On the Exploitation of Research Subjects

The issue of vulnerable populations in research is a highly contested one. The debate is highly charged and illuminative, but misguided in terms of its practical value. The error in much of the current debate involves trying to objectively define the subjective emotional experiences of individuals, and worse still, to create protections from this abstract standardization of individual experience. The purpose of vulnerability debates is about protecting those who are in no position to fully defend their interests from exploitation. Therefore the point of this article is to articulate the futility of operationalizing vulnerability and to instead focus on exploitation as the key moral variable in research ethics.

[1]  Victoria A. Miller,et al.  The Concept of Voluntary Consent , 2011, The American journal of bioethics : AJOB.

[2]  F. Ingelfinger Informed (but uneducated) consent. , 1972, New England Journal of Medicine.

[3]  Jeremy Sugarman,et al.  A Response to Commentators on “The Limitations of ‘Vulnerability’ as a Protection for Human Research Participants” , 2004, The American journal of bioethics : AJOB.

[4]  F. Ingelfinger Informed (but uneducated) consent. , 1972 .

[5]  G. Böhme,et al.  Dark Medicine: Rationalizing Unethical Medical Research , 2007 .

[6]  Robert E. Goodin,et al.  Protecting the vulnerable : a reanalysis of our social responsibilities , 1985 .

[7]  M. Kottow The Vulnerable and the Susceptible , 2003, Bioethics.

[8]  H. Jonas Philosophical Reflections on Experimenting with Human Subjects , 1979 .

[9]  A. Silvers Historical Vulnerability and Special Scrutiny: Precautions against Discrimination in Medical Research , 2004, The American journal of bioethics : AJOB.

[10]  T. H. Allegri The Code of Federal Regulations , 1986 .

[11]  E. Emanuel Ending Concerns about Undue Inducement , 2004, The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics.

[12]  D. Guenter,et al.  Ethical considerations in international HIV vaccine trials: summary of a consultative process conducted by the Joint United Nations Programme on HIV/AIDS (UNAIDS) , 2000, Journal of medical ethics.

[13]  Clarifying Confusions about Coercion , 2005, The Hastings Center report.

[14]  杨彬 EXPLOITATION , 2020, Reasons for Welfare.

[15]  Y. Khaliq,et al.  Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans , 2012 .

[16]  M. Angell The ethics of clinical research in the Third World. , 1997, The New England journal of medicine.

[17]  Z. Bankowski,et al.  Council for International Organizations of Medical Sciences , 1991 .

[18]  H. Jonas Philosophical Essays: From Ancient Creed to Technological Man , 1974 .

[19]  B. Rogers Ethics and Research , 1990, AAOHN journal : official journal of the American Association of Occupational Health Nurses.