The impact of congenital esophageal atresia on the family functioning.

[1]  C. Brosig,et al.  Stress and quality of life among parents of children with congenital heart disease referred for psychological services , 2018, Congenital heart disease.

[2]  A. Villani,et al.  Respiratory problems in children with esophageal atresia and tracheoesophageal fistula , 2017, Italian Journal of Pediatrics.

[3]  R. Rosen,et al.  Feeding Problems and Their Underlying Mechanisms in the Esophageal Atresia–Tracheoesophageal Fistula Patient , 2017, Front. Pediatr..

[4]  U. Krishnan,et al.  Prevalence of Malnutrition and Feeding Difficulties in Children With Esophageal Atresia , 2017, Journal of pediatric gastroenterology and nutrition.

[5]  U. Krishnan,et al.  P-36: Quality of Life, Family Impact and Parental Satisfaction with Multidisciplinary Care in Children with Oesophageal Atresia. , 2016, Diseases of the esophagus : official journal of the International Society for Diseases of the Esophagus.

[6]  A. Lapillonne,et al.  Posttraumatic Stress Reactions in Parents of Children Esophageal Atresia , 2016, PloS one.

[7]  G. Wernovsky,et al.  Anxiety Scores in Caregivers of Children with Hypoplastic Left Heart Syndrome. , 2016, Congenital heart disease.

[8]  A. Esterman,et al.  The supportive care needs of parents caring for a child with a rare disease: A scoping review. , 2015, Disability and health journal.

[9]  Joanna Smith,et al.  Parents' experiences of living with a child with a long‐term condition: a rapid structured review of the literature , 2015, Health expectations : an international journal of public participation in health care and health policy.

[10]  R. Birnbaum,et al.  A pilot investigation of feeding problems in children with esophageal atresia. , 2015, Diseases of the esophagus : official journal of the International Society for Diseases of the Esophagus.

[11]  W. Korlacki,et al.  Alternations in genes expression of pathway signaling in esophageal tissue with atresia: results of expression microarray profiling. , 2015, Diseases of the esophagus : official journal of the International Society for Diseases of the Esophagus.

[12]  A. Esterman,et al.  What Are the Supportive Care Needs of Parents Caring for a Child Diagnosed with Ectodermal Dysplasia: A Rare Genetic Disorder? , 2014 .

[13]  S. Husby,et al.  Esophageal atresia: gastroesophageal functional follow-up in 5-15 year old children. , 2013, Journal of pediatric surgery.

[14]  Andrew Yule Finlay,et al.  The impact of patients’ chronic disease on family quality of life: an experience from 26 specialties , 2013, International journal of general medicine.

[15]  J. Lemacks,et al.  Insights from Parents about Caring for a Child with Birth Defects , 2013, International journal of environmental research and public health.

[16]  J. Deatrick,et al.  Health care autonomy in children with chronic conditions: implications for self-care and family management. , 2013, The Nursing clinics of North America.

[17]  R. Birnbaum,et al.  Feeding difficulties in children with esophageal atresia: treatment by a multidisciplinary team. , 2013, Diseases of the esophagus : official journal of the International Society for Diseases of the Esophagus.

[18]  F. Gottrand,et al.  Epidemiology of esophageal atresia. , 2013, Diseases of the esophagus : official journal of the International Society for Diseases of the Esophagus.

[19]  R. Wijnen,et al.  Esophageal atresia: long-term morbidities in adolescence and adulthood. , 2013, Diseases of the esophagus : official journal of the International Society for Diseases of the Esophagus.

[20]  K. Berlin,et al.  Utility of the PedsQL™ family impact module: assessing the psychometric properties in a community sample , 2013, Quality of Life Research.

[21]  Lijun Sun,et al.  Health-Related Quality of Life among Children with Recurrent Respiratory Tract Infections in Xi’an, China , 2013, PloS one.

[22]  Miland N. Palmer,et al.  Prevalence of esophageal atresia among 18 international birth defects surveillance programs. , 2012, Birth defects research. Part A, Clinical and molecular teratology.

[23]  E. Garne,et al.  Oesophageal atresia: prevalence, prenatal diagnosis and associated anomalies in 23 European regions , 2012, Archives of Disease in Childhood.

[24]  N. Yamamoto-Mitani,et al.  Family caregiver distress with children having rare genetic disorders: a qualitative study involving Russell-Silver Syndrome in Taiwan. , 2012, Journal of Clinical Nursing.

[25]  J. Tovar,et al.  Current Controversies in the Surgical Treatment of Esophageal Atresia , 2011, Scandinavian journal of surgery : SJS : official organ for the Finnish Surgical Society and the Scandinavian Surgical Society.

[26]  S. Weisman,et al.  The impact of pediatric chronic pain on parents' health-related quality of life and family functioning: reliability and validity of the PedsQL 4.0 Family Impact Module. , 2011, Journal of pediatric psychology.

[27]  Ken R. Smith,et al.  Improving Quality of Life of Children With Oral Clefts: Perspectives of Parents , 2010, The Journal of craniofacial surgery.

[28]  U. Malt,et al.  Long‐term parental psychological distress among parents of children with a malformation—A prospective longitudinal study , 2010, American journal of medical genetics. Part A.

[29]  M. Pakarinen,et al.  Outcome of esophageal atresia beyond childhood. , 2009, Seminars in pediatric surgery.

[30]  L. Spitz.  Oesophageal atresia , 2007, Orphanet journal of rare diseases.

[31]  S. Lyonnet,et al.  An overview of isolated and syndromic oesophageal atresia , 2007, Clinical genetics.

[32]  S. Green,et al.  "We're tired, not sad": benefits and burdens of mothering a child with a disability. , 2007, Social science & medicine.

[33]  J. Varni,et al.  The PedsQL™ Family Impact Module: Preliminary reliability and validity , 2004, Health and Quality of Life Outcomes.

[34]  C. O'boyle,et al.  Quality of Life: Impact of Chronic Illness on the Partner , 2001, Journal of the Royal Society of Medicine.

[35]  C. Barker,et al.  The Benefits of Mutual Support Groups for Parents of Children With Disabilities , 2001, American journal of community psychology.

[36]  M. Ginn-Pease,et al.  Prognostic classification for esophageal atresia and tracheoesophageal fistula: Waterston versus Montreal. , 1997, Journal of pediatric surgery.

[37]  J. Puntis,et al.  Growth and feeding problems after repair of oesophageal atresia. , 1990, Archives of disease in childhood.

[38]  J. Wesley,et al.  Fifty Years' Experience with Esophageal Atresia and Tracheoesophageal Fistula: Beginning with Cameron Haight's First Operation in 1935 , 1986, Annals of surgery.

[39]  S. Saab,et al.  Esophageal atresia and tracheoesophageal fistula. , 1979, Ear, nose, & throat journal.