Diagnosis and decision making for patients with disorders of consciousness: a survey among family members.

[1]  Steven Laureys,et al.  Disorders of consciousness after acquired brain injury: the state of the science , 2014, Nature Reviews Neurology.

[2]  Adrian M. Owen,et al.  Detecting awareness after severe brain injury , 2013, Nature Reviews Neuroscience.

[3]  J. Fins.  Disorders of consciousness and disordered care: families, caregivers, and narratives of necessity. , 2013, Archives of physical medicine and rehabilitation.

[4]  Eva Grill,et al.  Rationale and design of the prospective German registry of outcome in patients with severe disorders of consciousness after acute brain injury. , 2013, Archives of physical medicine and rehabilitation.

[5]  E. Racine,et al.  Perspectives and Experience of Healthcare Professionals on Diagnosis, Prognosis, and End-of-Life Decision Making in Patients with Disorders of Consciousness , 2013 .

[6]  A. Tennant,et al.  Can we scientifically and reliably measure the level of consciousness in vegetative and minimally conscious States? Rasch analysis of the coma recovery scale-revised. , 2013, Archives of physical medicine and rehabilitation.

[7]  Hans Förstl,et al.  Surrogate decision making for patients with end‐stage dementia , 2012, International journal of geriatric psychiatry.

[8]  M. Leonardi,et al.  Burden and needs of 487 caregivers of patients in vegetative state and in minimally conscious state: Results from a national study , 2012, Brain injury.

[9]  Steven Laureys,et al.  Disorders of consciousness: responding to requests for novel diagnostic and therapeutic interventions , 2012, The Lancet Neurology.

[10]  E. Hoster,et al.  Diagnostic and ethical challenges in disorders of consciousness and locked-in syndrome: a survey of German neurologists , 2012, Journal of Neurology.

[11]  G. Borasio,et al.  How family caregivers' medical and moral assumptions influence decision making for patients in the vegetative state: a qualitative interview study , 2012, Journal of Medical Ethics.

[12]  M. Flentje,et al.  Advance directives: prevalence and attitudes of cancer patients receiving radiotherapy , 2012, Supportive Care in Cancer.

[13]  Annette Rid,et al.  Systematic Review: The Effect on Surrogates of Making Treatment Decisions for Others , 2011, Annals of Internal Medicine.

[14]  B. Solarino,et al.  A national survey of Italian physicians’ attitudes towards end-of-life decisions following the death of Eluana Englaro , 2011, Intensive Care Medicine.

[15]  Steven Laureys,et al.  Attitudes towards end-of-life issues in disorders of consciousness: a European survey , 2011, Journal of Neurology.

[16]  Ross Zafonte,et al.  Assessment scales for disorders of consciousness: evidence-based recommendations for clinical practice and research. , 2010, Archives of physical medicine and rehabilitation.

[17]  D. Wendler,et al.  Can We Improve Treatment Decision-Making for Incapacitated Patients? , 2010, The Hastings Center report.

[18]  G. Borasio,et al.  Limiting life-sustaining treatment in German intensive care units: a multiprofessional survey. , 2010, Journal of critical care.

[19]  H. Prigerson,et al.  Prolonged grief and depression in caregivers of patients in vegetative state , 2010, Brain injury.

[20]  M. Boly,et al.  Diagnostic accuracy of the vegetative and minimally conscious state: Clinical consensus versus standardized neurobehavioral assessment , 2009, BMC neurology.

[21]  S. Scheer.  Questionnaire used in the study , 2009 .

[22]  J. Illes,et al.  Profiles of Neurological Outcome Prediction Among Intensivists , 2009, Neurocritical care.

[23]  M. Kosinski,et al.  Evaluation of the meaningfulness of health‐related quality of life improvements as assessed by the SF‐36 and the EQ‐5D VAS in patients with active Crohn’s disease , 2009, Alimentary pharmacology & therapeutics.

[24]  Josep Maria Haro,et al.  Comparison of Population Health Status in Six European Countries: Results of a Representative Survey Using the EQ-5D Questionnaire , 2009, Medical care.

[25]  B. Onwuteaka-Philipsen,et al.  Physicians' experiences with end-of-life decision-making: Survey in 6 European countries and Australia , 2008, BMC medicine.

[26]  L. Ganzini.  Artificial nutrition and hydration at the end of life: Ethics and evidence , 2006, Palliative and Supportive Care.

[27]  J. Beaumont,et al.  Psychological needs of patients in low awareness states, their families, and health professionals , 2005, Neuropsychological rehabilitation.

[28]  J. Giacino,et al.  The JFK Coma Recovery Scale-Revised: measurement characteristics and diagnostic utility. , 2004, Archives of physical medicine and rehabilitation.

[29]  S. Ferrario,et al.  Patients in a persistent vegetative state: caregiver attitudes and reactions , 2001, Acta neurologica Scandinavica.

[30]  C. Stocking,et al.  Physicians' Attitudes about the Care of Patients in the Persistent Vegetative State: A National Survey , 1996, Annals of Internal Medicine.

[31]  Trevor Murrells,et al.  Survey of British clinicians' views on management of patients in persistent vegetative state , 1996, The Lancet.

[32]  D. Asch,et al.  Why do physicians prefer to withdraw some forms of life support over others? Intrinsic attributes of life-sustaining treatments are associated with physicians' preferences. , 1996, Medical care.

[33]  R. Jox.  End-of-life decision making concerning patients with disorders of consciousness , 2011 .

[34]  L. Sazbon,et al.  Characteristic reactions of relatives of post-coma unawareness patients in the process of adjusting to loss. , 1994, Brain injury.

[35]  A. Williams.  EuroQol : a new facility for the measurement of health-related quality of life , 1990 .

[36]  A. Jonsen,et al.  Clinical Ethics: A Practical Approach to Ethical Decisions in Clinical Medicine , 1982 .

[37]  I. Pordeus,et al.  Health and Quality of Life Outcomes Measurement Properties of the Brazilian Version of the Pediatric Quality of Life Inventory (pedsql™) Cancer Module Scale , 2022 .