A shared treatment decision‐making approach between patients with chronic conditions and their clinicians: the case of diabetes

In this paper, we discuss the Charles et al. approach to shared treatment decision‐making (STDM) as applied to patients with chronic conditions and their clinicians. We perceive differences between the type of treatment decisions (e.g. end‐of‐life care, surgical treatment of cancer) that generated existing approaches of shared decision‐making for acute care conditions (including the Charles et al. model) and the treatment decisions that patients with chronic conditions need to make and revisit on an ongoing basis. For instance, treatment decisions in the chronic care setting are more likely to require a more active patient role in carrying out the decision and to offer a longer window of opportunity to make decisions and to revisit and reverse them without important loss than acute care decisions. The latter may require minimal patient participation to realize, are often urgent, and may be irreversible. Given these differences, we explore the applicability of the Charles et al. model of STDM in the chronic care context, especially chronic care that relies heavily on patient self‐management (e.g. diabetes). To apply the Charles et al. model in this clinical context, we suggest the need to emphasize the patient–clinician relationship as one of partners in making difficult treatment choices and to add a new component to the shared decision‐making approach: the need for an ongoing partnership between the clinical team (not just the clinician) and the patient. In the last section of the paper, we explore potential healthcare system barriers to STDM in chronic care delivery. Throughout the discussion we identify areas for further research.

[1]  Timothy P. Hofer,et al.  When do patients and their physicians agree on diabetes treatment goals and strategies, and what difference does it make? , 2003, Journal of General Internal Medicine.

[2]  John D. Piette,et al.  Dimensions of patient-provider communication and diabetes self-care in an ethnically diverse population , 2003, Journal of General Internal Medicine.

[3]  Amiram Gafni,et al.  Self‐reported use of shared decision‐making among breast cancer specialists and perceived barriers and facilitators to implementing this approach , 2004, Health expectations : an international journal of public participation in health care and health policy.

[4]  Michael D Cabana,et al.  Does continuity of care improve patient outcomes? , 2004, The Journal of family practice.

[5]  H. Holman,et al.  Chronic disease--the need for a new clinical education. , 2004, JAMA.

[6]  Amiram Gafni,et al.  Effect of a decision aid on knowledge and treatment decision making for breast cancer surgery: a randomized trial. , 2004, JAMA.

[7]  L. Walter,et al.  Pitfalls of converting practice guidelines into quality measures: lessons learned from a VA performance measure. , 2004, JAMA.

[8]  D. Goldfarb Patients at the centre: in our practice, and in our use of language , 2004, ACP journal club.

[9]  Sally Thorne,et al.  The Structure of Everyday Self-Care Decision Making in Chronic Illness , 2003, Qualitative health research.

[10]  T. Kettunen,et al.  Negotiation in Type 2 Diabetes Counseling: From Problem Recognition to Mutual Acceptance During Lifestyle Counseling , 2003, Qualitative health research.

[11]  Susan Michie,et al.  Patient-centredness in chronic illness: what is it and does it matter? , 2003, Patient education and counseling.

[12]  V. Montori,et al.  Decisional attributes of patients with diabetes: the aspirin choice. , 2003, Diabetes care.

[13]  Mark D Schwartz,et al.  Effect of communications training on medical student performance. , 2003, JAMA.

[14]  R. Ryckman,et al.  Provider-patient interaction in diabetes care: effects on patient self-care and outcomes. A systematic review. , 2003, Patient education and counseling.

[15]  Morton B. Brown,et al.  The direct medical cost of type 2 diabetes. , 2003, Diabetes care.

[16]  Amiram Gafni,et al.  Helping patients make informed choices: a randomized trial of a decision aid for adjuvant chemotherapy in lymph node-negative breast cancer. , 2003, Journal of the National Cancer Institute.

[17]  C. Charles,et al.  Shared treatment decision making: what does it mean to physicians? , 2003, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[18]  C. Charles,et al.  Women's perceptions about treatment decision making for ovarian cancer. , 2003, Gynecologic oncology.

[19]  T. Bodenheimer,et al.  Patient self-management of chronic disease in primary care. , 2002, JAMA.

[20]  Victor M Montori,et al.  The impact of planned care and a diabetes electronic management system on community-based diabetes care: the Mayo Health System Diabetes Translation Project. , 2002, Diabetes care.

[21]  Thomas Bodenheimer,et al.  Improving primary care for patients with chronic illness: the chronic care model, Part 2. , 2002, JAMA.

[22]  Thomas Bodenheimer,et al.  Improving primary care for patients with chronic illness. , 2002, JAMA.

[23]  C. Charles,et al.  Impact of Cancer-Related Decision Aids : Summary , 2002 .

[24]  C. Charles,et al.  Impact of cancer-related decision aids. , 2002, Evidence report/technology assessment.

[25]  C. Schmid,et al.  Self-management education for adults with type 2 diabetes: a meta-analysis of the effect on glycemic control. , 2002, Diabetes care.

[26]  J. Cox,et al.  Differences between perspectives of physicians and patients on anticoagulation in patients with atrial fibrillation: observational study. , 2001, BMJ : British Medical Journal.

[27]  V. Montori,et al.  From artisan to architect: the specialist and systems of provision of diabetes care in 2001. , 2001, Endocrine practice : official journal of the American College of Endocrinology and the American Association of Clinical Endocrinologists.

[28]  C. Charles,et al.  Lessons learned from the Decision Board: a unique and evolving decision aid , 2000, Health expectations : an international journal of public participation in health care and health policy.

[29]  S. Watt Clinical decision‐making in the context of chronic illness , 2000, Health expectations : an international journal of public participation in health care and health policy.

[30]  N. Britten,et al.  Misunderstandings in general practice prescribing decisions: a qualitative study , 2000 .

[31]  C P Bradley,et al.  Misunderstandings in prescribing decisions in general practice: qualitative study , 2000, BMJ : British Medical Journal.

[32]  Amiram Gafni,et al.  What do we mean by partnership in making decisions about treatment? , 1999, BMJ.

[33]  C. Charles,et al.  Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model. , 1999, Social science & medicine.

[34]  M. Campbell,et al.  Diabetes care from diagnosis: effects of training in patient-centred care on beliefs, attitudes and behaviour of primary care professionals. , 1999, Patient education and counseling.

[35]  Ann Louise Kinmonth,et al.  General practice Randomised controlled trial of patient centred care of diabetes in general practice : impact on current wellbeing and future disease risk , 1998 .

[36]  A Gafni,et al.  The physician-patient encounter: the physician as a perfect agent for the patient versus the informed treatment decision-making model. , 1998, Social science & medicine.

[37]  M. Campbell,et al.  Randomised controlled trial of patient centred care of diabetes in general practice: impact on current wellbeing and future disease risk. The Diabetes Care From Diagnosis Research Team. , 1998, BMJ.

[38]  C. Charles,et al.  Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). , 1997, Social science & medicine.

[39]  P. Taylor Clinical Decision Making: From Theory to Practice , 1996 .

[40]  M. Dimatteo,et al.  The Role of Patient Participation in the Doctor Visit: Implications for adherence to diabetes care , 1996, Diabetes Care.

[41]  L. Henderson On the Social System , 1993 .

[42]  D. Eddy Anatomy of a decision , 1990 .

[43]  D. Eddy Clinical decision making: from theory to practice. Anatomy of a decision. , 1990, JAMA.

[44]  S. Kaplan,et al.  Assessing the Effects of Physician-Patient Interactions on the Outcomes of Chronic Disease , 1989, Medical care.

[45]  E. Mishler,et al.  Social contexts of health, illness, and patient care , 1981, Psychological Medicine.