LIFE CARE PLANNING FOR CHILDREN WITH NEURODEVELOPMENTAL DISABILITIES

[1]  R. Murison,et al.  Incidence, Characteristics, and Predictive Factors for Dysphagia After Pediatric Traumatic Brain Injury , 2003, The Journal of head trauma rehabilitation.

[2]  Jonas H. Ellenberg,et al.  Antecedents of cerebral palsy. Multivariate analysis of risk. , 1986 .

[3]  G. Shaw,et al.  Prevalence of spina bifida and anencephaly during the transition to mandatory folic acid fortification in the United States. , 2002, Teratology.

[4]  A. Bakheit.  Botulinum toxin in the management of childhood muscle spasticity: comparison of clinical practice of 17 treatment centres , 2003, European journal of neurology.

[5]  N. Loss,et al.  Do children with myelomeningocele and hydrocephalus display nonverbal learning disabilities? An empirical approach to classification , 2003, Journal of the International Neuropsychological Society.

[6]  T. Edgar.  Clinical Utility of Botulinum Toxin in the Treatment of Cerebral Palsy: Comprehensive Review , 2001, Journal of child neurology.

[7]  J. Fletcher,et al.  Academic achievement and academic placement following traumatic brain injury in children and adolescents: a two-year longitudinal study. , 1998, Journal of clinical and experimental neuropsychology.

[8]  J. Rosenfeld,et al.  Predicting recovery from head injury in young children: A prospective analysis , 1997, Journal of the International Neuropsychological Society.

[9]  E. Mahone,et al.  Parent and Self-Report Ratings of Executive Function in Adolescents with Myelomeningocele and Hydrocephalus , 2002, Child neuropsychology : a journal on normal and abnormal development in childhood and adolescence.

[10]  M. Stineman,et al.  Functional status after childhood traumatic brain injury. , 2005, The Journal of trauma.

[11]  Rajesh Balkrishnan,et al.  Spasticity Associated with Cerebral Palsy in Children , 2003, Paediatric drugs.

[12]  G. Holmbeck,et al.  A multimethod, multi-informant, and multidimensional perspective on psychosocial adjustment in preadolescents with spina bifida. , 2003, Journal of consulting and clinical psychology.

[13]  C. Hawley.  Reported problems and their resolution following mild, moderate and severe traumatic brain injury amongst children and adolescents in the UK , 2003, Brain injury.

[14]  B. Jennett,et al.  Assessment of coma and impaired consciousness. A practical scale. , 1974, Lancet.

[15]  C. Hawley,et al.  Children's brain injury: a postal follow-up of 525 children from one health region in the UK , 2002, Brain injury.

[16]  K. Turjanmaa,et al.  Latex allergy: prevalence, risk factors, and cross-reactivity. , 2002, Methods.

[17]  R. Zafonte,et al.  Posttraumatic amnesia: its relation to functional outcome. , 1997, Archives of physical medicine and rehabilitation.

[18]  Asya M Al-Kharusi,et al.  A prospective study and review of pre-morbid characteristics in children with traumatic brain injury , 2002, Pediatric rehabilitation.

[19]  M. Franzen,et al.  Psychiatric Symptomatology and Family Functioning in Children and Adolescents with Spina Bifida , 1998, Journal of Clinical Psychology in Medical Settings.

[20]  Allen W. Brown,et al.  Personality Factors and Injury Severity in the Prediction of Early and Late Traumatic Brain Injury Outcomes. , 2004 .

[21]  C. Moore,et al.  Folic Acid for the Prevention of Neural Tube Defects , 1999, Pediatrics.

[22]  T. Tsai,et al.  Intrathecal Baclofen Pump Use for Spasticity: A Clinical Survey , 2000, American journal of physical medicine & rehabilitation.

[23]  B. Zemel,et al.  Energy expenditure of children and adolescents with severe disabilities: a cerebral palsy model. , 1996, The American journal of clinical nutrition.

[24]  L. Fugate,et al.  Role of Agitation in Prediction of Outcomes After Traumatic Brain Injury , 2001, American journal of physical medicine & rehabilitation.

[25]  D. Francis,et al.  Specific language deficiencies in children with early onset hydrocephalus , 1995 .

[26]  N. C. Ellis,et al.  THE SELF‐CONCEPT OF YOUNG PEOPLE ‘ WITH SPINA BIFIDA: A POPULATION‐BASED STUDY , 1994, Developmental medicine and child neurology.

[27]  A. Colver,et al.  Effect of severity of disability on survival in north east England cerebral palsy cohort , 2000, Archives of disease in childhood.

[28]  M. Barnes,et al.  Changes in working memory after traumatic brain injury in children. , 2004, Neuropsychology.

[29]  S. Dorner.  Sexual interest and activity in adolescents with spina bifida. , 1977, Journal of Child Psychology and Psychiatry and Allied Disciplines.

[30]  J. Cohen,et al.  Diagnosis and treatment of feeding disorders in children with developmental disabilities. , 2001, Pediatrics.

[31]  H. Livneh,et al.  Psychosocial Adaptation to Chronic Illness and Disability , 2001 .

[32]  S. Chapman,et al.  Longitudinal Outcome of Verbal Discourse in Children with Traumatic Brain Injury: Three‐Year Follow‐Up , 2001, The Journal of head trauma rehabilitation.

[33]  T. Lo,et al.  Critical thresholds of intracranial pressure and cerebral perfusion pressure related to age in paediatric head injury , 2005, Journal of Neurology, Neurosurgery & Psychiatry.

[34]  F. Zenga,et al.  Posttraumatic epilepsy with special emphasis on prophylaxis and prevention. , 2005, Acta neurochirurgica. Supplement.

[35]  W. J. Oakes,et al.  SURVIVAL AT 5 YEARS OF A COHORT OF NEWBORN INFANTS WITH MYELOMENINGOCELE , 1996, Developmental medicine and child neurology.

[36]  R. Birnbacher,et al.  Diagnosis and prevention of neural tube defects , 2002, Current opinion in urology.

[37]  B. Murdoch,et al.  Clinical progression and outcome of dysphagia following paediatric traumatic brain injury: a prospective study , 2004, Brain injury.

[38]  H. Madersbacher.  Neurogenic bladder dysfunction in patients with myelomeningocele , 2002, Current opinion in urology.

[39]  P. Rigby,et al.  Promoting Independence for Teens and Young Adults with Physical Disabilities , 1999, Canadian journal of occupational therapy. Revue canadienne d'ergotherapie.

[40]  S. Dikmen,et al.  Risk of seizure recurrence after the first late posttraumatic seizure. , 1997, Archives of physical medicine and rehabilitation.

[41]  S. Wisniewski,et al.  Cerebrovascular response in infants and young children following severe traumatic brain injury: a preliminary report. , 1997, Pediatric neurosurgery.

[42]  D. Skuse,et al.  Prevalence of feeding problems and oral motor dysfunction in children with cerebral palsy: a community survey. , 1996, The Journal of pediatrics.

[43]  R. Bauer,et al.  Pathophysiology of traumatic injury in the developing brain: an introduction and short update. , 2004, Experimental and toxicologic pathology : official journal of the Gesellschaft fur Toxikologische Pathologie.

[44]  B. Gans,et al.  FUNCTIONAL OUTCOME IN CHILDREN WITH TRAUMATIC BRAIN INJURY: Agreement between Clinical Judgment and the Functional Independence Measure , 1992, American journal of physical medicine & rehabilitation.

[45]  K. Barlow,et al.  Late Neurologic and Cognitive Sequelae of Inflicted Traumatic Brain Injury in Infancy , 2005, Pediatrics.

[46]  K. Kwong,et al.  Epilepsy in children with cerebral palsy. , 1998, Pediatric neurology.

[47]  R. Cremer,et al.  Longitudinal study on latex sensitization in children with spina bifida , 1998, Pediatric allergy and immunology : official publication of the European Society of Pediatric Allergy and Immunology.

[48]  W. Hauser,et al.  A population-based study of seizures after traumatic brain injuries. , 1998, The New England journal of medicine.

[49]  M. Hallett,et al.  Classification and definition of disorders causing hypertonia in childhood. , 2003, Pediatrics.

[50]  N. Temkin,et al.  Selective dorsal rhizotomy: meta‐analysis of three randomized controlled trials , 2002, Developmental medicine and child neurology.

[51]  L. Bartoshesky,et al.  As the child with chronic disease grows up: transitioning adolescents with special health care needs to adult-centered health care. , 2003, Delaware medical journal.

[52]  D. Reddihough,et al.  The epidemiology and causes of cerebral palsy. , 2003, The Australian journal of physiotherapy.

[53]  V. Anderson,et al.  Cognitive Outcome in Children with Myelomeningocele and Perinatal Hydrocephalus: A Longitudinal Perspective , 2001 .

[54]  P. Merguerian,et al.  Intraoperative anaphylactic reaction due to latex hypersensitivity. , 1991, Urology.

[55]  Recovery trends over three years following pediatric traumatic brain injury. , 1995 .

[56]  J. Wingfield,et al.  The concept of allostasis in biology and biomedicine , 2003, Hormones and Behavior.

[57]  Gillian King,et al.  The importance of leisure in the lives of persons with congenital physical disabilities. , 2002, The American journal of occupational therapy : official publication of the American Occupational Therapy Association.

[58]  G. Hankins,et al.  Temporal and demographic trends in cerebral palsy--fact and fiction. , 2003, American journal of obstetrics and gynecology.

[59]  K. Jaffe,et al.  Motor performance in children after traumatic brain injury. , 1993, Archives of physical medicine and rehabilitation.

[60]  S. Takashima,et al.  Study of the maturation of the child's brain using 31P-MRS. , 1998, Pediatric neurology.

[61]  S. Chapman,et al.  Verbal selective learning after traumatic brain injury in children , 2004, Annals of neurology.

[62]  J. Kuhtz-Buschbeck,et al.  Analyses of gait, reaching, and grasping in children after traumatic brain injury. , 2003, Archives of physical medicine and rehabilitation.

[63]  J. Snow.  Executive Processes for Children With Spina Bifida , 1998 .

[64]  G. Kluger,et al.  Heterotopic Ossification in Childhood and Adolescence , 2000, Journal of child neurology.

[65]  D. Drotar,et al.  Health-related quality of life of children and adolescents after traumatic brain injury. , 2002, Pediatrics.

[66]  Thomas F. Nugent,et al.  Dynamic mapping of human cortical development during childhood through early adulthood. , 2004, Proceedings of the National Academy of Sciences of the United States of America.

[67]  I. Pollack,et al.  The effect of early craniocervical decompression on functional outcome in neonates and young infants with myelodysplasia and symptomatic Chiari II malformations: results from a prospective series. , 1996, Neurosurgery.

[68]  N. C. Ellis,et al.  Depressive symptoms and self-concept in young people with spina bifida. , 1997, Journal of pediatric psychology.

[69]  S. Campbell,et al.  Evidence of the effects of intrathecal baclofen for spastic and dystonic cerebral palsy , 2000 .

[70]  P. Griffiths,et al.  Prevalence and severity of feeding and nutritional problems in children with neurological impairment: Oxford Feeding Study. , 2000 .

[71]  L. Krach,et al.  Late improvements in mobility after acquired brain injuries in children. , 1997, Pediatric neurology.

[72]  D. Hovda,et al.  Experience-dependent behavioral plasticity is disturbed following traumatic injury to the immature brain , 2005, Behavioural Brain Research.

[73]  D. Cifu,et al.  Analyzing risk factors for late posttraumatic seizures: a prospective, multicenter investigation. , 2003, Archives of physical medicine and rehabilitation.

[74]  M. Msall,et al.  Long-term morbidity and management strategies of tracheal aspiration in adults with severe developmental disabilities. , 1994, American journal of mental retardation : AJMR.

[75]  P. McGrath,et al.  Marital Quality of Parents of Children with Spina Bifida: A Case‐Comparison Study , 1994, Journal of developmental and behavioral pediatrics : JDBP.

[76]  B. McEwen,et al.  Allostasis, Homeostats, and the Nature of Stress , 2002, Stress.

[77]  Y. Erşahin,et al.  Growing skull fractures (craniocerebral erosion) , 2000, Neurosurgical Review.

[78]  H. Christensen,et al.  A population survey found an association between self-reports of traumatic brain injury and increased psychiatric symptoms. , 2004, Journal of clinical epidemiology.

[79]  D. Bryen,et al.  Adolescent sexuality and disability. , 2002, Physical medicine and rehabilitation clinics of North America.

[80]  K H Pribram,et al.  Psychophysiological indices of cerebral maturation. , 1992, International journal of psychophysiology : official journal of the International Organization of Psychophysiology.

[81]  M. Dennis,et al.  Neuromotor Speech Deficits in Children and Adults with Spina Bifida and Hydrocephalus , 2002, Brain and Language.

[82]  G. Holmbeck,et al.  Observed and perceived dyadic and systemic functioning in families of preadolescents with spina bifida. , 2002, Journal of pediatric psychology.

[83]  Linda Ewing-Cobbs,et al.  Early Brain Injury in Children: Development and Reorganization of Cognitive Function , 2003, Developmental neuropsychology.

[84]  D. Delis,et al.  Verbal learning and memory in children with myelomeningocele. , 1995, Journal of pediatric psychology.

[85]  M. Kaste,et al.  Early and Late Posttraumatic Seizures in Traumatic Brain Injury Rehabilitation Patients: Brain Injury Factors Causing Late Seizures and Influence of Seizures on Long‐Term Outcome , 1999, Epilepsia.

[86]  D. Beezhold,et al.  Allergy to Latex Rubber , 1995, Annals of Internal Medicine.

[87]  L. Krach.  Pharmacotherapy of Spasticity: Oral Medications and Intrathecal Baclofen , 2001, Journal of child neurology.

[88]  J. Rosenfeld,et al.  Recovery of Intellectual Ability following Traumatic Brain Injury in Childhood: Impact of Injury Severity and Age at Injury , 2000, Pediatric Neurosurgery.

[89]  L. Keith,et al.  Outcome of triplets and high-order multiple pregnancies , 2003, Current opinion in obstetrics & gynecology.

[90]  Z. Jamjoom,et al.  Growing skull fractures: classification and management. , 1994, British journal of neurosurgery.

[91]  J. Ward,et al.  An evidence-based approach to management of increased intracranial pressure. , 1998, Critical care clinics.

[92]  S. Kolakowsky-Hayner,et al.  Incidence, risk factors, and outcomes of fecal incontinence after acute brain injury: findings from the Traumatic Brain Injury Model Systems national database. , 2003, Archives of physical medicine and rehabilitation.

[93]  C. García-Alfaro,et al.  [Cerebral palsy in childhood: 250 cases report]. , 2002, Revista de neurologia.

[94]  Lauren C. Frey,et al.  Epidemiology of Posttraumatic Epilepsy: A Critical Review , 2003, Epilepsia.

[95]  M. W. Molen,et al.  Growth spurts in brain maturation during middle childhood as indexed by EEG power spectra , 1997, Biological Psychology.

[96]  D. Watson.  Occupational therapy intervention guidelines for children and adolescents with spina bifida. , 1991, Child: Care, Health and Development.

[97]  J. Rosenfeld,et al.  Thirty month outcome from early childhood head injury: a prospective analysis of neurobehavioural recovery. , 2004, Brain : a journal of neurology.

[98]  Irene R. McEwen.  Occupational and Physical Therapy in Educational Environments , 1995 .

[99]  H S Levin,et al.  The Galveston Orientation and Amnesia Test: A Practical Scale to Assess Cognition after Head Injury , 1979, The Journal of nervous and mental disease.

[100]  A. Maclennan,et al.  Antenatal Causes of Cerebral Palsy: Associations Between Inherited Thrombophilias, Viral and Bacterial Infection, and Inherited Susceptibility to Infection , 2003, Obstetrical & gynecological survey.

[101]  Guo-yi Gao,et al.  Early indicators of prognosis in 846 cases of severe traumatic brain injury. , 2002, Journal of neurotrauma.

[102]  V. Anderson,et al.  Functional memory skills following traumatic brain injury in young children. , 1999, Pediatric rehabilitation.

[103]  P. Rosenbaum.  Cerebral palsy: what parents and doctors want to know , 2003, BMJ : British Medical Journal.

[104]  Isabelle Gagnon,et al.  Children show decreased dynamic balance after mild traumatic brain injury. , 2004, Archives of physical medicine and rehabilitation.

[105]  J. Rosenfeld,et al.  Identifying factors contributing to child and family outcome 30 months after traumatic brain injury in children , 2005, Journal of Neurology, Neurosurgery & Psychiatry.

[106]  P. S. Cowen,et al.  Effects of respite care for children with developmental disabilities: evaluation of an intervention for at risk families. , 2002, Public health nursing.

[107]  D. V. Van Dyke,et al.  Drug and Environmental Factors Associated with Adverse Pregnancy Outcomes Part III: Folic Acid: Pharmacology, Therapeutic Recommendations, and Economics , 1998, The Annals of pharmacotherapy.

[108]  M. Mital,et al.  Ectopic Bone Formation in Children and Adolescents with Head Injuries: Its Management , 1987, Journal of pediatric orthopedics.

[109]  B. Kogan,et al.  Conservative management in neurogenic bladder dysfunction , 2002, Current opinion in urology.

[110]  D. Sharpe,et al.  Siblings of children with a chronic illness: a meta-analysis. , 2002, Journal of pediatric psychology.

[111]  E. Hendrick,et al.  Experience with surgical decompression of the Arnold-Chiari malformation in young infants with myelomeningocele. , 1983, Neurosurgery.

[112]  D. Francis,et al.  Longitudinal neuropsychological outcome in infants and preschoolers with traumatic brain injury , 1997, Journal of the International Neuropsychological Society.

[113]  I. Emanuelson,et al.  Neuropsychological progress during 14 years after severe traumatic brain injury in childhood and adolescence , 2004, Brain injury.

[114]  H. Levin,et al.  Selective Learning in Children after Traumatic Brain Injury: A Preliminary Study , 2002, Child neuropsychology : a journal on normal and abnormal development in childhood and adolescence.

[115]  J. Roldán,et al.  Parálisis cerebral infantil: estudio de 250 casos , 2002 .

[116]  M. Platt,et al.  The changing epidemiology of cerebral palsy. , 1996, Archives of disease in childhood. Fetal and neonatal edition.

[117]  M. Wallen,et al.  Upper-limb function in Australian children with traumatic brain injury: A controlled, prospective study. , 2001, Archives of physical medicine and rehabilitation.

[118]  Juan Sahuquillo,et al.  Cognitive changes after cerebrospinal fluid shunting in young adults with spina bifida and assumed arrested hydrocephalus , 2000, Journal of neurology, neurosurgery, and psychiatry.

[119]  J. Rosenfeld,et al.  Functional Plasticity or Vulnerability After Early Brain Injury? , 2005, Pediatrics.

[120]  J. Blackman,et al.  Paroxysmal autonomic instability with dystonia after brain injury. , 2004, Archives of neurology.

[121]  G. Holmbeck,et al.  Maternal, paternal, and marital functioning in families of preadolescents with spina bifida. , 1997, Journal of pediatric psychology.

[122]  J. Kuhtz-Buschbeck,et al.  Sensorimotor recovery in children after traumatic brain injury: analyses of gait, gross motor, and fine motor skills. , 2003, Developmental medicine and child neurology.

[123]  S. Astley,et al.  THE ROLE OF SELECTIVE DORSAL RHIZOTOMY IN cérébral PALSY: CRITICAL EVALUATION OF A PROSPECTIVE CLINICAL SERIES , 1994, Developmental medicine and child neurology.

[124]  K. Welch.  The intracranial pressure in infants. , 1980, Journal of neurosurgery.

[125]  Poggi Geraldina,et al.  Neuropsychiatric sequelae in TBI: a comparison across different age groups , 2003, Brain injury.

[126]  G. Teasdale,et al.  Diffuse brain swelling after head injury: more often malignant in adults than children? , 1994, Journal of neurosurgery.

[127]  F. Rose,et al.  Social and behavioural effects of traumatic brain injury in children. , 1998, Brain injury.

[128]  J. Oud,et al.  Behaviour problems of young motor disabled children at home and in the therapeutic toddler class , 2001 .

[129]  M. Yerby.  Clinical Care of Pregnant Women with Epilepsy: Neural Tube Defects and Folic Acid Supplementation , 2003 .

[130]  J. Dunning,et al.  A meta-analysis of variables that predict significant intracranial injury in minor head trauma , 2004, Archives of Disease in Childhood.

[131]  P. Hayden,et al.  Adolescents with myelodysplasia: impact of physical disability on emotional maturation. , 1979, Pediatrics.

[132]  J. Jutai,et al.  Adolescents with physical disabilities: some psychosocial aspects of health. , 1996, The Journal of adolescent health : official publication of the Society for Adolescent Medicine.

[133]  N J Wald,et al.  MATERNAL SERUM-ALPHA-FETOPROTEIN MEASUREMENT IN ANTENATAL SCREENING FOR ANENCEPHALY AND SPINA BIFIDA IN EARLY PREGNANCY Report of U.K. Collaborative Study on Alpha-fetoprotein in Relation to Neural-tube Defects , 1977, The Lancet.

[134]  D. Drotar,et al.  Long-term attention problems in children with traumatic brain injury. , 2005, Journal of the American Academy of Child and Adolescent Psychiatry.

[135]  C. Schimke,et al.  Strategies in urological reconstruction in myelomeningocele , 2002, Current opinion in urology.

[136]  H. Levin,et al.  Executive functions after traumatic brain injury in children. , 2005, Pediatric neurology.

[137]  P. Klonoff,et al.  Long-term outcome of head injuries: a 23 year follow up study of children with head injuries. , 1993, Journal of neurology, neurosurgery, and psychiatry.