Fatigue among Elders in Caregiving and Noncaregiving Roles

Fatigue is a complex symptom prevalent in informal caregiving. When role demands exceed caregiver resources, fatigue ensues and caregiving can be compromised. The purpose of this study was to compare perceptions of fatigue among older adults (N = 92) caring for spouses with Alzheimer’s disease, Parkinson’s disease, or cancer with a control group of older adults (N = 33) whose spouses required no extra care. Caregiving elders reported more fatigue, less energy, and more sleep difficulty than did control participants. All caregiving groups reported similar levels of fatigue, energy, sleep, and self-reported health even though there were marked differences regarding spousal status. Health care providers can support older caregivers in monitoring their own health and in recognizing the need for services that support the caregiving role.

[1]  Caregiving Transitions: Changes in Depression Among Family Caregivers of Relatives With Dementia , 1994, Nursing research.

[2]  J. Sangl,et al.  Caregivers of the frail elderly: a national profile. , 1987, The Gerontologist.

[3]  B H Chang,et al.  Contributors to and mediators of psychological well-being for informal caregivers. , 1999, The journals of gerontology. Series B, Psychological sciences and social sciences.

[4]  N. J. Vrabec.  Literature review of social support and caregiver burden, 1980 to 1995. , 1997, Image--the journal of nursing scholarship.

[5]  M. Wallhagen,et al.  Caregiving Demands: Their Difficulty and Effects on the Well-Being of Elderly Caregivers , 1992, Scholarly Inquiry for Nursing Practice.

[6]  A. Richardson,et al.  Fatigue: a concept analysis. , 1996, International journal of nursing studies.

[7]  R. Hanley,et al.  Problems of mentally ill elderly as perceived by patients, families, and clinicians. , 1981, The Gerontologist.

[8]  C. Lindgren.  The caregiver career. , 1993, Image--the journal of nursing scholarship.

[9]  Lynn Cattanach,et al.  The nature of elder impairment and its impact on family caregivers' health and psychosocial functioning. , 1991, The Gerontologist.

[10]  Kathryn A. Lee,et al.  Validity and reliability of a scale to assess fatigue , 1991, Psychiatry Research.

[11]  P V Rabins,et al.  The impact of dementia on the family. , 1982, JAMA.

[12]  M. Skaff,et al.  Caregiving and the stress process: an overview of concepts and their measures. , 1990, The Gerontologist.

[13]  A. Barusch.  Problems and coping strategies of elderly spouse caregivers. , 1988, The Gerontologist.

[14]  R. Schulz,et al.  Psychiatric and physical morbidity effects of caregiving. , 1990, Journal of gerontology.

[15]  Baldwin Ba,et al.  Family caregivers of institutionalized and noninstitutionalized elderly individuals. , 1993 .

[16]  H S Wilson,et al.  Family Caregiving for a Relative With Alzheimer's Dementia: Coping with Negative Choices , 1989, Nursing research.

[17]  M. Baumgarten.  The health of persons giving care to the demented elderly: a critical review of the literature. , 1989, Journal of clinical epidemiology.

[18]  A. Wingate,et al.  Defining and measuring fatigue. , 1999, Image--the journal of nursing scholarship.

[19]  B. Chenoweth,et al.  Dementia: the experience of family caregivers. , 1986, The Gerontologist.

[20]  R Snyder-Halpern,et al.  Instrumentation to describe subjective sleep characteristics in healthy subjects. , 1987, Research in nursing & health.

[21]  J. Baker,et al.  Persistent fatigue in well women. , 1995, Women & health.

[22]  B. Bergman-Evans.  A health profile of spousal Alzheimer's caregivers. Depression and physical health characteristics. , 1994, Journal of psychosocial nursing and mental health services.

[23]  H. Nygaard.  Strain on caregivers of demented elderly people living at home. , 1988, Scandinavian journal of primary health care.

[24]  J. Verran,et al.  Do patients sleep in the hospital? , 1988, Applied nursing research : ANR.

[25]  R. Holicky,et al.  Caring for the Caregivers: The Hidden Victims of Illness and Disability , 1996, Rehabilitation nursing : the official journal of the Association of Rehabilitation Nurses.

[26]  M. Liken,et al.  Loss and Grief among Family Caregivers of Relatives with Dementia , 1993 .

[27]  E. Clipp,et al.  Patients with cancer and their spouse caregivers. Perceptions of the illness experience , 1992, Cancer.

[28]  R. McCorkle.  The measurement of symptom distress. , 1987, Seminars in oncology nursing.