“Let him speak:” a descriptive qualitative study of the roles and behaviors of family companions in primary care visits among older adults with cognitive impairment

Cognitive impairment poses communication challenges in primary care. Although family “companions” commonly attend primary care visits of older adults with cognitive impairment, little is known about how their involvement affects communication. Therefore, we sought to understand how companion involvement affects the quality of primary care visit communication for older adults with cognitive impairment.

[1]  Andrea Berger,et al.  Inviting patients and care partners to read doctors’ notes: OpenNotes and shared access to electronic medical records , 2016, J. Am. Medical Informatics Assoc..

[2]  L. Gitlin,et al.  Who Should Assess the Needs of and Care for a Dementia Patient's Caregiver? , 2016, AMA journal of ethics.

[3]  Andrea Berger,et al.  Patients, care partners, and shared access to the patient portal: online practices at an integrated health system , 2016, J. Am. Medical Informatics Assoc..

[4]  F. Légaré,et al.  A Synthesis Of Knowledge About Caregiver Decision Making Finds Gaps In Support For Those Who Care For Aging Loved Ones. , 2016, Health affairs.

[5]  Charles Safran,et al.  Information Sharing Preferences of Older Patients and Their Families. , 2015, JAMA internal medicine.

[6]  S. Petronio,et al.  Surrogate Decision Makers and Proxy Ownership: Challenges of Privacy Management in Health Care Decision Making , 2015, Health communication.

[7]  P. Treebupachatsakul.  Patient and family engagement , 2015 .

[8]  David C Aron,et al.  A Mobile Health Intervention Supporting Heart Failure Patients and Their Informal Caregivers: A Randomized Comparative Effectiveness Trial , 2015, Journal of medical Internet research.

[9]  John D. Piette,et al.  Potential Impact of Incorporating a Patient-Selected Support Person into mHealth for Depression , 2015, Journal of General Internal Medicine.

[10]  Jennifer L. Wolff,et al.  Family Caregivers and Consumer Health Information Technology , 2015, Journal of General Internal Medicine.

[11]  S. Smith,et al.  Health literacy, cognitive ability, and functional health status among older adults. , 2014, Health services research.

[12]  M. Boustani,et al.  Redesigning systems of care for older adults with Alzheimer's disease. , 2014, Health affairs.

[13]  Lars L. Andersen,et al.  Interventions to increase physical activity for people with congenital heart disease , 2014 .

[14]  P. Rabins,et al.  A Tool to Strengthen the Older Patient–Companion Partnership in Primary Care: Results from a Pilot Study , 2014, Journal of the American Geriatrics Society.

[15]  Urmimala Sarkar,et al.  Care partners and online patient portals. , 2014, JAMA.

[16]  Wan Tang,et al.  Values and options in cancer care (VOICE): study design and rationale for a patient-centered communication and decision-making intervention for physicians, patients with advanced cancer, and their caregivers , 2013, BMC Cancer.

[17]  A Gafni,et al.  Physician-patient-companion communication and decision-making: a systematic review of triadic medical consultations. , 2013, Patient education and counseling.

[18]  Richard Gonzalez,et al.  Patient, companion, and oncologist agreement regarding information discussed during triadic oncology clinical interactions , 2013, Psycho-oncology.

[19]  H. Wigert,et al.  Becoming a parent to a child with birth asphyxia—From a traumatic delivery to living with the experience at home , 2013, International journal of qualitative studies on health and well-being.

[20]  S. Pennbrant.  A trustful relationship—the importance for relatives to actively participate in the meeting with the physician , 2013, International journal of qualitative studies on health and well-being.

[21]  Renee F Wilson,et al.  A Systematic Review of Communication Quality Improvement Interventions for Patients with Advanced and Serious Illness , 2013, Journal of General Internal Medicine.

[22]  P. Werner,et al.  Are you talking to me?! An exploration of the triadic physician-patient-companion communication within memory clinics encounters. , 2012, Patient education and counseling.

[23]  William Revelle,et al.  Literacy, Cognitive Function, and Health: Results of the LitCog Study , 2012, Journal of General Internal Medicine.

[24]  Jennifer L. Wolff,et al.  Older Adults’ Mental Health Function and Patient-Centered Care: Does the Presence of a Family Companion Help or Hinder Communication? , 2012, Journal of General Internal Medicine.

[25]  B. Carpenter,et al.  Linguistic features of power dynamics in triadic dementia diagnostic conversations. , 2011, Patient education and counseling.

[26]  Jennifer L. Wolff,et al.  Family presence in routine medical visits: a meta-analytical review. , 2011, Social science & medicine.

[27]  Karen L. Schmidt,et al.  Discussing Dementia-Related Behaviors During Medical Visits for People With Alzheimer’s Disease , 2010, American journal of Alzheimer's disease and other dementias.

[28]  Sheryl Mitnick,et al.  Family Caregivers, Patients and Physicians: Ethical Guidance to Optimize Relationships , 2010, Journal of General Internal Medicine.

[29]  J. Chodosh,et al.  Primary Care Providers' Views of Challenges and Rewards of Dementia Care Relative to Other Conditions , 2009, Journal of the American Geriatrics Society.

[30]  Karen L. Schmidt,et al.  Verbal communication among Alzheimer's disease patients, their caregivers, and primary care physicians during primary care office visits. , 2009, Patient education and counseling.

[31]  Hardeep Singh,et al.  Missed and Delayed Diagnosis of Dementia in Primary Care: Prevalence and Contributing Factors , 2009, Alzheimer disease and associated disorders.

[32]  R. Kravitz,et al.  Practice Constraints, Behavioral Problems, and Dementia Care: Primary Care Physicians’ Perspectives , 2007, Journal of General Internal Medicine.

[33]  A. Edwards,et al.  Interventions before consultations for helping patients address their information needs. , 2007, The Cochrane database of systematic reviews.

[34]  Barry D. Weiss,et al.  Brief Report: screening items to identify patients with limited health literacy skills , 2006, Journal of General Internal Medicine.

[35]  R. Fitzpatrick,et al.  Patient participation in the consultation process: a structured review of intervention strategies. , 2006, Patient education and counseling.

[36]  Greta E. Greer,et al.  Cancer‐related communication between female patients and male partners scale: a pilot study , 2006, Psycho-oncology.

[37]  C. Becker,et al.  Taxonomy development for clinical trials of fall and fracture prevention interventions , 2005 .

[38]  D. Roter,et al.  Autonomy-related behaviors of patient companions and their effect on decision-making activity in geriatric primary care visits. , 2005, Social science & medicine.

[39]  Christopher M. Callahan,et al.  Implementing a screening and diagnosis program for dementia in primary care , 2005, Journal of General Internal Medicine.

[40]  J. Karlawish,et al.  Do Alzheimer's disease patients want to participate in a treatment decision, and would their caregivers let them? , 2005, The Gerontologist.

[41]  A Gafni,et al.  Examining physician-patient-caregiver encounters: the case of Alzheimer's disease patients and family physicians in Israel , 2004, Aging & mental health.

[42]  M. Elliott,et al.  Physician Recognition of Cognitive Impairment: Evaluating the Need for Improvement , 2004, Journal of the American Geriatrics Society.

[43]  Sandra Petronio,et al.  Family and Friends as Healthcare Advocates: Dilemmas of Confidentiality and Privacy , 2004 .

[44]  Lorraine M Noble,et al.  Improving patients' communication with doctors: a systematic review of intervention studies. , 2004, Patient education and counseling.

[45]  Christopher M Callahan,et al.  Six-Item Screener to Identify Cognitive Impairment Among Potential Subjects for Clinical Research , 2002, Medical care.

[46]  L. Boise,et al.  Diagnosing dementia: perspectives of primary care physicians. , 1999, The Gerontologist.

[47]  Judith A. Hall,et al.  Doctors Talking With Patients/Patients Talking With Doctors: Improving Communication in Medical Visits , 1992 .

[48]  S. Folstein,et al.  "Mini-mental state". A practical method for grading the cognitive state of patients for the clinician. , 1975, Journal of psychiatric research.