Obtaining data on patient race, ethnicity, and primary language in health care organizations: current challenges and proposed solutions.

OBJECTIVES To provide an overview of why health care organizations (HCOs) should collect race, ethnicity, and language data, review current practices, discuss the rationale for collecting this information directly from patients, and describe barriers and solutions. PRINCIPAL FINDINGS Hospitals and HCOs with data from their own institutions may be more likely to look at disparities in care, design targeted programs to improve quality of care, and provide patient-centered care. Yet data collection is fragmented and incomplete within and across organizations. A major factor affecting the quality of data is the lack of understanding about how best to collect this information from patients. CONCLUSIONS If HCOs make a commitment to systematically collect race/ethnicity and language data from patients, it would be a major step in enhancing the ability of HCOs to monitor health care processes and outcomes for different population groups, target quality initiatives more efficiently and effectively, and provide patient-centered care.

[1]  A. Sehgal.  Impact of quality improvement efforts on race and sex disparities in hemodialysis. , 2003, JAMA.

[2]  R. Hasnain-Wynia,et al.  WHO, WHEN, AND HOW: THE CURRENT STATE OF RACE, ETHNICITY, AND PRIMARY LANGUAGE DATA COLLECTION IN HOSPITALS , 2004 .

[3]  D. Nerenz.  Developing a Health Plan Report Card on Quality of Care for Minority Populations , 2002 .

[4]  R H Brook,et al.  The public release of performance data: what do we expect to gain? A review of the evidence. , 2000, JAMA.

[5]  R. Hasnain-Wynia,et al.  A system for rapidly and accurately collecting patients' race and ethnicity. , 2006, American journal of public health.

[6]  R. Hasnain-Wynia,et al.  Patients’ attitudes toward health care providers collecting information about their race and ethnicity , 2005, Journal of General Internal Medicine.

[7]  Caraway L Timmins.  The impact of language barriers on the health care of Latinos in the United States: a review of the literature and guidelines for practice. , 2002, Journal of midwifery & women's health.

[8]  Matthew R Anderson,et al.  Validity of racial/ethnic classifications in medical records data: an exploratory study. , 2003, American journal of public health.

[9]  E. Perrin,et al.  The Role of Racial and Ethnic Data Collection in Eliminating Disparities in Health Care , 2004 .

[10]  E. Perrin,et al.  Eliminating Health Disparities: Measurement and Data Needs , 2004 .

[11]  R Barker,et al.  The effects of physician communications skills on patient satisfaction; recall, and adherence. , 1984, Journal of chronic diseases.

[12]  F. Moazam,et al.  At the Interface of Cultures , 2003, The Journal of Clinical Ethics.

[13]  Lisa I. Iezzoni,et al.  Linguistic and cultural barriers to care , 2007, Journal of General Internal Medicine.

[14]  E. Heitman.  Cultural Diversity and the Clinical Encounter: Intercultural Dialogue in Multi-Ethnic Patient Care , 1994 .

[15]  K. Makimoto.  Drinking Patterns and Drinking Problems Among Asian-Americans and Pacific Islanders , 1998, Alcohol health and research world.

[16]  N. Lurie,et al.  Disparities and quality improvement: federal policy levers. , 2005, Health affairs.

[17]  R. Groman,et al.  Racial and ethnic disparities in health care: a position paper of the American College of Physicians. , 2004, Annals of internal medicine.

[18]  Campbell Gd,et al.  American College of Physicians , 1974, Definitions.

[19]  J. Phinney,et al.  At the interface of cultures: multiethnic/multiracial high school and college students. , 1996, The Journal of social psychology.

[20]  M. Youdelman.  Racial, Ethnic, and Primary Language Data Collection in the Health Care System: An Assessment of Federal Policies and Practices , 2001 .

[21]  E. Perrin,et al.  Improving Racial and Ethnic Data on Health: Report of a Workshop , 2003 .

[22]  E. Sondik,et al.  Race/ethnicity and the 2000 census: implications for public health. , 2000, American journal of public health.

[23]  Lisa A. Flores,et al.  Rethinking race, revealing dilemmas: Imagining a new racial subject in race traitor , 2002 .

[24]  K. Fiscella,et al.  Inequality in quality: addressing socioeconomic, racial, and ethnic disparities in health care. , 2000, JAMA.