Maintaining the Social Flow of Evidence-Informed Palliative Care: Use and Misuse of YouTube

This review article is aimed to explore the use of the social media website YouTube (www.youtube.com) as an evidence resource in palliative care, for patients and caregivers, students and professionals, and providers and policy-makers in developing countries' settings. The reviewed evidence reiterated the role of this social media website in palliative care practice, education and research in the area of cancer. Efficacy studies on impact of such media on palliative care delivery in developing countries are still lacking.

[1]  David Topps,et al.  YouTube as a Platform for Publishing Clinical Skills Training Videos , 2013, Academic medicine : journal of the Association of American Medical Colleges.

[2]  J. Powell,et al.  “People power” or “pester power”? YouTube as a forum for the generation of evidence and patient advocacy☆ , 2013, Patient education and counseling.

[3]  A. Hayanga,et al.  Medical information on YouTube. , 2008, JAMA.

[4]  L Fernandez-Luque,et al.  The Role of Taxonomies in Social Media and the Semantic Web for Health Education , 2013, Methods of Information in Medicine.

[5]  A. Bleckmann,et al.  YouTube, dentistry, and dental education. , 2011, Journal of dental education.

[6]  Margaret Sampson,et al.  A systematic review of methods for studying consumer health YouTube videos, with implications for systematic reviews , 2013, PeerJ.

[7]  J. Seigne,et al.  YouTube as source of prostate cancer information. , 2010, Urology.

[8]  Vicente Traver,et al.  A Domain-Based Approach for Retrieving Trustworthy Health Videos from YouTube , 2013, MedInfo.

[9]  D. Jorgensen,et al.  [Patient information]. , 1974, Sygeplejersken.

[10]  Xiaoli Nan,et al.  When Vaccines Go Viral: An Analysis of HPV Vaccine Coverage on YouTube , 2012, Health communication.

[11]  Carol Haigh,et al.  YouTube as a source of clinical skills education. , 2013, Nurse education today.

[12]  L. Sharoff.  Integrating YouTube into the nursing curriculum. , 2011, Online journal of issues in nursing.

[13]  E. Augustson,et al.  Cancer Survivorship in the Age of YouTube and Social Media: A Narrative Analysis , 2011, Journal of medical Internet research.

[14]  Dustin J. Welbourne,et al.  Science communication on YouTube: Factors that affect channel and video popularity , 2016, Public understanding of science.

[15]  V. Ganesh,et al.  Patient information on breast reconstruction in the era of the world wide web. A snapshot analysis of information available on youtube.com. , 2014, Breast.

[16]  Clement Chau,et al.  YouTube as a participatory culture. , 2010, New directions for youth development.

[17]  L. Wallace,et al.  Human papillomavirus vaccination coverage on YouTube. , 2008, American journal of preventive medicine.

[18]  Vineet M. Arora,et al.  The YouTube Generation: Implications for Medical Professionalism , 2008, Perspectives in biology and medicine.

[19]  C. Basch,et al.  Characteristics of YouTube™ Videos Related to Mammography , 2014, Journal of Cancer Education.

[20]  G. Demiris,et al.  YouTube as a tool for pain management with informal caregivers of cancer patients: a systematic review. , 2014, Journal of pain and symptom management.

[21]  A. Ferrari,et al.  Videos on Rhabdomyosarcoma on YouTube: an Example of the Availability of Information on Pediatric Tumors on the Web , 2012, Journal of pediatric hematology/oncology.

[22]  Anand K. Gramopadhye,et al.  Healthcare information on YouTube: A systematic review , 2015, Health Informatics J..

[23]  C. Basch,et al.  Analysis of YouTubeTM videos related to bowel preparation for colonoscopy. , 2014, World journal of gastrointestinal endoscopy.

[24]  Neil Baum,et al.  Social media networking: YouTube and search engine optimization. , 2011, The Journal of medical practice management : MPM.

[25]  Elly A. Konijn,et al.  YouTube as a Research Tool: Three Approaches , 2013, Cyberpsychology Behav. Soc. Netw..