Investigating people’s attitudes towards participating in longitudinal health research: an intersectionality-informed perspective

[1]  J. Linseisen,et al.  Framework and baseline examination of the German National Cohort (NAKO) , 2022, European Journal of Epidemiology.

[2]  C. Schmidt,et al.  Statistical Analysis in the German National Cohort (NAKO) – Specific Aspects and General Recommendations , 2022, European Journal of Epidemiology.

[3]  A. Rönkä “From Birth to Death, From Beginning to End”: Participant Experience and the Meaning of Research Participation in a Longitudinal Birth Cohort Study , 2022, SAGE Open.

[4]  Women’s Health in Canada , 2022 .

[5]  T. Ziese,et al.  Results and Strategies for a Diversity-Oriented Public Health Monitoring in Germany , 2022, International journal of environmental research and public health.

[6]  Richard A. Villa,et al.  Inclusion , 2000, Late Self-Portraits.

[7]  S. Willich,et al.  Strategies to Enhance Retention in a Cohort Study Among Adults of Turkish Descent Living in Berlin , 2021, Journal of Immigrant and Minority Health.

[8]  G. Bolte,et al.  Classification tree analysis for an intersectionality-informed identification of population groups with non-daily vegetable intake , 2021, BMC Public Health.

[9]  G. Bolte,et al.  Intersectionality and eco-social theory: a review of potentials for public health knowledge and social justice , 2021, Critical Public Health.

[10]  F. Stanaway,et al.  Representation of racial and ethnic minority groups in cohort studies evaluating risk factors for dementia: protocol for a scoping review , 2021, BMJ Open.

[11]  D. Lizotte,et al.  Intersectionality in quantitative research: A systematic review of its emergence and applications of theory and methods , 2021, SSM - population health.

[12]  K. Wyche,et al.  Factors Influencing Successful Recruitment of Racial and Ethnic Minority Patients for an Observational HIV Cohort Study in Washington, DC , 2021, Journal of Racial and Ethnic Health Disparities.

[13]  J. Müller-Nordhorn,et al.  Trust, medical expertise and humaneness: A qualitative study on people with cancer’ satisfaction with medical care , 2021, Health expectations : an international journal of public participation in health care and health policy.

[14]  U. Goerling,et al.  Learning-by-doing: the importance of experiential knowledge sharing for meeting the information needs of people with colorectal cancer in Germany—a qualitative study , 2021, BMJ Open.

[15]  L. Bowleg,et al.  Evolving Intersectionality Within Public Health: From Analysis to Action. , 2021, American journal of public health.

[16]  Nina Degele,et al.  Intersektionalität. Zur Analyse sozialer Ungleichheiten , 2020, Feministische Theorie und Kritische Medienkulturanalyse.

[17]  K. Bozorgmehr,et al.  Towards inclusionary and diversity-sensitive public health: the consequences of exclusionary othering in public health using the example of COVID-19 management in German reception centres and asylum camps , 2020, BMJ Global Health.

[18]  P. Jaehn,et al.  Non-response in a national health survey in Germany: An intersectionality-informed multilevel analysis of individual heterogeneity and discriminatory accuracy , 2020, PloS one.

[19]  G. Bolte,et al.  Practice of reporting social characteristics when describing representativeness of epidemiological cohort studies – A rationale for an intersectional perspective , 2020, SSM - population health.

[20]  D. Craufurd,et al.  “It’s being part of the big picture, even though you’re a tiny jigsaw piece”—motivations and expectations of individuals participating in the Enroll-HD observational study , 2020, Journal of Community Genetics.

[21]  E. Draper,et al.  Improving Understanding of Participation and Attrition Phenomena in European Cohort Studies: Protocol for a Multi-Situated Qualitative Study , 2019, JMIR research protocols.

[22]  J. Pangritz Intersektionalität , 2020, Handbuch Ganztagsbildung.

[23]  W. Ahrens,et al.  Study invitations with envelopes made from recycled paper do not increase likelihood of active responses or study participation in the German National Cohort , 2019, BMC Research Notes.

[24]  K. Bozorgmehr,et al.  Health monitoring among asylum seekers and refugees: a state-wide, cross-sectional, population-based study in Germany , 2019, Emerging Themes in Epidemiology.

[25]  M. Loeffler,et al.  Evaluating selection bias in a population-based cohort study with low baseline participation: the LIFE-Adult-Study , 2019, BMC Medical Research Methodology.

[26]  T. Lampert,et al.  Integration of Migrant Populations into Health Monitoring in Germany: Results from a Feasibility Study , 2019 .

[27]  T. Bärnighausen,et al.  The influence of interviewers on survey responses among female sex workers in Zambia , 2019, BMC Medical Research Methodology.

[28]  T. Ziese,et al.  Improving the information base regarding the health of people with a migration background.Project description and initial findings from IMIRA , 2019, Journal of health monitoring.

[29]  M. Melter,et al.  KUNO-Kids birth cohort study: rationale, design, and cohort description , 2019, Molecular and Cellular Pediatrics.

[30]  Kathleen Heft Brauner Osten – Überlegungen zu einem populären Deutungsmuster ostdeutscher Andersheit , 2018, Feministische Studien.

[31]  A. Barnett,et al.  Patterns of response by sociodemographic characteristics and recruitment methods for women in UK population surveys and cohort studies , 2018, Women & health.

[32]  T. Pischon,et al.  Participants' decision to enroll in cohort studies with biobanks: quantitative insights from two German studies. , 2017, Personalized Medicine.

[33]  D. Bowen,et al.  De-identified genomic data sharing: the research participant perspective , 2017, Journal of Community Genetics.

[34]  S. Subramanian,et al.  Can intersectionality theory enrich population health research? , 2017, Social science & medicine.

[35]  Nina Klünder Differenzierte Ermittlung des Gender Care Gap auf Basis der repräsentativen Zeitverwendungsdaten 2012/13 , 2017 .

[36]  C. Witt,et al.  Women's reasons for participation in a clinical trial for menstrual pain: a qualitative study , 2016, BMJ Open.

[37]  A. Magallares Drive for thinness and pursuit of muscularity: the role of gender ideologies , 2016 .

[38]  M. Bergmann,et al.  Participants’ Accounts on Their Decision to Join a Cohort Study With an Attached Biobank , 2016, Journal of empirical research on human research ethics : JERHRE.

[39]  Ruha Benjamin,et al.  Informed Refusal , 2016 .

[40]  K. Juel,et al.  Survey nonresponse among ethnic minorities in a national health survey – a mixed-method study of participation, barriers, and potentials , 2015, Ethnicity & health.

[41]  W. McCaskill-Stevens,et al.  Gaining control over breast cancer risk: Transforming vulnerability, uncertainty, and the future through clinical trial participation - a qualitative study. , 2015, Sociology of health & illness.

[42]  Patricia Hill Collins,et al.  Intersectionality's Definitional Dilemmas , 2015 .

[43]  N. Meer,et al.  What can health inequalities researchers learn from an intersectionality perspective? Understanding social dynamics with an inter-categorical approach? , 2015 .

[44]  A. Rommel,et al.  Beteiligung von Menschen mit Migrationshintergrund an Gesundheitssurveys des Robert Koch-Instituts , 2015, Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz.

[45]  Jan Wright,et al.  Social class, anxieties and mothers' foodwork. , 2015, Sociology of health & illness.

[46]  N. Tyler,et al.  Culture and health , 2014, The Lancet.

[47]  German National Cohort Consortium,et al.  The German National Cohort: aims, study design and organization , 2014, European Journal of Epidemiology.

[48]  C. Witt,et al.  Clinical trial participants’ experiences of completing questionnaires: a qualitative study , 2014, BMJ Open.

[49]  S. Cohn From health behaviours to health practices: an introduction. , 2014, Sociology of health & illness.

[50]  New S Tudy The German National Cohort: aims, study design and organization , 2014 .

[51]  S. Cox,et al.  Accessing health services through the back door: a qualitative interview study investigating reasons why people participate in health research in Canada , 2013, BMC medical ethics.

[52]  E. Jabs,et al.  Willingness to participate in genomics research and desire for personal results among underrepresented minority patients: a structured interview study , 2013, Journal of Community Genetics.

[53]  Jenny Reardon,et al.  On the Emergence of Science and Justice , 2013 .

[54]  V. Moore,et al.  The gendered politics of childhood obesity , 2013 .

[55]  C. Seale,et al.  Altruism and participation in longitudinal health research? Insights from the Whitehall II Study. , 2012, Social science & medicine.

[56]  L. Bowleg,et al.  The problem with the phrase women and minorities: intersectionality-an important theoretical framework for public health. , 2012, American journal of public health.

[57]  O. Hankivsky Women's health, men's health, and gender and health: implications of intersectionality. , 2012, Social science & medicine.

[58]  Jeffrey C Murray,et al.  Active choice but not too active: Public perspectives on biobank consent models , 2011, Genetics in Medicine.

[59]  E. Jabs,et al.  Reasons for participating and genetic information needs among racially and ethnically diverse biobank participants: a focus group study , 2011, Journal of Community Genetics.

[60]  V. Moore,et al.  In the name of the child , 2010 .

[61]  S. Fullerton,et al.  Glad You Asked: Participants' Opinions of Re-Consent for DbGap Data Submission , 2010, Journal of empirical research on human research ethics : JERHRE.

[62]  Myra Marx Ferree,et al.  Practicing Intersectionality in Sociological Research: A Critical Analysis of Inclusions, Interactions, and Institutions in the Study of Inequalities* , 2010 .

[63]  N. Hallowell,et al.  An investigation of patients’ motivations for their participation in genetics-related research , 2009, Journal of Medical Ethics.

[64]  M. Dixon-Woods,et al.  Why do people cooperate with medical research? Findings from three studies. , 2009, Social science & medicine.

[65]  A. Fearnley Inclusion: The Politics of Difference in Medical Research , 2008 .

[66]  Lisa Bowleg,et al.  When Black + Lesbian + Woman ≠ Black Lesbian Woman: The Methodological Challenges of Qualitative and Quantitative Intersectionality Research , 2008 .

[67]  J. Gundgaard,et al.  The effect of non-response on estimates of health care utilisation: linking health surveys and registers. , 2007, European journal of public health.

[68]  Lehana Thabane,et al.  Alternatives to project-specific consent for access to personal information for health research: what is the opinion of the Canadian public? , 2007, Journal of the American Medical Informatics Association : JAMIA.

[69]  S. Galea,et al.  Participation rates in epidemiologic studies. , 2007, Annals of epidemiology.

[70]  S. Moebus,et al.  Baseline recruitment and analyses of nonresponse of the Heinz Nixdorf recall study: Identifiability of phone numbers as the major determinant of response , 2005, European Journal of Epidemiology.

[71]  Davina Cooper Challenging Diversity: Rethinking Equality and the Value of Difference , 2004 .

[72]  Bev Skeggs,et al.  Class, Self, Culture , 2003 .

[73]  Y. Gunaratnam Researching 'Race' and Ethnicity: Methods, Knowledge and Power , 2003 .

[74]  J. Ormel,et al.  Survey non-response in the Netherlands: effects on prevalence estimates and associations. , 2003, Annals of epidemiology.

[75]  Y. Gunaratnam Faking ‘Race’ or Making ‘Race’? ‘Race-Of-Interviewer-Effects’ in Survey Research , 2003 .

[76]  Hilde van der Togt,et al.  Publisher's Note , 2003, J. Netw. Comput. Appl..

[77]  K. Crenshaw Demarginalizing the Intersection of Race and Sex: A Black Feminist Critique of Antidiscrimination Doctrine, Feminist Theory and Antiracist Politics , 1989 .