Reporting the whole story: Analysis of the ‘out‐of‐scope’ questions from the James Lind Alliance Teenage and Young Adult Cancer Priority Setting Partnership Survey
暂无分享,去创建一个
B. Phillips | F. Gibson | J. Whelan | L. Fern | R. Hough | Michael Groszmann | S. Aldiss | K. Dyker | H. Gravestock | S. Morgan | H. Veitch | Max Williamson | S. Upadhyaya | Samuel G. Smith | A. Callaghan | L. Hamrang | Demi McGeachy | Sonia Malik
[1] F. Gibson,et al. Longitudinal cohort study of the impact of specialist cancer services for teenagers and young adults on quality of life: outcomes from the BRIGHTLIGHT study , 2020, BMJ Open.
[2] L. Soanes,et al. The support and information needs of adolescents and young adults with cancer when active treatment ends , 2020, BMC Cancer.
[3] T. Greenhalgh,et al. What happens after James Lind Alliance Priority Setting Partnerships? A qualitative study of contexts, processes and impacts , 2020, Research Involvement and Engagement.
[4] L. Soanes,et al. Exploring Young People’s Experience of Ending Active Cancer Treatment , 2020, Cancer nursing.
[5] A. Rosenberg,et al. End-of-Life Communication Needs for Adolescents and Young Adults with Cancer: Recommendations for Research and Practice. , 2020, Journal of adolescent and young adult oncology.
[6] F. Gibson,et al. The BRIGHTLIGHT National Survey of the Impact of Specialist Teenage and Young Adult Cancer Care on Caregivers' Information and Support Needs. , 2019, Cancer nursing.
[7] Natalie K. Bradford,et al. Do specialist youth cancer services meet the physical, psychological and social needs of adolescents and young adults? A cross sectional study. , 2019, European journal of oncology nursing : the official journal of European Oncology Nursing Society.
[8] A. Ferrari,et al. Models of care for adolescent and young adult cancer programs , 2019, Pediatric blood & cancer.
[9] R. Skinner,et al. Evidence-based recommendations for the organization of long-term follow-up care for childhood and adolescent cancer survivors: a report from the PanCareSurFup Guidelines Working Group , 2019, Journal of Cancer Survivorship.
[10] F. Gibson,et al. Research priorities for young people with cancer: a UK priority setting partnership with the James Lind Alliance , 2019, BMJ Open.
[11] Kara Noskoff,et al. Empowering adolescents and young adults to support, lead, and thrive: Development and validation of an AYA Oncology Child Life Program. , 2019, Journal of pediatric nursing.
[12] Myoungock Jang,et al. Socioeconomic Status and Racial or Ethnic Differences in Participation: Web-Based Survey , 2019, JMIR research protocols.
[13] S. Ziebland,et al. Communication with children and adolescents about the diagnosis of their own life-threatening condition , 2019, The Lancet.
[14] F. Gibson. How Far Do Research Priority Setting Exercises Influence What Research Is Undertaken: A Little, a Lot, or Not at All? , 2019, Cancer nursing.
[15] C. Kenten,et al. Understanding care when cure is not likely for young adults who face cancer: a realist analysis of data from patients, families and healthcare professionals , 2019, BMJ Open.
[16] R. Goldsby,et al. Treatment Decision-Making Involvement in Adolescents and Young Adults With Cancer. , 2018, Oncology nursing forum.
[17] L. Parker,et al. After Childhood Cancer: a Qualitative Study of Family Physician, Parent/Guardian, and Survivor Information Needs and Perspectives on Long-Term Follow-up and Survivorship Care Plans , 2019, Journal of Cancer Education.
[18] F. Gibson,et al. Conceptualizing age-appropriate care for teenagers and young adults with cancer: a qualitative mixed-methods study , 2018, Adolescent health, medicine and therapeutics.
[19] A. Boaz,et al. How to engage stakeholders in research: design principles to support improvement , 2018, Health Research Policy and Systems.
[20] M. Storksdieck,et al. Patient-centered communication between adolescent and young adult cancer survivors and their healthcare providers: Identifying research gaps with a scoping review. , 2017, Patient education and counseling.
[21] Mary Madden,et al. Exploring the challenge of health research priority setting in partnership: reflections on the methodology used by the James Lind Alliance Pressure Ulcer Priority Setting Partnership , 2016, Research Involvement and Engagement.
[22] S. Crowe,et al. Missed opportunities for impact in patient and carer involvement: a mixed methods case study of research priority setting , 2015, Research Involvement and Engagement.
[23] F. Gibson,et al. The Art of Age-Appropriate Care: Reflecting on a Conceptual Model of the Cancer Experience for Teenagers and Young Adults , 2013, Cancer nursing.
[24] P. Glasziou,et al. Avoidable waste in the production and reporting of research evidence , 2009, The Lancet.
[25] P. Babb,et al. Classification and incidence of cancers in adolescents and young adults in England 1979–1997 , 2002, British Journal of Cancer.