Self Harmony: Rethinking Hackathons to Design and Critique Digital Technologies for Those Affected by Self-Harm

In this paper we explore the opportunities, challenges and best practices around designing technologies for those affected by self-harm. Our work contributes to a growing HCI literature on mental health and wellbeing, as well as understandings of how to imbue appropriate value-sensitivity within the digital design process in these contexts. The first phase of our study was centred upon a hackathon during which teams of designers were asked to conceptualise and prototype digital products or services for those affected by self-harm. We discuss how value-sensitive actions and activities, including engagements with those with lived experiences of self-harm, were used to scaffold the conventional hackathon format in such a challenging context. Our approach was then extended through a series of critical engagements with clinicians and charity workers who provided appraisal of the prototypes and designs. Through analysis of these engagements we expose a number of design challenges for future HCI work that considers self-harm; moreover we offer insight into the role of stakeholder critiques in extending and rethinking hackathons as a design method in sensitive contexts.

[1]  Stephen P. Lewis,et al.  The Scope of Nonsuicidal Self-Injury on YouTube , 2011, Pediatrics.

[2]  David Wallace,et al.  BORROWING FROM HACKATHONS: OVERNIGHT DESIGNATHONS AS A TEMPLATE FOR CREATIVE IDEA HUBS IN THE SPACE OF HANDS-ON LEARNING, DIGITAL LEARNING, AND SYSTEMS RE-THINKING , 2013 .

[3]  P. Corrigan How stigma interferes with mental health care. , 2004, The American psychologist.

[4]  Venet Osmani,et al.  Mental health and the impact of ubiquitous technologies , 2013, Personal and Ubiquitous Computing.

[5]  David Coyle,et al.  Clinical evaluations and collaborative design: developing new technologies for mental healthcare interventions , 2009, CHI.

[6]  Bryan J. Ranger,et al.  Health Hackathons Drive Affordable Medical Technology Innovation Through Community Engagement , 2016 .

[7]  R. Calvo,et al.  Promoting Psychological Wellbeing: Loftier Goals for New Technologies [Opinion] , 2013, IEEE Technol. Soc. Mag..

[8]  Stefan Rennick Egglestone,et al.  Health Technologies 'In the Wild': Experiences of Engagement with Computerised CBT , 2016, CHI.

[9]  S. Gauthier,et al.  The psychological and physical health of family members caring for an elderly person with dementia. , 1992, Journal of clinical epidemiology.

[10]  Carl F. DiSalvo,et al.  Issue-oriented hackathons as material participation , 2016, New Media Soc..

[11]  Tamsin Ford,et al.  Ethical practice in internet research involving vulnerable people: lessons from a self-harm discussion forum study (SharpTalk) , 2011, Journal of Medical Ethics.

[12]  Scott Griffiths,et al.  Go big or go home: A thematic content analysis of pro-muscularity websites. , 2016, Body image.

[13]  Vibhore Prasad,et al.  Using the internet as a source of self-help for people who self-harm , 2001 .

[14]  Alan Borning,et al.  Next steps for value sensitive design , 2012, CHI.

[15]  Elizabeth D. Mynatt,et al.  “Hunger Hurts but Starving Works”: Characterizing the Presentation of Eating Disorders Online , 2016, CSCW.

[16]  Finn Skårderud,et al.  [What is self-harm?]. , 2009, Tidsskrift for den Norske laegeforening : tidsskrift for praktisk medicin, ny raekke.

[17]  James D. Herbsleb,et al.  How to Hackathon: Socio-technical Tradeoffs in Brief, Intensive Collocation , 2016, CSCW.

[18]  Patrick Olivier,et al.  Designing for mental wellbeing: towards a more holistic approach in the treatment and prevention of mental illness , 2015, BCS HCI.

[19]  M. Six Silberman,et al.  When the implication is not to design (technology) , 2011, CHI.

[20]  Munmun De Choudhury,et al.  Quantifying and Predicting Mental Illness Severity in Online Pro-Eating Disorder Communities , 2016, CSCW.

[21]  Tanzeem Choudhury,et al.  Tracking Mental Well-Being: Balancing Rich Sensing and Patient Needs , 2014, Computer.

[22]  D. Borzekowski,et al.  e-Ana and e-Mia: A content analysis of pro-eating disorder Web sites. , 2010, American journal of public health.

[23]  Munmun De Choudhury,et al.  #thyghgapp: Instagram Content Moderation and Lexical Variation in Pro-Eating Disorder Communities , 2016, CSCW.

[24]  Peter Aitken,et al.  Involving service users in intervention design: a participatory approach to developing a text‐messaging intervention to reduce repetition of self‐harm , 2011, Health expectations : an international journal of public participation in health care and health policy.

[25]  L. Hartling,et al.  A Systematic Review of Social Media Use to Discuss and View Deliberate Self-Harm Acts , 2016, PloS one.

[26]  Tanzeem Choudhury,et al.  Passive and In-Situ assessment of mental and physical well-being using mobile sensors , 2011, UbiComp '11.

[27]  David C. Mohr,et al.  Realizing the Potential of Behavioral Intervention Technologies , 2013 .

[28]  Daniel Jackson,et al.  Challenges for Designing new Technology for Health and Wellbeing in a Complex Mental Healthcare Context , 2016, CHI.

[29]  Tamsin Ford,et al.  Online discussion forums for young people who self-harm: user views , 2011 .