Bridging the Gap: Design for Intergenerational Engagement in Dementia Care

Designing for social inclusion in dementia requires careful consideration, appropriate interactions and technologies to effectively enrich and support engagement. Intergenerational interactions between young people and people with dementia have been widely documented to be mutually beneficial through challenging perceptions of one another. As such, positioning younger people and people with dementia as key actors in user-centred design processes has been a hallmark of our research to date. In this chapter, we discuss design processes and outcomes from bespoke technologies, which encourage intergenerational engagement and challenge perceptions in dementia care. We reflect on the use of such technologies, and the strengths of younger volunteers and people with dementia in this process. We introduce examples of the technologies we have designed and evaluated in this context, discussing the challenges and opportunities of designing with the young and old.

[1]  Chris D. Nugent,et al.  Supporting people with dementia using pervasive healthcare technologies , 2010 .

[2]  Kate Swaffer,et al.  Dementia: Stigma, Language, and Dementia-friendly , 2014, Dementia.

[3]  Anne Marie Piper,et al.  A Critical Lens on Dementia and Design in HCI , 2017, CHI.

[4]  Roisin McNaney,et al.  DemYouth: Co-Designing and Enacting Tools to Support Young People's Engagement with People with Dementia , 2017, CHI.

[5]  Ladislav Volicer,et al.  The clinical course of advanced dementia. , 2009, The New England journal of medicine.

[6]  Amanda Clarke,et al.  The use of life story work with people with dementia to enhance person-centred care. , 2010, International journal of older people nursing.

[7]  Rmn Jane McKeown Pg Dip,et al.  The use of life story work with people with dementia to enhance person-centred care , 2010 .

[8]  F. Cowdell Care of older people with dementia in an acute hospital setting. , 2010, Nursing standard (Royal College of Nursing (Great Britain) : 1987).

[9]  Janelle S Taylor,et al.  On recognition, caring, and dementia. , 2008, Medical anthropology quarterly.

[10]  Roisin McNaney,et al.  Ticket to Talk: Supporting Conversation between Young People and People with Dementia through Digital Media , 2018, CHI.

[11]  W. Mortenson,et al.  The need for a social revolution in residential care. , 2015, Journal of aging studies.

[12]  John C. McCarthy,et al.  Printer Pals: Experience-Centered Design to Support Agency for People with Dementia , 2019, CHI.

[13]  John C. McCarthy,et al.  Technology as experience , 2004, INTR.

[14]  Gail Kenning,et al.  Designing for Dementia: Iterative Grief and Transitional Objects , 2018, Design Issues.

[15]  David Unbehaun,et al.  Intersections in HCI, Design and Dementia: Inclusivity in Participatory Approaches , 2019, Conference on Designing Interactive Systems.

[16]  John C. McCarthy,et al.  The Value of Experience-Centred Design Approaches in Dementia Research Contexts , 2017, CHI.

[17]  H. O’Rourke,et al.  Factors that Affect Quality of Life from the Perspective of People with Dementia: A Metasynthesis , 2015, Journal of the American Geriatrics Society.

[18]  Christian I. Penaloza,et al.  Towards Social Robots that Support Exercise Therapies for Persons with Dementia , 2018, UbiComp/ISWC Adjunct.

[19]  Kellie Morrissey,et al.  Exploring the Design of Tailored Virtual Reality Experiences for People with Dementia , 2018, CHI.

[20]  Masanobu Abe,et al.  New monitoring scheme for persons with dementia through monitoring-area adaptation according to stage of disease , 2017, LocalRec@SIGSPATIAL.

[21]  Mima Cattan,et al.  Social Capital and Loneliness Among the Very Old Living at Home and in Institutional Settings , 2013, Journal of aging and health.

[22]  John C. McCarthy,et al.  Care and Design: An Ethnography of Mutual Recognition in the Context of Advanced Dementia , 2019, CHI.

[23]  Katie Brittain,et al.  An Age-Old Problem: Examining the Discourses of Ageing in HCI and Strategies for Future Research , 2015, TCHI.