Family communication about fertility preservation in adolescent males newly diagnosed with cancer

Approximately half of male childhood cancer survivors experience fertility impairment, which can cause psychological distress. Sperm banking remains underutilized among adolescent males with cancer. Parent recommendation influences banking decisions, yet multi‐informant studies have not been conducted to examine fertility preservation (FP) communication and decision making in this population. This study explored FP communication among mothers, fathers, and their male adolescents newly diagnosed with cancer.

[1]  J. Rausch,et al.  Impact of a novel family-centered values clarification tool on adolescent sperm banking attempts at the time of a new cancer diagnosis , 2021, Journal of Assisted Reproduction and Genetics.

[2]  A. Palmer-Wackerly,et al.  Fertility Preservation Decision-Making Communication between Young Adult Cancer Patients and Their Romantic Partners: An Application of the DECIDE Typology , 2021, Health communication.

[3]  J. Klosky,et al.  Parent recommendation to bank sperm among at‐risk adolescent and young adult males with cancer , 2020, Pediatric blood & cancer.

[4]  C. Gerhardt,et al.  "We Can Always Adopt": Perspectives of Adolescent and Young Adult Males with Cancer and Their Family on Alternatives to Biological Parenthood. , 2020, Journal of adolescent and young adult oncology.

[5]  L. Meacham,et al.  Development of a Pediatric Fertility Preservation Program: A Report From the Pediatric Initiative Network of the Oncofertility Consortium. , 2019, The Journal of adolescent health : official publication of the Society for Adolescent Medicine.

[6]  S. O’Brien,et al.  Recruiting families and children newly diagnosed with cancer for behavioral research: Important considerations and successful strategies , 2019, Psycho-oncology.

[7]  T. Laws.  Supporting fathers who want to be involved in providing healthcare for their child. , 2018, Nursing children and young people.

[8]  C. Gerhardt,et al.  Fertility Preservation Discussions With Male Adolescents With Cancer and Their Parents: “Ultimately, It’s His Decision” , 2018, JAMA pediatrics.

[9]  J. Stanek,et al.  Examining predictors and outcomes of fertility consults among children, adolescents, and young adults with cancer , 2018, Pediatric blood & cancer.

[10]  M. Giuliani,et al.  Improving Access to Standardized Fertility Preservation Information for Older Adolescents and Young Adults with Cancer: Using a User-Centered Approach with Young Adult Patients, Survivors, and Partners to Refine Fertility Knowledge Transfer , 2018, Journal of Cancer Education.

[11]  L. Lipshultz,et al.  Male Fertility Preservation , 2018, Current Urology Reports.

[12]  K. Oktay,et al.  Fertility Preservation in Patients With Cancer: ASCO Clinical Practice Guideline Update. , 2018, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[13]  F. Wang,et al.  Parental influences on sperm banking attempts among adolescent males newly diagnosed with cancer. , 2017, Fertility and sterility.

[14]  E. Mohammadi,et al.  Barriers and facilitators related to the implementation of a physiological track and trigger system: A systematic review of the qualitative evidence , 2017, International journal for quality in health care : journal of the International Society for Quality in Health Care.

[15]  L. Schover,et al.  Prevalence and Predictors of Sperm Banking in Adolescents Newly Diagnosed With Cancer: Examination of Adolescent, Parent, and Provider Factors Influencing Fertility Preservation Outcomes. , 2017, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[16]  B. Elger,et al.  Adolescent oncofertility discussions: Recommendations from a systematic literature review , 2017, AJOB empirical bioethics.

[17]  N. Deshpande,et al.  Impact of fertility preservation counseling and treatment on psychological outcomes among women with cancer: A systematic review , 2015, Cancer.

[18]  C. Wyns,et al.  Fertility preservation in the male pediatric population: factors influencing the decision of parents and children. , 2015, Human reproduction.

[19]  Daniel L. Carlson.  Do differences in expectations and preferences explain racial/ethnic variation in family formation outcomes? , 2015 .

[20]  C. Lampic,et al.  ‘Will I be able to have a baby?’ Results from online focus group discussions with childhood cancer survivors in Sweden , 2014, Human reproduction.

[21]  C. Lampic,et al.  Desire for children, difficulties achieving a pregnancy, and infertility distress 3 to 7 years after cancer diagnosis , 2014, Supportive Care in Cancer.

[22]  M. McHugh.  Interrater reliability: the kappa statistic , 2012, Biochemia medica.

[23]  M. Britto,et al.  What Is Known about Parents’ Treatment Decisions? A Narrative Review of Pediatric Decision Making , 2012, Medical decision making : an international journal of the Society for Medical Decision Making.

[24]  C. Knapp,et al.  Who decides? Decision making and fertility preservation in teens with cancer: a review of the literature. , 2011, The Journal of adolescent health : official publication of the Society for Adolescent Medicine.

[25]  Z. Rosberger,et al.  Facilitators and obstacles to sperm banking in young men receiving gonadotoxic chemotherapy for cancer: the perspective of survivors and health care professionals. , 2006, Human reproduction.

[26]  J. Nurmi,et al.  Age differences in adolescent future-oriented goals, concerns, and related temporal extension in different sociocultural contexts , 1994 .

[27]  B. Glaser.  The Constant Comparative Method of Qualitative Analysis , 1965 .

[28]  J. Barroso,et al.  ANNUAL REVIEW OF SEX RESEARCH SPECIAL ISSUE 21st Century Parent–Child Sex Communication in the United States: A Process Review , 2017 .

[29]  Jason R. Hodges,et al.  Fertility as a priority among at-risk adolescent males newly diagnosed with cancer and their parents , 2014, Supportive Care in Cancer.

[30]  Fertility preservation in patients undergoing gonadotoxic therapy or gonadectomy: a committee opinion. , 2019, Fertility and sterility.

[31]  S. Ziebland,et al.  Fertility issues: the perceptions and experiences of young men recently diagnosed and treated for cancer. , 2007, The Journal of adolescent health : official publication of the Society for Adolescent Medicine.