Exploring the palliative and end-of-life care needs of those affected by progressive long-term neurological conditions

AbstractCurrently, there is a new policy focus on the palliative and end-of-life care needs of people with progressive long-term neurological conditions (PLTNC). Perhaps because of the comparative rarity of these diseases, which often have long and unpredictable illness trajectories, little dialogue has taken place to date about the associated care needs. This paper reviews some of the key challenges raised in providing care for people with PLTNC, highlighting the complex problems faced by people affected by these conditions and the challenges these pose for care delivery in the community. In reviewing the literature and policy documents it is clear that there is wide scope for further research. The authors conclude with an overview of a study currently being undertaken at the University of Nottingham to explore these issues further. The aim of the study is to work collaboratively with health and social care professionals working with service users with advanced neurological conditions (especially Hunting...