Subjective well-being and the measurement of quality in healthcare.

Quality continues to be placed at the heart of discussions about healthcare. This raises important questions about precisely what quality care is, and how it should be measured. An overall measure of subjective well-being (SWB) that assesses and joins up different stages of the treatment process, and the different people affected, could potentially be used to capture the full impact of quality care throughout the entire treatment process. This article presents a temporal model through which SWB links all stages in the treatment and care process, thus allowing the overall quality of care to be determined and valued according to its direct effect on people's lives. Drawing on existing medical and behavioural studies, we populate this model with evidence that demonstrates how SWB is affected at different points along the patient pathway. SWB is shown to have an effect on outcomes at all stages of the treatment experience and improved health and quality outcomes are shown to consistently enhance SWB. Furthermore, SWB measures are shown to be a suitable method to value the impact of healthcare on the families and carers of patients and, in this way, can join up health outcomes to show wider effects of treatment on patients' lives. Measuring an individual's SWB throughout his or her treatment experience can enable a full appraisal of the quality of care that they receive. This will facilitate service improvements at the micro level and help value treatments for resource allocation purposes at the macro level.

[1]  J. Mcewen,et al.  Measuring Health—A Review of Quality of Life Measurement Scales , 1992 .

[2]  J. Clapp,et al.  Development as freedom , 1999 .

[3]  Mita Giacomini,et al.  One of these things is not like the others: the idea of precedence in health technology assessment and coverage decisions. , 2005, The Milbank quarterly.

[4]  S. Shortell,et al.  Crossing the quality chasm: implications for health services administration education. , 2004, The Journal of health administration education.

[5]  A. Coulter,et al.  The quest for quality in the NHS : a mid-term evaluation of the ten-year quality agenda , 2003 .

[6]  P. Keck,et al.  Health-related quality of life using the SF-36 in patients with bipolar disorder compared with patients with chronic back pain and the general population. , 2000, Journal of affective disorders.

[7]  M. Mckee,et al.  Consultants' attitudes to clinical governance: barriers and incentives to engagement. , 2007, Public health.

[8]  F. Kraaimaat,et al.  Determinants of Psychological Distress and Its Course in the First Year After Diagnosis in Rheumatoid Arthritis Patients , 1997, Journal of Behavioral Medicine.

[9]  L. Ried,et al.  Validating a Self-report Measure of Global Subjective Well-being to Predict Adverse Clinical Outcomes , 2006, Quality of Life Research.

[10]  Paul Dolan,et al.  How Can Measures of Subjective Well-Being Be Used to Inform Public Policy? , 2007, Perspectives on psychological science : a journal of the Association for Psychological Science.

[11]  S. Kaasa,et al.  Prognostic factors for patients with inoperable non-small cell lung cancer, limited disease. The importance of patients' subjective experience of disease and psychosocial well-being. , 1989, Radiotherapy and oncology : journal of the European Society for Therapeutic Radiology and Oncology.

[12]  Michael A. Shields,et al.  Exploring the economic and social determinants of psychological well‐being and perceived social support in England , 2005 .

[13]  D. Kahneman,et al.  A Survey Method for Characterizing Daily Life Experience: The Day Reconstruction Method , 2004, Science.

[14]  Christine Goeschel,et al.  Crossing the quality chasm: who will lead? , 2002, Michigan health & hospitals.

[15]  Rosemary K. Rushmer,et al.  Healthcare professionals’ views on clinician engagement in quality improvement , 2007 .

[16]  G. Guyatt,et al.  The impact of measuring patient-reported outcomes in clinical practice: a systematic review of the literature , 2008, Quality of Life Research.

[17]  Rourke Aj Evaluating the quality of medical care. , 1957, Hospital progress.

[18]  Alison J. Carr,et al.  An Ethical Dilemma Medical Errors and Medical Culture an Error of Omission Education and Debate , 2022 .

[19]  T. Lynch,et al.  Pain and emotion: new research directions. , 2001, Journal of clinical psychology.

[20]  R. Layard,et al.  Measuring subjective well-being for public policy , 2011 .

[21]  Susanne Iwarsson,et al.  Indicators for return to work after stroke and the importance of work for subjective well-being and life satisfaction. , 2003, Journal of rehabilitation medicine.

[22]  P. Dolan,et al.  Getting used to it: the adaptive global utility model. , 2010, Journal of health economics.

[23]  J. Wenner,et al.  Randomized clinical trial of laparoscopic versus open fundoplication for gastro‐oesophageal reflux , 2004, The British journal of surgery.

[24]  G. Schiff,et al.  Beyond structure-process-outcome: Donabedian's seven pillars and eleven buttresses of quality. , 2001, The Joint Commission journal on quality improvement.

[25]  P. Dolan,et al.  Valuing health directly , 2009, BMJ : British Medical Journal.

[26]  Sheldon Cohen,et al.  Does positive affect influence health? , 2005, Psychological bulletin.

[27]  D. Kahneman,et al.  Developments in the Measurement of Subjective Well-Being , 2006 .

[28]  H. Rüdiger,et al.  Improvement of schizophrenic patients’ subjective well-being under atypical antipsychotic drugs , 2001, Schizophrenia Research.

[29]  Paul Frijters,et al.  The Anatomy of Subjective Well-Being , 2001 .

[30]  J. Gallacher,et al.  Does Psychological Distress Predict the Risk of Ischemic Stroke and Transient Ischemic Attack?: The Caerphilly Study , 2002, Stroke.

[31]  G. Tomlinson,et al.  Psychopathology and quality of life in schizophrenia. , 1997, Journal of psychiatry & neuroscience : JPN.

[32]  E. Mayer,et al.  Appraising the Quality of Care in Surgery , 2009, World Journal of Surgery.

[33]  F. De Conno,et al.  Quality-of-life assessment during a palliative care programme. , 1990, Annals of oncology : official journal of the European Society for Medical Oncology.

[34]  K. Holland Proposed changes for nurse education in England (UK) as a result of the Darzi report (DoH, 2008a) Health Quality Care for All--NHS next stage review final report: some initial observations. , 2008, Nurse education in practice.

[35]  P. Dolan,et al.  Modeling valuations for EuroQol health states. , 1997, Medical care.

[36]  H. F. Nelson,et al.  Effectiveness of three types of spouse-involved behavioral alcoholism treatment. , 1991, British journal of addiction.

[37]  H. Faller,et al.  Psychological distress predicts functional outcomes at three and twelve months after total knee arthroplasty. , 2003, General hospital psychiatry.

[38]  Ed Diener,et al.  Very Happy People , 2002, Psychological science.

[39]  R J Maxwell,et al.  Quality assessment in health. , 1984, British medical journal.

[40]  P. Wehmeier,et al.  Quality of life and subjective well-being during treatment with antipsychotics in out-patients with schizophrenia , 2007, Progress in Neuro-Psychopharmacology and Biological Psychiatry.

[41]  W. M. Gill Subjective well-being: properties of an instrument for measuring this (in the chronically ill). , 1984, Social science & medicine.

[42]  P. Shekelle,et al.  Evidence for Improving Palliative Care at the End of Life A Systematic Review , 2008, Annals of Internal Medicine.

[43]  D. Spiegelhalter,et al.  Quality of life measures in health care. I: Applications and issues in assessment. , 1992, BMJ.

[44]  P. Dolan,et al.  Losing Sight of the Wood for the Trees , 2012, PharmacoEconomics.

[45]  P. Dolan,et al.  Do we really know what makes us happy A review of the economic literature on the factors associated with subjective well-being , 2008 .

[46]  S. Lyubomirsky,et al.  The Benefits of Frequent Positive Affect: Does Happiness Lead to Success? , 2005, Psychological bulletin.

[47]  R. Honkanen,et al.  Self‐reported life satisfaction and treatment factors in patients with schizophrenia, major depression and anxiety disorder , 1999, Acta psychiatrica Scandinavica.

[48]  L. George,et al.  Physician- and self-ratings of health, neuroticism and subjective well-being among men and women. , 1984 .

[49]  Donald M. Berwick,et al.  Connections Between Quality Measurement and Improvement , 2003, Medical care.

[50]  J. Sitzia,et al.  Patient satisfaction: a review of issues and concepts. , 1997, Social science & medicine.

[51]  N. Janjan,et al.  Update in cancer pain syndromes. , 2006, Journal of palliative medicine.

[52]  Don E. Detmer,et al.  Quality at a Crossroads , 1998 .

[53]  T. Strandberg,et al.  Positive life orientation as a predictor of 10-year outcome in an aged population. , 2004, Journal of clinical epidemiology.

[54]  L. Verbrugge,et al.  Short-term dynamics of disability and well-being. , 1994, Journal of health and social behavior.

[55]  Richard E. Lucas,et al.  Subjective Weil-Being: Three Decades of Progress , 2004 .

[56]  C. Stoddard,et al.  Randomized clinical trial of laparoscopic versus open fundoplication for gastro‐oesophageal reflux disease , 2004, The British journal of surgery.

[57]  Michael Donnelly,et al.  The measurement of health-related quality of life , 2001 .

[58]  M. Eisemann,et al.  Predictive factors for the outcome of a multidisciplinary pain rehabilitation programme on sick-leave and life satisfaction in patients with whiplash trauma and other myofascial pain: a follow-up study , 1998, Clinical rehabilitation.

[59]  R. Fleming Equity and Excellence: liberating the NHS , 2010 .

[60]  R. Çeliker,et al.  Fibromyalgia versus Rheumatoid Arthritis: A Comparison of Psychological Disturbance and Life Satisfaction , 2001 .

[61]  J. George,et al.  Integrating bottom-up and top-down theories of subjective well-being: the case of health. , 1993, Journal of personality and social psychology.

[62]  H. Mandin,et al.  Psychosocial Predictors of Survival in End‐Stage Renal Disease , 1990, The Journal of nervous and mental disease.