]  S. Byng,et al.  Predictors of health-related quality of life (HRQL) in people with chronic aphasia , 2003 .

[27]  G. L. Dorze,et al.  A description of the consequences of aphasia on aphasic persons and their relatives and friends, based on the WHO model of chronic diseases , 1995 .

[28]  R. Elman Multimethod Research: A Search for Understanding , 1995 .

[29]  W. Kaiser,et al.  Aphasia — A Social Approach , 1996, Springer US.