Children who require long-term ventilation: staff education and training.

Children who live with conditions that were previously considered incompatible with long-term survival are often highly dependent on medical technology, interventions and equipment. This includes an increasing number of children who require long-term assisted ventilation. It is generally accepted that the social, psychological, emotional and developmental needs of children are best met at home, rather than in a hospital environment, and this applies equally to children who have long-term health problems. However, one of the many factors that can impede the discharge from hospital of children requiring long-term assisted ventilation is a lack of staff who can provide care and support for them and their families. Increasing the number of staff who are able to provide such support may therefore assist in improving the provision of appropriate care for this group. This paper reports on a study of the perceived education and training needs of staff who care for children with complex needs, including assisted ventilation, and their families.

[1]  M. O'Brien,et al.  Rearing the child who is technology dependent: perceptions of parents and home care nurses. , 2002, Journal for specialists in pediatric nursing : JSPN.

[2]  S. Kirk,et al.  Supporting 'expert' parents--professional support and families caring for a child with complex health care needs in the community. , 2002, International journal of nursing studies.

[3]  J. Drummond,et al.  Respite care users who have children with chronic conditions: are they getting a break? , 2001, Journal of pediatric nursing.

[4]  M. O'Toole,et al.  Technology-dependent children: Transition from hospital to home: Barbara Boosfeld and Mary O’Toole describe a planned approach to achieving home care for ventilator-dependent children within the context of family support needs and conflicting health service priorities , 2000 .

[5]  M. Ferrari,et al.  Home care for chronic respiratory failure in children: 15 years experience , 2002, Paediatric anaesthesia.

[6]  L. Aday,et al.  Home care for ventilator-assisted children: implications for the children, their families, and health policy. , 1988, Children's health care : journal of the Association for the Care of Children's Health.

[7]  S. Kirk Negotiating lay and professional roles in the care of children with complex health care needs. , 2001, Journal of advanced nursing.

[8]  M. McCubbin,et al.  Hospitalized children with chronic illness: parental caregiving needs and valuing parental expertise. , 2001, Journal of pediatric nursing.

[9]  V. Hayes,et al.  Do nurses and parents of children with chronic conditions agree on parental needs? , 1996, Journal of pediatric nursing.

[10]  V. Nelson,et al.  Perinatal spinal cord injury requiring long-term home mechanical ventilation: a report of four cases. , 1999, Pediatric rehabilitation.

[11]  P. Darbyshire Family-centred care within contemporary British paediatric nursing. , 1995, British journal of nursing.

[12]  D. Watson,et al.  Exploring multi-agency working in services to disabled children with complex healthcare needs and their families. , 2002, Journal of clinical nursing.

[13]  M. O'Brien Living in a house of cards: family experiences with long-term childhood technology dependence. , 2001, Journal of pediatric nursing.

[14]  M. O'Toole,et al.  Current status of long term ventilation of children in the United Kingdom: questionnaire survey , 1999, BMJ.

[15]  J. Noyes Barriers that delay children and young people who are dependent on mechanical ventilators from being discharged from hospital. , 2002, Journal of clinical nursing.

[16]  S. Kirk,et al.  High-tech care: high-skilled parents: Caroline Glendinning and Sue Kirk discuss the implications for parents, professionals and managers of their recent research into technology-dependent children , 2000 .

[17]  M. Kaga,et al.  Mechanical ventilation care in severe childhood neurological disorders , 2001, Brain and Development.

[18]  C. Holden Review of home paediatric parenteral nutrition on the UK. , 2001, British journal of nursing.

[19]  J. Wellington Methods and Issues in Educational Research , 1996 .

[20]  Tony Malim,et al.  Research Methods and Statistics , 1992 .

[21]  R. Olsen,et al.  Dilemmas in the provision of own-home respite support for parents of young children with complex health care needs: evidence from an evaluation. , 2001, Journal of advanced nursing.

[22]  D. Baumgardner,et al.  Quality-of-life in technology-dependent children receiving home care, and their families--a qualitative study. , 1998, WMJ : official publication of the State Medical Society of Wisconsin.